Autism

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  • The reason most people can’t become activists

    Autism from a Father's Point of View
    Stuart Duncan
    21 Aug 2014 | 10:37 am
    When I started my blog over 4  years ago, I was encouraged and even praised for saying the things that people could relate and agree with. It was encouraging and spurred me on to post more.  But it wasn’t long before little dark spots began to seep through the light. More and more people would hate me, for no apparent reason. They’d argue with me about one topic while I was talking about a whole other topic and be totally confused as to how there ever came to be an argument. Over the last year especially, I feel like a boxer in the ring, never getting a timeout in between…
  • Study Offers Clues To How Autism Develops

    Disability Scoop
    Michelle Diament
    21 Aug 2014 | 9:01 pm
    Kids with autism retain extra brain connections that other children weed out during development, researchers say in a new study that suggests drugs may be able to correct the issue.
  • ASD Brains Show Decrease in Neuronal Autophagy, Underlying Oversensitivity and Deficits in Social Interaction

    Different Roads to Learning Blog
    Different Roads to Learning
    22 Aug 2014 | 9:15 am
    SOURCE: New York Times article by Pam Belluck A recent study led by David Sulzer at Columbia University Medical Center showed that in children and adolescents with autism, brain tissue within the temporal lobe exhibit a decrease in neuronal autophagy (the brain’s process of clearing out old and degraded cells), which underlies oversensitivity and deficits in social interaction. NY Times: Guomei Tang, PhD and Mark S. Sonders, PhD/Columbia University Medical Center In early development, synapses—connections that allow neurons to communicate with each other—allows for infants to…
  • Support Growing For Autism Behavior Therapy

    Disability Scoop
    Shaun Heasley
    20 Aug 2014 | 9:01 pm
    A new government-backed review finds that there is substantially more evidence for behavior therapy in treating autism than even just a few years ago.
  • Is Autism Speaks supporting vaccine-autism causation proponent Congressman Bill Posey?

    Left Brain Right Brain
    Sullivan (Matt Carey)
    19 Aug 2014 | 2:24 pm
    Someone forwarded an email from the “Autism Action Network” recently. The email asked people to support Congressman Bill Posey’s election campaign by attending a fundraiser. Looks like a few big donors to Mr. Posey were going to attend, including Sallie Bernard of SafeMinds and Autism Speaks. Ms. Bernard certainly is with both organizations, but I wonder if she was attending as an Autism Speaks officer or if Autism Speaks was even aware that their name was being used to promote the fundraiser. Perhaps Ms. Bernard wasn’t aware that her Autism Speaks affiliation was…
 
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    AGE OF AUTISM

  • CDC's "Snowden" MMR Whistleblower Identity Revealed

    Age of Autism
    22 Aug 2014 | 4:45 am
    Editor's Note -- From our friends at Autism Media Channel. CDC whistleblower is being identified as William Thompson, an author of the paper on timing of MMR vaccination and risk of autism. -- Dan Olmsted. CDC's "SNOWDEN" IDENTITY REVEALED SENIOR...
  • Autistic, Adult, Alone: When Mom or Dad Dies

    Age of Autism
    22 Aug 2014 | 2:45 am
    By Anne Dachel Internationally governments and doctors have looked on as autism consumed a generation of children. No one in authority has ever expressed alarm. There's never been a demand for answers. Officials readily admit that there's nothing they know...
  • Win a Copy of Outsmarting Autism By Patricia Lemer

    Age of Autism
    22 Aug 2014 | 2:43 am
    We're happy to anounce a contest to win a copy of Patricia Lemer's s Outsmarting Autism, The Ultimate Guide to Management, Healing and Prevention. Leave a comment to enter to win a copy. You can purchase the book now at...
  • Dachel Media Update: Seattle Young Adults with Autism

    Age of Autism
    21 Aug 2014 | 3:00 pm
    By Anne Dachel Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand. Aug 20, 2014, King5 TV Seattle: Seattle Children's changes lives of young...
  • Kennedy Jr. on Fox NY: This Book Is Going to Scare People

    Age of Autism
    21 Aug 2014 | 2:46 am
    New York News Robert F. Kennedy, Jr., author of Thimerosal: Let The Science Speak, appeared on MyFoxNY yesterday: NEW YORK (MYFOXNY) - At least a dozen scathing reviews were printed about Robert F. Kennedy Jr.'s new book on a preservative...
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    Autism News -- ScienceDaily

  • Children with autism have extra synapses in brain: May be possible to prune synapses with drug after diagnosis

    21 Aug 2014 | 9:47 am
    Children and adolescents with autism have a surplus of synapses in the brain, and this excess is due to a slowdown in a normal brain “pruning” process during development, according to a new study. Because synapses are the points where neurons connect and communicate with each other, the excessive synapses may have profound effects on how the brain functions.
  • Maturing brain flips function of amygdala in regulating stress hormones

    20 Aug 2014 | 3:39 pm
    In contrast to evidence that the amygdala stimulates stress responses in adults, researchers have found that the amygdala has an inhibitory effect on stress hormones during the early development of nonhuman primates. This finding adds to evidence for a developmental switch in amygdala function and connectivity.
  • Visual 'gist' helps us figure out where a crowd is looking

    18 Aug 2014 | 6:52 am
    Have you ever seen a crowd of people looking off into the distance, perhaps toward a passing biker or up to the top of a building? You probably looked there, too, instantly, even without paying attention to the individuals in the group. Researchers have discovered that we rely on a specialized visual process known as 'ensemble coding' to perceive where a crowd is looking.
  • A shift in the code: New method reveals hidden genetic landscape

    17 Aug 2014 | 7:01 pm
    With three billion letters in the human genome, it seems hard to believe that adding or removing a base could have much of an effect on our health. Yet, such insertions and deletions can dramatically alter biological function. It is has been difficult to detect these mutations. Scientists have devised a new way to analyze genome sequences that pinpoints insertions and deletions in people with diseases such as autism, obsessive compulsive disorder, and Tourette syndrome.
  • Adults with autism at higher risk of sexual victimization, study shows

    14 Aug 2014 | 4:22 pm
    Adults with autism are at a higher risk of sexual victimization than adults without, due to lack of sex education, but with improved interventions that focus on sexual knowledge and skill building, the risk could be reduced, according to a study. 'Adults with Autism Spectrum Disorder gain more of their sexual knowledge from external sources such as the internet and the television whereas social sources would include parents, teachers and peers,' says one author.
 
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    Square 8

  • People Like You

    22 Aug 2014 | 10:46 am
    Next week, we will have a meeting about People Like You. As the meeting leader, I will introduce myself as someone with personal experience because I have a child who is Like You. I will tell you a little of my background, including my involvement in a Major Organization that has stated its goal of removing People Like You from the population. Before the meeting, be sure to read the PowerPoint of my recent presentation, referring to People Like You as having a “multi-system disease.” The disease is the Like You-ness itself. You will also see here that one in fifty people are now Like You,…
  • Code Blue

    3 Apr 2014 | 10:36 am
    How does it feel? You lit it up blue, didn’t you? I told you about Autism Speaks and how their primary goal is a world without people like me in it and how they have degraded and threatened and ignored and sued and plagiarized autistic people and how they thought nothing of saying we are not fully human, that our families are not really living, can never be happy, and we are the reason. I talked to you when I didn’t have the energy or resources to speak. I wrote to you when I had other plans and more constructive work to do. I answered your questions. I was reasonably polite, though I…
  • More about Freaks

    4 May 2012 | 8:49 am
    This is Part 2 of a series on my participation in CUNY's ESA Conferece 2012. Part 1 is here. My initial thought was to explore the meaning of “autism scholar.” What are the credentials? Does blogging count? Even if it does, I haven’t done a lot of that in a while. Do I deserve the label based on my degree or the publication of a single paper? And if so, who is being left out? What can be done to create an atmosphere of learning and shared knowledge that would expand the notion of scholarship beyond academia? What types of knowledge and learning are currently ignored or discounted? I…
  • BADD: Connecting dots

    1 May 2012 | 8:14 am
    Somebody calls autism a tragedy. Somebody kills an autistic person. Somebody doesn’t see how these two events are connected. I try to explain. I try harder. It happens again and again and again and somebody ‘splains it away.The topic here is devaluation. When it becomes commonplace to pair the words autism and tragedy, the pairing seeps deep down into the collective mind. When the puzzle piece becomes the recognized symbol for autism, the message comes over and over that there is something unfinished about the person. Something mysterious that the general public cannot be expected to…
  • Attention

    30 Apr 2012 | 10:59 am
    There’s an old Zen story: A student said to Master Ichu, “Please write for me something of great wisdom.” Master Ichu picked up his brush and wrote one word: “Attention.” The student said, “Is that all?” The master wrote, “Attention. Attention.” The student became irritable. “That doesn’t seem profound or subtle to me.” In response, Master Ichu wrote simply, “Attention. Attention. Attention.” In frustration, the student demanded, “What does this word attention mean?” Master Ichu replied, “Attention means attention.” -Beck, C.J. (1993). Nothing special:…
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    Ballastexistenz

  • Tube Love

    Mel Baggs
    19 Aug 2014 | 9:16 pm
    Drawing of a gastrojejunostomy feeding tube, GJ tube for short. Tube Love Its name in medical-ese is a gastrojejunostomy tube Or a GJ tube for short I just call it The Tube Through nothing more than some tubes And a syringe And a feeding pump I give myself water I give myself food I give myself meds I give myself life Bypassing my paralyzed stomach I drain out the life-destroying bile That would otherwise suffocate me In pneumonia after pneumonia Until I eventually got unlucky and died There are no words for the feeling Of giving myself a big syringe of cold water On a hot day And feeling…
  • Can you see the gaps?

    Mel Baggs
    27 Jun 2014 | 4:44 am
    In the voids inside my mind There’s an ocean, deep and dark At the bottom of the ocean There’s reflections of the stars If you can see the stars At the bottom, in the deep If you can see the rainbows That even the sun can’t reach If you can see me dancing Unaware of being watched If you can see the world Before a mind, before a thought If you see distant reflections Of reflections, of reflections And if you can see the deep, the dark The silence between worlds If you can see the void That stands in front of me If you can see how full it is And how empty it can be If you see what it’s…
  • What came before.

    Mel Baggs
    16 Jun 2014 | 6:46 pm
    If I could reach through the computer screen… I want to hand you a lapis lazuli ball So you can lose yourself in the deep blue And be dazzled by the gold specks. I want you to roll it over and over in your hand Gently nose it to feel its texture And weigh it in your hand. I want to hand you my black tourmaline egg So you can feel that unique texture I want you to hold it while you sleep And wake up to it, warm and slick in your hand I want to hand you my amber ring So you can watch the sunlight turn it into fire And watch the sun set inside it glittering red, orange, and yellow I want…
  • This is how I feel when I read a lot of posts about the Judge Rotenberg Center.

    Mel Baggs
    9 Jun 2014 | 12:18 am
    Close the Judge Rotenberg Center.  For the love of everything holy, close the Judge Rotenberg Center.  Stomp it into the ground and dance on its fucking ashes. But. You won’t be done. You’ll just have eliminated the most obvious of a huge number of places that torture and abuse their patients in the name of treatment. Skin shock is showy and scary and it makes a good story and it makes it easy to see what is hurting people. But people can be hurt just as bad or worse without it. People can be hurt just as bad or worse by places that don’t brag about the torture they…
  • Your politics have a problem when they contradict the real-life experiences of the people they’re supposed to be about.

    Mel Baggs
    30 May 2014 | 4:34 am
    Your politics have an even bigger problem when the people they’re supposed to be about, become afraid to describe our real-life experiences, for fear of angering the echo chamber.  And when we become afraid to describe our real-life experiences, that reinforces your idea that or real-life experiences don’t actually exist.  Which reinforces the idea that you’re right.  Which makes you feel even more justified in attacking anyone who happens to contradict you for any reason at all. I hate this. I hate it because I am afraid to say certain things about my life. Because I…
 
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    Reports from a Resident Alien

  • Q&A: Informing an Undiagnosed Adult Friend

    Lisa D.
    29 Jul 2014 | 7:54 pm
    Q: Would it be a good idea to inform an adult friend that he most probably has Aspergers/HFA? He is very intelligent, has a well-paid responsible job [that he can do from home totally on his own, usually], has verbal but not behavioural meltdowns; his friendships are odd and shallow and his love-life alternately a mess or non-existent.A: Short answer? Yes. If it's bad enough for you to worry about it, it's probably a good idea to tell him what you've observed. The worst that happens is he gets offended and you apologize; at best, you might have given him a clue that'll help…
  • Thoughts on oxytocin

    Lisa D.
    29 Jul 2014 | 7:33 pm
    Oxytocin is associated with the way NTs "group up". It makes you want to bond with someone and trust them, while rejecting anyone outside your group.So, oxytocin is involved with bonding and trust, and also with prejudice.I think the oxytocin/autism picture is going to be more complex than it seems at first glance. For example, autistic people are known to trust too much--the opposite of what an oxytocin deficiency would imply. And we are securely bonded with our parents, the same as neurotypical children are--meaning that we don't have issues with bonding, either.My personal…
  • Fear of disability

    Lisa D.
    6 Jul 2014 | 11:34 pm
    The fear of disability is an old fear, older than humanity itself.If you are a wild animal, being close by to another animal that is ill or acting oddly can be dangerous. You might catch the illness, or the animal's confusion could attract a predator that might hurt you both.So it is a natural instinct to stay away from those who are ill. It can be seen in humans most significantly in the disgust reaction. If you saw an infected wound, or a sore, or a person with a runny nose and red eyes, you would instinctively back away. That is a survival instinct and it's been around since we had…
  • Bittersweet News

    Lisa D.
    4 Jul 2014 | 9:52 am
    I spend some time each day monitoring the news and maintaining the Autism Memorial site, and lately, things have been unusually quiet. This year so far, 2014, I've added only seven new people, mostly children. That there should be any is bad, but that the new cases are a trickle instead of a flood is somewhat hopeful.Recently, the killers of two autistic teenagers, guardians who were supposed to protect and teach them, were brought to justice.Brandon White, age 15, was killed by his mother's boyfriend, who tied him up and suffocated him. Brandon's killer was sentenced to 90 years,…
  • I am not a Killer

    Lisa D.
    24 May 2014 | 9:46 am
    You know that study, the one that's been in the news lately, about how lots of serial killers are autistic?This one?That study... Yeah, it's bad science, or bad journalism, depending on whether it's the researcher or the reporter who made the leap from "people say you have autism" to "you actually have autism".What they did was look at news articles about serial killers and mass murderers. Then they checked to see which ones the press had speculated about having ASD traits. About a quarter had had a newspaper reporter make that assumption about them. Only one,…
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    drive mom crazy

  • A Poem and a Challenge for you from Drive Mom Crazy Blog

    theamazinj
    12 Aug 2014 | 4:22 pm
    Life bleeds, life burns, life scars, life rejoices, life reoccurs, life sulks, life smiles, life rises, life declines, but most importantly, life emerges from the distance as either a rising up to the sky or a rebirth and rejuvenation to live it all over again. Life cries with weeping tears, life misses other people, but life also brings the spirit to all of us to live our life. I know the passing of great people in our lives is saddest when we can’t seem to fathom why? Why them and not US? Why them and not I? Our mission is one and our mission is whole, our mission is guided, and our…
  • 5th Annual Autistic Artistic Carnival is UP!!!!

    theamazinj
    17 Jun 2014 | 9:24 pm
    As you watch and look at all the creative Autistic artists who submitted their talented works in the 5th Annual Autistic Artistic Carnival, I would like to thank all those people and groups that promoted the Carnival for me this year. Thank you to Landon Bryce at ThAutcast at his Facebook page, Thank you Thinking Person’s Guide to Autism and their Facebook page, Thank you to the Artists and Autism Facebook page, and Thank you to the many other individual people who promoted the Carnival for me including Renee Salas. If I missed anyone specifically please let me know and I will add you…
  • Struggles for Control and Supporting Individualities within Caring Communities

    theamazinj
    11 Jun 2014 | 12:42 pm
    Everyone in society likes to be in control. Being in control of another person is not being a community. Everyone loves it because they feel they have power over others. This also creates entitlement, sadly. It means that people tend to love their ego over themselves that they lose sight of who they are. Ego controls not only the person, but can control others within the community as well. If a person loses control over others, they will do harmful things to society and/or themselves. The only control we should have is the control of ourselves while following the laws the community created.
  • A poem called “A History of Who You are is No one else’s”

    theamazinj
    29 May 2014 | 1:39 pm
    A history of who we are, A love of the great people in our life, A feeling of spirit, A feeling of hope, Triumph that we endure, Sometimes we cry, Sometimes we melt, Sometimes we smile, Sometimes we embark on a journey with our passion to take out our anger, and bring in the loyalty, fancy, starry night in us to create a bundle of joy and rainbows. It’s not always easy, It’s not just being the same, It’s not always jolly, It’s not always what we think it could be, but in the end, it’s our time, our life, and our way of how we want to live with our fulfilling…
  • The Disability community needs services to ensure success in life

    theamazinj
    18 May 2014 | 10:29 am
    Either we have services or we don’t have services, but what happens when we do or don’t have services… It’s a CATCH-22! Needing services and using the services: 1) Not having your own voice 2) Having your needs always met as a dependent for life 3) Being pitied with despair 4) Not having your own way of doing things accomplished with self-determination 5) Always being spoken to as a child Not having/using services: 1) Being told you have to do everything on your own 2) Not having certain minimal services you need 3) Being told you don’t have a disability or you…
 
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    Left Brain Right Brain

  • Is Autism Speaks supporting vaccine-autism causation proponent Congressman Bill Posey?

    Sullivan (Matt Carey)
    19 Aug 2014 | 2:24 pm
    Someone forwarded an email from the “Autism Action Network” recently. The email asked people to support Congressman Bill Posey’s election campaign by attending a fundraiser. Looks like a few big donors to Mr. Posey were going to attend, including Sallie Bernard of SafeMinds and Autism Speaks. Ms. Bernard certainly is with both organizations, but I wonder if she was attending as an Autism Speaks officer or if Autism Speaks was even aware that their name was being used to promote the fundraiser. Perhaps Ms. Bernard wasn’t aware that her Autism Speaks affiliation was…
  • And yet another vaccinated/unvaccinated comparison study, this time funded by SafeMinds

    Sullivan (Matt Carey)
    13 Aug 2014 | 2:39 pm
    A study comparing vaccinated and unvaccinated children is expected to be published soon. That study was mentioned at a meeting of the Interagency Autism Coordinating Commitee earlier this year. With that announcement one might reasonably expect much discussion in the online autism parent community. Instead I’ve seen only one response: SafeMinds (an organization focused on the failed idea that mercury in vaccines caused the rise in autism diagnoses) put an article on their website noting that they were “worried” by this study (a response I already discussed). Perhaps I missed…
  • President Obama signs Autism CARES Act into law

    Sullivan (Matt Carey)
    11 Aug 2014 | 9:21 pm
    The Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 has been signed by President Obama, making it law. This will extend and expand on the framework for authorizing appropriations for autism research and for coordinating research efforts in the U.S.. Here is the summary for the bill: Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 – (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research,…
  • CBS News on Judge Rotenberg Center: Controversy over shocking people with autism, behavioral disorders

    Sullivan (Matt Carey)
    5 Aug 2014 | 5:04 pm
    Controversy over shocking people with autism, behavioral disorders is a story on the CBS News website today. In it, a former resident of the Judge Rotenberg Center is interviewed Jennifer Msumba is on the autism spectrum. For seven years, she was treated at the Judge Rotenberg Center in Canton, Massachusetts, where she received painful electric shocks aimed at modifying her behavior. She describes being strapped, spread-eagle to a restraint board and shocked multiple times before she left the center in 2009. “It’s so scary. I would ask God to make my heart stop because I…
  • A bit of irony from Generation Rescue: still citing Jenny McCarthy as the face of autism recovery

    Sullivan (Matt Carey)
    5 Aug 2014 | 12:00 am
    Somehow I’ve found myself on Facebook and, even more, navigating to the Generation Rescue page. And today I found this: In case you didn’t click to enlarge and read, here’s their statement: The New York Times recently posted an article on autism recovery – and yes, it’s real! There really is hope! Thank you Jenny McCarthy for being the celebrity to bring attention to the truth and thank you for all you have done for this cause. Here’s a hint–there really is hope even without losing a diagnosis. One can have be autistic or the parent of an autistic kid…
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    Susan's Blog

  • How Does He Know?

    Susan Senator
    2 Aug 2014 | 4:54 pm
    Life is not a bowl of cherries, but you might be able to get a lot out of a bowl of strawberries. I’m sure you don’t know what I mean, but you will. I am a writer, a word person, and an idea person, so I am obsessed with the way people say things and know things. Also, I am a mother deeply connected to my sons; put it all together and I am fascinated with what they know and how they express it. They are all three young men by now and so I have the added challenge of trying to figure out what’s going on with them while not seeing them all the time. Most of the time I write…
  • Is De-Auticizing the Goal?

    Susan Senator
    31 Jul 2014 | 3:24 pm
    This New York Times piece came my way, and frankly I’m pretty disappointed. “Kids Who ‘Beat’ Autism” is the title, so right away you can see the bias. The author, Ruth Padawer, obviously thinks she is onto something new (decades-old Applied Behavioral Analysis, ABA, of all things) by showing that sometimes such treatments “work” and the kids lose all their autism symptoms. But what she is not seeing is the harm such a viewpoint can unintentionally cause. The thrust of the article is to draw our sympathy for the families whose kids do not de-auticize,…
  • Loving Nat

    Susan Senator
    11 Jul 2014 | 5:23 pm
    Loving Nat — The Jewish Advocate, July 11, 2014 My day suddenly became very dark when I got the call: “Nat’s had an incident.” This happened when he was at his most anxious, and we did not know why. He was biting himself. Yelling, stomping. He’d punched a wall, apparently. He had to leave the store he was in. No, Nat, no! I moaned in my head. Not after all your hard work. Nat is 24 and has autism, alleged developmental delay, possible sensory issues, suspected processing disorders, really a whole smorgasbord of challenges and disabilities. He also has a keen eye for detail, an…
  • Are We Sure We Should Close All Sheltered Workshops?

    Susan Senator
    12 Jun 2014 | 2:40 pm
    How to balance the will of the majority with the needs of the few? In the case of the Inclusion movement, balance may prove elusive. Like so many movements, the cause of disability rights is saddled with a heavy history that advocates now want to be sure to avoid. In the past we had institutions. The documented abuse that inmates suffered is the stuff of horror films. Now the trend is to close all sheltered workshops. Vermont and Massachusetts are among the first to take measures towards that goal. Of course; these are two of the most progressive states in the country, and sheltered workshops…
  • Great Father’s Day Book

    Susan Senator
    10 Jun 2014 | 10:00 am
    PERFECT FOR FATHER’S DAY! I just found out that my New York Times “Lives” column from 2010 is being published in a small NYT anthology of Lives columns, “Moms and Dads” From the Lives Column.   Available at the following places: Featured TBook this month, available for free (?) to Times subscribers, iTunes,  Amazon, B&N And elsewhere.
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    Life With Joey

  • The Wild Ride

    Joeymom
    7 Aug 2014 | 9:46 pm
    It's been a weird summer.Remember back once upon a time when we were going spend our summer in Baltimore getting Joey all this wonderful help and therapy at Kennedy Krieger? It sounded so awesome. 8-10 weeks, and they would help him. We'd get some of the damage from the anxiety and depression mitigated. We were scrambling to figure out how to pay for it, where to stay, how to make it work. We sent back paperwork and held our breath.We got the call back much later than we were expecting- mid-June, when we were under the impression from the doctor that he was keen for us to get started ASAP.
  • In Memoriam, Our Luna

    Joeymom
    4 Aug 2014 | 6:52 pm
    Our Luna.April 13, 1997-August 4, 2014.We love you, Lunie Tunie.
  • Summer Days

    Joeymom
    3 Aug 2014 | 8:53 pm
  • Who Knows Best

    Joeymom
    30 Jun 2014 | 5:10 pm
    "Hey Mom!" Andy shouts from the door, "can I go with M to the pool?" He already has his swim stuff on. They are headed to the big public pool. Having a friend around the corner is big excitement for Andy, and he is totally enjoying it. We are fabulously lucky. They are awesome people, and they love Joey, too. M's little sister T is particularly fond of Joey, because they seem to talk at the same wavelength, even though she is younger."Do you want to go to Big Pool with Andy and M?" I ask Joey, calculating how long it will take me to get into a suit myself, and what would need to be packed to…
  • Positive Reinforcement

    Joeymom
    11 Jun 2014 | 7:44 pm
    Joey has discovered Facebook. No, he doesn't have his own account, he isn't old enough for one. I haven't let him start a side page from my account, either. However, he has figured out that Facebook communicates with people. It's kinda awesome.It started with photos. I started asking him if it was OK to put photos of him on Facebook. Although the response was almost without exception the "yeah" he gives that makes me wonder if he actually processed what I said, or just gave a vague answer because he knew I had asked a question and expected one, I now suspect he was paying more attention that…
 
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    I Speak of Dreams

  • #BlogHer14 Quick Recap: Friday Afternoon Keynote: Voices of the Year: A'Driane Nievess

    Liz
    21 Aug 2014 | 11:41 am
    I was pretty much used up by the time the Voices of the Year part of the program came on, but A'Driane Nieves' essay, as she read it, rendered me speechless. Now you can hear and watch her too. Important today. Blogger, A'Driane Nieves, of Butterfly Confessions, reads her powerful piece, "America's Not Here for Us" at the BlogHer '14 Voices of the Year Community Keynote. Find more of her writing on her blog: http://butterfly-confessions.com/. America's Not Here for Us at Butterfly Confessions. America's Not Here for Us at BlogHer. But as a woman of color…
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    Kim Stagliano

  • A Day at the Beach Weapons Style with Hanko Ryu Martial Arts

    Kim Rossi Stagliano
    17 Aug 2014 | 5:55 am
    We trained in Twin Brooks Park on Saturday. The sand made for a tough workout but loads of fun. This is Traditional Okinawan kobudo. And you thought my only weapon was my tongue..... Join us at Hanko Ryu Martial Arts, in Trumbull CT to start training in Karate, Kickboxing and/or Kobudo. Osu!SaiNunchakuSai with the guys!Tonqua vs. BoSaiSai kataBlockingGedan (low) blockNunchaku, Tonquia, Bo, and Sai
  • Blueberries!

    Kim Rossi Stagliano
    20 Jul 2014 | 8:05 am
  • Momjas

    Kim Rossi Stagliano
    8 Jul 2014 | 3:24 am
    Training every week with Lisa and Maria at Hanko Ryu Martial Arts is a joy. Maria and I tested last month. Lisa tests soon for her next black belt kyu. Osu!
  • Karate Girl Street Fight: Why Women Should Train

    Kim Rossi Stagliano
    15 Jun 2014 | 10:47 am
    This video shows actual technique we learn in the dojo in traditional Karate - in "bunkai" or application. It's choreographed, of course, but conveys the message that Karate is about self-defense and having an arsenal of ideas to fall back on in case of emergency.  Few of us will ever be in a street fight with 5 or more attackers. But any of us can face an attack coming out of the grocery store, the mall or even in our own homes. Get your daughters into a dojo. Join yourself. I was 47 when I first put on a gi.  You don't have to be fit or thin to start - you just have to have a…
  • Matayoshi Okinawan Weapons at Hanko Ryu Martial Arts

    Kim Rossi Stagliano
    31 May 2014 | 1:51 pm
    So fortunate to have had a weeklong seminar with Kyoshi Andrea Guarelli at Hanko Ryu Martial Arts in Trumbull, CT. We trained 5 and 6 hours a day and tested. Maria snd i are running away to Verona, Italy to train every day! Kyoshi Torri (owns Hanko Ryu), Lisa V., Jeremy A., Kyoshi Guarelli, James A., moi, Maria B.Bo staff kata. Sai kata.Watching. Absorbing.Kama kata. Tonkuwa kata.
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    Squidalicious

  • Blogust: When Your Comments Save Lives

    Shannon Des Roches Rosa
    1 Aug 2014 | 10:08 am
    August = Blogust. And Blogust is the wonderful time of year when the UN Foundation's Shot@Life taps members of the social media milieu and Blogosphere, to use our synergistic connectivity to save lives: "Every time you comment on or share the Blogust posts, Walgreens will help provide a life-saving vaccine for children around the world who need them most."That means that every comment -- on this post, or on one of the Blogust14 posts that will be rolling out during this month of August -- is literally a chance to save a life, to get a vaccine to a child who otherwise would not get have that…
  • Autism, Staycations, Patience, and Decompression

    Shannon Des Roches Rosa
    31 Jul 2014 | 6:41 pm
    Image description: a beige-skinnedboy with brown hair, seen from behind,at a distance, swimming in a poolsurrounded by a beige railing & deckwith trees and blue sky behind and aboveLeo and I have had a lot of together time this week. It's a bit of a staycation. The rest of our immediate family is in Canada, ziplining over 500 ft chasms and watching firework festivals. My Dude and I stayed here because it's the last week of his summer school, and One Does Not Simply Miss ESY. Though we feel the absence of the rest of our crew, I'm exhausted and grateful for the break. I think Leo also…
  • I Like Smart Smut And I Cannot Lie

    Shannon Des Roches Rosa
    31 Jul 2014 | 1:21 am
    I do love intelligent smut. A smart smutty novel is one of my favorite ways to decompress (and mental decompressing is key right now, after the wonderful whirlwind that was BlogHer14).Unfortunately, good smut can be hard to find. The trashy novels in my grandmother's basement blew my naive teenage mind, but in hindsight were indistinguishable Olden Tymes ravishment fantasies (a.k.a. rose-tinted rape), combined with breathless and statistically improbable odes to schlongs of unusual size. Ew to that. Adult me wants well-written smut, ideally of a fantasy, sci-fi, or historical bent; with…
  • Self-Pity Is for Suckers: My BlogHer14 10x10 Project Talk

    Shannon Des Roches Rosa
    25 Jul 2014 | 11:34 am
    Image description: Red-headed dork holding papers,wearing a dress, speaking. In front of blue & purple BG.Photo credit: Marla/@DvinMsMThis is the prepared text from my BlogHer 10x10 speech. Which went well, I think. I did go off script a bit but this is the core.  Update: For extra punch, see the official LiveBlog of the entire opening keynote, and Liz Ditz's enhanced Storify version of my talk.Hi. I’m Shannon, I’ve been blogging since 2003 at Squidalicious.com, since 2009 as a BlogHer Contributing editor, and since 2010 as an editor and contributor at Thinking Person’s Guide…
  • I'm BlogHer14 Bound. Are You?

    Shannon Des Roches Rosa
    17 Jul 2014 | 6:58 pm
    The BlogHer14 conference is in one week, in fabulous downtown San Jose. I am speaking there. Twice! As you might have guessed by all those banners to the left. Are you coming to the conference? If not, here is the agenda and how to register*. Please come. Because I am freaking out a bit. Old-timey camaraderie at BlogHer '06: SJ & Laura & my natural hair color.I am not freaking about speaking, not so much. I speak all over the place all the time (plus I spoke at BlogHer '08, BlogHer '10, & BlogHer '11). Speaking is monologuing and that is easy; small talk, & conversations with…
 
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    Karianna

  • The Final Selfie with my Cat

    20 Aug 2014 | 9:19 pm
    This is my final selfie (or maybe an "us-ie") with my cat, Becca. I'm smiling because although I'm saying "goodbye," I'm also telling her exactly why she was such a kick-ass cat. I'm thanking her for over 16 years of love. I'm recognizing that she was uncharacteristically tender with me post spinal-surgery, knowing that I wasn't up to her usual exuberant jumps on my lap or shoulder. I whisper that she's been the best cat ever, because she was. She hated pretty much everyone, but she loved me.... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • Speak Up!

    14 Aug 2014 | 12:00 pm
    When I go places with my parents, inevitably one of them has a complaint: whether a food order is slightly incorrect, or there is some sort of perceived safety issue in a venue. It isn't that they are negative people --they really aren't-- but rather that they want mistakes corrected. They speak up. I often cower a bit, OMG Dad don't... because I know it is impossible to be perfect. But, I also know I take things personally. Still, with the Golden Rule and all, I figure other people probably... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • Suicide, Part II

    13 Aug 2014 | 10:00 am
    I wrote a bit about suicide the other day. But I realize I have more to say. Yes, I linked up my posts on two former classmates who have died via suicide. (Plus I remember now that the younger brother of one of my friends took his own life, too.) And I mentioned that a friend's father died. I love (in a tragic, heart-breakingly poetic-but-accurate aspect) the way she puts it: "[He] set his soul free from his body." Indeed, that is what suicide is: freedom from unmanageable, unbearable pain.... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • Goodbye Camp G! (But Hello Summer Quest!)

    12 Aug 2014 | 7:00 pm
    My email box is filled with school registration details for my two sons: one set from elementary school, one set from middle school. Amazingly, next year those both ramp up to middle school and high school, since both are in their final years of their respective schools. Everything is going so fast: it is amazing that summer is nearly gone. And next summer, neither of my boys will be eligible for Camp Galileo. I'm shocked at how quickly our time with Camp G passed. It has without a doubt... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • Suicide

    11 Aug 2014 | 9:53 pm
    Today I had lunch with a friend whose father died via suicide. Our conversation spanned other topics, but I didn't know that my thoughts would turn to suicide tonight. The last time I saw her --when we were both 17-- I didn't know much about suicide. But since then, I've seen it happen again and again. When I learned of Robin Williams' suicide this evening, my heart broke. I felt sick for the precious, talented, tormented actor and his family. I was still on a high from enjoying lunch when I... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
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    Stimeyland

  • Running Strong

    Stimey
    15 Aug 2014 | 7:08 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • The Ugly Emotional Arc of New Car Buying

    Stimey
    4 Aug 2014 | 7:29 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Today We Sold Half of Our Real-Estate Empire

    Stimey
    31 Jul 2014 | 7:50 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • My New House, a.k.a. the Anti-Blogging Kingdom

    Stimey
    28 Jul 2014 | 6:56 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Noise Dysregulation and Running Regulation

    Stimey
    20 Jul 2014 | 8:04 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
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    Disability Scoop

  • Outrage After Special Education Students Forced To Sort Trash

    Sandra Stokley, The Press-Enterprise/MCT
    22 Aug 2014 | 10:17 am
    A school district is apologizing for having students in special education dig through trash for recyclables to earn money as part of a functional skills program.
  • Study Offers Clues To How Autism Develops

    Michelle Diament
    21 Aug 2014 | 9:01 pm
    Kids with autism retain extra brain connections that other children weed out during development, researchers say in a new study that suggests drugs may be able to correct the issue.
  • Support Growing For Autism Behavior Therapy

    Shaun Heasley
    20 Aug 2014 | 9:01 pm
    A new government-backed review finds that there is substantially more evidence for behavior therapy in treating autism than even just a few years ago.
  • Down Syndrome Laws Stir Debate

    Marie McCullough, The Philadelphia Inquirer/MCT
    19 Aug 2014 | 9:13 pm
    A growing number of states are requiring that a Down syndrome diagnosis be accompanied by accurate information about the disorder, but not everyone is pleased by the new mandates.
  • New Sites Added To Autism Treatment Network

    Michelle Diament
    19 Aug 2014 | 11:30 am
    Two more medical centers will soon join a national network designed to provide a one-stop shop for autism care.
 
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    Square 8

  • People Like You

    22 Aug 2014 | 10:46 am
    Next week, we will have a meeting about People Like You. As the meeting leader, I will introduce myself as someone with personal experience because I have a child who is Like You. I will tell you a little of my background, including my involvement in a Major Organization that has stated its goal of removing People Like You from the population. Before the meeting, be sure to read the PowerPoint of my recent presentation, referring to People Like You as having a “multi-system disease.” The disease is the Like You-ness itself. You will also see here that one in fifty people are now Like You,…
  • Code Blue

    3 Apr 2014 | 10:36 am
    How does it feel? You lit it up blue, didn’t you? I told you about Autism Speaks and how their primary goal is a world without people like me in it and how they have degraded and threatened and ignored and sued and plagiarized autistic people and how they thought nothing of saying we are not fully human, that our families are not really living, can never be happy, and we are the reason. I talked to you when I didn’t have the energy or resources to speak. I wrote to you when I had other plans and more constructive work to do. I answered your questions. I was reasonably polite, though I…
  • More about Freaks

    4 May 2012 | 8:49 am
    This is Part 2 of a series on my participation in CUNY's ESA Conferece 2012. Part 1 is here. My initial thought was to explore the meaning of “autism scholar.” What are the credentials? Does blogging count? Even if it does, I haven’t done a lot of that in a while. Do I deserve the label based on my degree or the publication of a single paper? And if so, who is being left out? What can be done to create an atmosphere of learning and shared knowledge that would expand the notion of scholarship beyond academia? What types of knowledge and learning are currently ignored or discounted? I…
  • BADD: Connecting dots

    1 May 2012 | 8:14 am
    Somebody calls autism a tragedy. Somebody kills an autistic person. Somebody doesn’t see how these two events are connected. I try to explain. I try harder. It happens again and again and again and somebody ‘splains it away.The topic here is devaluation. When it becomes commonplace to pair the words autism and tragedy, the pairing seeps deep down into the collective mind. When the puzzle piece becomes the recognized symbol for autism, the message comes over and over that there is something unfinished about the person. Something mysterious that the general public cannot be expected to…
  • Attention

    30 Apr 2012 | 10:59 am
    There’s an old Zen story: A student said to Master Ichu, “Please write for me something of great wisdom.” Master Ichu picked up his brush and wrote one word: “Attention.” The student said, “Is that all?” The master wrote, “Attention. Attention.” The student became irritable. “That doesn’t seem profound or subtle to me.” In response, Master Ichu wrote simply, “Attention. Attention. Attention.” In frustration, the student demanded, “What does this word attention mean?” Master Ichu replied, “Attention means attention.” -Beck, C.J. (1993). Nothing special:…
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    Facing Autism in New Brunswick

  • More Science in Support of ABA Effectiveness for Autistic Children

    H L Doherty
    14 Aug 2014 | 9:46 am
    The US Agency for Healthcare Research & Quality Review Therapies for Children  With Autism Spectrum Disorder: Behavioral Interventions Update has found a dramatic increase  in the scientific evidence backing the effectiveness of intensive behavioral therapy for children affected by autism. The report some 519 pages in length has been reviewed on the Autism Speaks Science Digest site: "We are finding more solid evidence, based on higher quality studies, that these early intensive behavioral interventions can be effective for young children on the autism spectrum, especially…
  • UPDATE: Globe and Mail Health Columnist André Picard Abandons Evidence Based Autism Treatment Principle, Embraces SON-RISE PROGRAM®

    H L Doherty
    9 Aug 2014 | 2:15 pm
    André Picard is a Globe and Mail public health reporter with the Glboe and Mail which is promoting the Son-Rise Program®, a purported autism program with almost no evidence based support of its effectiveness, a program which is not even mentioned in the recent CMAJ (2014) article or the (2007) AAP (reaffirmed 2010) autism reports reviewing the evidence, or lack thereof in support of various autism treatments.  The 2000 MADSEC (Maine) review did expressly assess Son-Rise Program® as described in my initial commentary on this somewhat startling embrace by the Globe and Mail of a weak to…
  • Time To Divide The Heterogeneous DSM-5 Autism Spectrum Disorder and Free the Invisible, Severely Autistic From Oppression

    H L Doherty
    7 Aug 2014 | 8:26 am
    Associated Morbidity and Mortality Health care utilization and costs are substantially higher for children and adolescents with ASDs compared with children without ASDs,89–91 and available data suggest that mortality is increased as well (standardized mortality ratio: 2.4–2.6).92,93 The increased mortality in ASDs is thought to be largely, but not completely, accounted for by the increased mortality associated with mental retardation and epilepsy. The above information from the American Academy of Pediatrics, Management of Children With Autism Spectrum Disorders,  autism policy…
  • Autism Canada, With Some Help From the Globe and Mail, Promotes "Weak Evidence" Based Son-Rise Program®

    H L Doherty
    5 Aug 2014 | 3:57 am
    Autism Canada suggests parents of autistic children should change course and head down a different trail, away from strong evidence based interventions like Applied Behaviour Analysis, toward programs with weak evidence base in support of their effectiveness like the Son-Rise Program®. The Globe and Mail has kindlly provided some support for this adventure with a less than thorough analysis or assessment of  the respective approaches and treatments or the possible outcomes for autistic children involved who might lose valuable therapy time during the critical early intervention period…
  • Mother and Severely Autistic Son Evicted by Fredericton Non-Profit Housing Corporation Will Be Homeless Friday, August 1

    H L Doherty
    29 Jul 2014 | 3:13 am
    "People with Autism Spectrum Disorder may be overly dependent on routines, highly sensitive to changes in their  environment, or intensely focused on inappropriate items. ... the symptoms of people with ASD will fall on a continuum, with some individuals showing mild symptoms and others having much more severe symptoms"American Psychiatric Association, Autism Spectrum Disorder Fact Sheet   [Underlining added for emphasis - HLD]Mistie Delorey is a single mother currently residing in a property of the Fredericton Non-Profit Housing Corporation.  Her son  with severe…
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    ASF Blog

  • New Blog “Inspectrum” About the World of Severe Autism, Hosted by Psychology Today

    autismsciencefoundation
    29 Jul 2014 | 1:06 pm
    Amy Lutz, author of “Each Day I Like It Better: Autism, ECT, and the Treatment of Our Most Impaired Children” and president of the EASI Foundation, introduces her new blog, Inspectrum, hosted by Psychology Today. This is Psychology Today’s first blog focused on the world of severe autism. View the first post from Inspectrum, “To Cage or Not to Cage? That is Not the Question” here.Filed under: autism
  • 24-Hour Livestream Gaming Event Raises over $16,000 for ASF

    autismsciencefoundation
    15 Jul 2014 | 8:41 am
    On July 2, 2014, Rikki Cabler of Sullivan, Indiana hosted the second annual RJC Memorial Charity 24-Hour Livestream. This 24-hour online-gaming event united gamers, or rather “Mechwarriors”, from around the world to show their support for autism. Surpassing its goal of $10,000, this event raised over $16,000 for the Autism Science Foundation. Approximately one thousand gamers entered the No Guts, No Galaxy online community to participate in the RJC Memorial Charity event. Rikki and colleagues encouraged gamers to participate by reminding them, “Nearly every Mechwarrior knows someone…
  • Should We Believe the Centers for Disease Control and Prevention’s Autism Spectrum Disorder Prevalence Estimates?

    autismsciencefoundation
    12 Jun 2014 | 6:44 am
    Autism: The International Journal of Research and Practice has published an important and interesting new editorial by Dr. David Mandell and Dr. Luc Lecavalier that challenges the methods the CDC uses to collect and publish autism prevalence data, now at 1 in 68. While acknowledging that tracking ASD is no easy task, the authors question whether the CDC’s surveillance studies should be used as a basis for estimates of prevalence. Read the full article here. Filed under: autism
  • Costs of Autism Spectrum Disorders in the United Kingdom and the United States

    autismsciencefoundation
    9 Jun 2014 | 1:01 pm
    Having an accurate estimate of the economic cost of autism has many implications for service and system planning. The most recent estimates are almost a decade old and had to rely on many estimates for which there were no good data. Today in JAMA Pediatrics, researchers, including ASF Scientific Advisory Board member Dr. David Mandell, updated older estimates and further expanded our understanding of costs by estimating them for two countries: the United States and the United Kingdom. They also estimated costs separately for children and adults, and for individuals with autism with and…
  • IMFAR 2014: A Refreshing Refocusing

    autismsciencefoundation
    29 May 2014 | 9:02 am
    By Rachel Zamzow The International Meeting for Autism Research (IMFAR) in Atlanta, GA brought together 1,800 scientists, clinicians, sponsors and stakeholders for the purpose of exchanging ideas, fostering collaborations and ultimately examining the current state of autism research. The meeting also represented a refocusing within the field, as keynote speakers and presenters called the scientific community to adjust how major questions in autism research are approached. One call for change involved embracing and addressing the inherent heterogeneity of autism. The notion that hundreds,…
 
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    Countering...

  • Two decades in: What autism means in our house

    K Wombles
    10 Aug 2014 | 8:09 am
    This is Bobby, our oldest, wearing our cat Hammy, as you do, naturally. In December Bobby will turn 25. A quarter of a century old. 1/4 of his way to 100, although fractions are not his strong suit, so he probably, almost certainly, wouldn't be able to describe it in those terms to you.Bobby is autistic and intellectually disabled. That's what the government, both local and national, focuses on. His impairments. His not-able to's. Every year I fill out guardianship papers and SSI paperwork to show how Rick and I have cared for Bobby, how we have managed his time, made sure he socializes and…
  • Drama-free, or nearly so

    K Wombles
    2 Aug 2014 | 8:46 pm
    It's been interesting, this summer, and it's flown by. Two weeks left and back to work I go. I took the summer off from teaching, but was lucky enough to watch the sweetest baby this summer, and the change she's brought has been a godsend. I've been moping a bit the last year or so over the lack of grand babies and the probability that I won't have them unless the girls change their minds some day.Let me tell you that holding a baby and loving on her for hours several days a week is absolutely absorbing and joyous. Moping gone. She has been a wonder at keeping me busy while still leaving time…
  • A Family Tradition

    K Wombles
    24 Jun 2014 | 6:39 am
    Each summer, the kids and I eagerly await the yearly library book sale. We go at least two of the four days, and we spend hours jockeying for position and searching for goodies. And then we come home and lay the books out on the floor and take stock of our booty. This year, we weren't able to lay the goodies out on the floor--six cats and four dogs plus the rearrangement of our living room made that task unwise at best. This is the first year I didn't tally the number of books we got (although we did count the manga Bobby scooped up: 33) and we didn't go back on Sunday for the $6 bag…
  • If only relationships came with a Lego manual...

    K Wombles
    21 Jun 2014 | 8:01 pm
    We've all felt betrayed at some point--been the butt of someone's joke, found out that so-called friends were talking about us behind our back. Middle school and junior high--that was standard operating procedure. But most of us leave our childhood and childish behavior behind. We take with us the scars and the hang-ups, and as adults, we still find ourselves in situations where we feel like we're right back there, and the scars rip open.It's no fun to go through. I'm not sure if it's fun on the other side, to be the one snickering, the one twisting the knife, or if most the time it's…
  • Rhythm and Order

    K Wombles
    1 Jun 2014 | 6:18 pm
    We have been exclusively homeschooling the girls for a full year now--we work through the summer, as well, given that we all have a need for rhythm and order, as well as a love of learning that takes no breaks.Much like I did with the boy, we learn while cuddled on the couch, sitting on the floor, or lying in bed watching documentaries or reading in splendid relaxation--whatever works for them. It's been a good year for them. They have pursued their interests at their pace, worked together, and shared with Bobby, who's been there to assist with material needs. They've been a team,…
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    Different Roads to Learning Blog

  • ASD Brains Show Decrease in Neuronal Autophagy, Underlying Oversensitivity and Deficits in Social Interaction

    Different Roads to Learning
    22 Aug 2014 | 9:15 am
    SOURCE: New York Times article by Pam Belluck A recent study led by David Sulzer at Columbia University Medical Center showed that in children and adolescents with autism, brain tissue within the temporal lobe exhibit a decrease in neuronal autophagy (the brain’s process of clearing out old and degraded cells), which underlies oversensitivity and deficits in social interaction. NY Times: Guomei Tang, PhD and Mark S. Sonders, PhD/Columbia University Medical Center In early development, synapses—connections that allow neurons to communicate with each other—allows for infants to…
  • Tip of the Week: 6 Ways to Get the Most Out of Your Home ABA Program

    Different Roads to Learning
    21 Aug 2014 | 4:30 am
    While an ABA professional should be coming in to organize and run your ABA program, as a parent or guardian, there are some simple things you can do to make the time your child spends in a home session more effective. Several tips are here, but it may be unrealistic for you to follow ALL of these tips. Consider your home environment and family’s needs, then implement the tips that are the most feasible for your situation. Following even one of these tips can make a big difference in your child’s sessions! 1)    Make sure all ABA materials are accessible. It’s important to have a…
  • Federal Ruling Ensures that Insurers Must Cover ABA Therapy

    Different Roads to Learning
    20 Aug 2014 | 7:15 am
    Federal Judge Michael H. Simon in Oregon ruled last week that insurance providers cannot deny coverage of Applied Behavior Analysis (ABA) therapy for children diagnosed on the autism spectrum. The ruling was in response to a lawsuit against Providence Health Plan, an insurance provider that denied coverage of ABA therapy for children diagnosed with autism, while simultaneously granting coverage for children without a diagnosis. ABA therapy, which can cost over $50,000 a year, involves a behavioral interventionist working with a child in the family’s home or in his school to address…
  • Pick of the Week: Prepositions StoryCards—Learn basic prepositions & sequencing through storytelling!

    Different Roads to Learning
    19 Aug 2014 | 5:45 am
    Learn and practice using basic prepositions with creative storytelling with story cards and finger-puppets! You can also save 15%* this week on Prepositions StoryCards by using our promo code PREPOS2 at checkout. This set of 48 beautifully illustrated cards is designed to develop children’s understanding of basic prepositions such as in, on, under, above, below, and around. With only illustrations and no words, Prepositions StoryCards promotes expressive language in storytelling form, and each story is flexible to your student’s standards. An accompanying booklet includes…
  • Obama Signs Autism CARES to Renew Funding for Support

    Different Roads to Learning
    15 Aug 2014 | 5:45 am
    Late last Friday, August 8th, President Obama signed the Autism Collaboration, Accountability, Research, Education and Support Act Autism CARES), a reauthorization of the U.S.’s primary autism legislation, which includes over a billion dollars in federal funding for autism research, services, and support. Autism CARES is a renewal of what was previously called the Combating Autism Act, which was first enacted in 2006. The renewal calls for $260 million in funding per year through 2019 for autism research, prevalence tracking, screening, professional training, and other initiatives. It…
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    Asperger's Diary

  • Disability and the Sharing Economy

    Lynne Soraya
    11 Aug 2014 | 6:59 pm
    I admit, I’ve developed a fascination with what some have called “collaborative consumption,” exemplified in sites like Airbnb, Uber, and Taskrabbit. I see real possibilities in these technologies to make my life easier — but there are aspects of it that trouble me. read more
  • Barriers to Effective Medical Care for Autistic Adults

    Lynne Soraya
    30 Jun 2014 | 7:33 pm
    A recent visit to the hospital underlined for me the challenges of getting medical care when you're on the autism spectrum. read more
  • Discussing Evil: The Problem of “Us” and “Them”

    Lynne Soraya
    9 Jun 2014 | 7:46 pm
    "There's a pattern that has existed in my life for as long as I can remember. Not only do I do it, many other people that I know do it as well. I learn about some type of problem—a robbery, a shooting, a murder...I close my eyes for a moment, and then I brace myself as I await more information. And all the while one thought/prayer/chant/fear is running through my head..."read more
  • When You Can’t Remember & When You Can’t Forget

    Lynne Soraya
    5 May 2014 | 5:54 pm
    Recently, a segment of the news program 60 Minutes profiled individuals (such as actress Marilu Henner) who have HSAM, highly superior autobiographical memory. What I found most interesting in the story was their descriptions of how their condition affected them emotionally and socially. Some of it felt very familiar. read more
  • Using Structure To Help Autistic Kids Build Flexibility

    Lynne Soraya
    31 Mar 2014 | 8:42 am
    A few weeks ago, during a weekly Twitter chat that I host about autism, a mother of an adult on the spectrum mentioned how, when her daughter was a child, structure had been crucial in helping her to learn flexibility. It sounds like an oxymoron, but I found it to be absolutely true in my life as well.read more
 
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    From Inside the Puzzle: Raising a Child with Autism Blog

  • You'll Always Be My Little Girl

    Devon Alley
    20 Aug 2014 | 8:47 am
    I know it sounds crazy, but before K. was born, I was actually a little worried about the love I would have for both of my daughters. When A. was first born, I was absolutely overwhelmed by just how much I loved her I could have never imagined I would...(read more)
  • Underwhelmed by Theatre Camp

    Devon Alley
    14 Aug 2014 | 10:52 am
    Last summer, I enrolled A. in an acting class at a local community college, and she absolutely had a blast. In fact, I would even hypothesize that the experience was part of the reason she became so interested in acting during the 8th grade, which of...(read more)
  • The Trouble with the Zombie Apocalypse

    Devon Alley
    5 Aug 2014 | 6:47 am
    My mother made a very accurate observation about A. recently. She said, if we ever did have the misfortune of experiencing a zombie apocalypse, A. would have a very very difficult time. I'm certain it goes without saying that everyone would have a very...(read more)
  • Steampunk Explorations

    Devon Alley
    29 Jul 2014 | 11:35 am
    A couple of weeks before her little sister was born, we decided to take A. to a Steampunk Carnivale that was in town. We'd never been to one before, but the event was organized to exhibit art, gadgets, and games related to Steampunk culture, and there...(read more)
  • Big Sister

    Devon Alley
    14 Jul 2014 | 12:54 pm
    On the morning of June 20th, 2014, my amazing daughter A. became a big sister as we welcomed my new daughter, K., into the world. The past two weeks have been a pretty incredible journey, and I've been very proud of how well A. has handled all of the...(read more)
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    The Autism News

  • G. C-Crespin : Traitements des troubles du spectre autistique

    The Autism News
    22 Aug 2014 | 6:23 am
    By Editions Eres Cet ouvrage a pour ambition d’apporter sa contribution aux débats actuels autour de la pertinence des différentes modalités de prise en charge des troubles du spectre autistique.Dans le contexte actuel polémique et fortement médiatisé, ce livre apporte un éclairage sur les différents enjeux, divergences et convergences entre les formations d’origine de nos équipes pédopsychiatriques et médico-sociales sur le terrain, qui se réfèrent essentiellement à l’enseignement psychanalytique, et les nouvelles approches issues d’autres champs de la…
  • Intégration des enfants autistes: Genève devra répondre à l’ONU

    The Autism News
    22 Aug 2014 | 6:21 am
    By Eric Lecoultre | Le Courrier SCOLARITÉ • A la suite d’une interpellation d’Autisme Genève, le Comité des droits de l’enfant s’intéresse aux traitements des enfants autistes en Suisse et à Genève. «Il s’agit d’un paradoxe incompréhensible: alors que les personnes autistes souffrent principalement d’un déficit au niveau social, à Genève, ils restent tenus à l’écart du milieu ordinaire.» Remontée, Marie-Jeanne Accietto, présidente d’Autisme Genève, reste cependant combative. A la suite d’un rapport envoyé par son association au Comité des droits de…
  • Un jeune autiste est porté disparu

    The Autism News
    22 Aug 2014 | 6:19 am
    By Le Journal de Montreal Robert Brooks a quitté sa résidence de l’arrondissement Lachine vers 14 h, mardi.Le service de police de Montréal demande l’aide du public pour retrouver un jeune autiste de 18 ans, disparu depuis le 19 août. Robert Brooks a quitté sa résidence de l’arrondissement de Lachine, à Montréal, vers 14 h, mardi dernier, et n’a pas été revu depuis. Le jeune homme souffre du syndrome d’Asperger et il a l’âge mental d’un garçon de 11 ans. Sa famille s’inquiète donc pour sa santé et sa sécurité. Robert Brooks, un…
  • Síntomas y diagnósticos del autismo

    The Autism News
    22 Aug 2014 | 6:16 am
    By Hola Californias (YouTube) El autismo es una enfermedad que representa muchos misterios para la comunidad médica, por ello es importante saber conocer los síntomas y tener un dianostico correcto. Read the full articleRead the full article on a new tab Source: https://www.youtube.com/watch?v=cVSIxXZyDJQ
  • Los niños con autismo tienen exceso de sinapsis en el cerebro

    The Autism News
    22 Aug 2014 | 6:13 am
    By lainformacion.com Los niños y adolescentes con autismo tienen un superávit de sinapsis en el cerebro, un exceso que se debe a la disminución de un proceso de “poda” existente en un cerebro normal durante el desarrollo, según un estudio realizado por neurocientíficos del Centro Médico de la Universidad de Columbia (CUMC, por sus siglas en inglés), en Nueva York, Estados Unidos. Los niños y adolescentes con autismo tienen un superávit de sinapsis en el cerebro, un exceso que se debe a la disminución de un proceso de “poda” existente en un cerebro normal…
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    We Go With Him

  • πάθει μάθος

    Kristina Chew
    18 Aug 2014 | 1:41 pm
    πάθει μάθος "in suffering there is learning" -- Chorus, Agamemnon, Aeschylus
  • The Day After 8.8.14

    Kristina Chew
    9 Aug 2014 | 1:55 pm
    Jim and Charlie are walking to the psychiatrist's office in the photo on a street that reminds me of why I love Berkeley so much....
  • Double Visits (Psychiatrist, County Fair)

    Kristina Chew
    2 Aug 2014 | 4:28 pm
    Jim and I met twice last week, on successive days, with a psychiatrist in Berkeley for Charlie. We needed two sessions to talk about Charlie....
  • A+ Effort

    Kristina Chew
    29 Jul 2014 | 7:33 am
    My family's preferred spectator sport is (American) football (for teams on the East Bay -- silver & black attack and, most of all, Cal Berkeley)...
  • A Different (and Very Excellent) Way to Spend a Saturday Afternoon

    Kristina Chew
    27 Jul 2014 | 9:43 pm
    I was fortunate to be a speaker at the BlogHer 2014 Special Needs Mini-Con session on Saturday afternoon with Shannon and Jen at the San...
 
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    Autism from a Father's Point of View

  • The reason most people can’t become activists

    Stuart Duncan
    21 Aug 2014 | 10:37 am
    When I started my blog over 4  years ago, I was encouraged and even praised for saying the things that people could relate and agree with. It was encouraging and spurred me on to post more.  But it wasn’t long before little dark spots began to seep through the light. More and more people would hate me, for no apparent reason. They’d argue with me about one topic while I was talking about a whole other topic and be totally confused as to how there ever came to be an argument. Over the last year especially, I feel like a boxer in the ring, never getting a timeout in between…
  • A wish for his autistic brother

    Stuart Duncan
    16 Aug 2014 | 8:10 am
    Tyler I would like to introduce you to Tyler. He is currently 6 years old and is as smart as he is adorable. He has an amazing sense of humour and is very clever. He’s also very clumsy, often spilling stuff but feels terrible about it and is quick to clean up and make it right with a warm hug. Recently, a woman asked little Tyler what he would ask for if he had 3 wishes. Now, you would expect that little boys would want all the candy in the world, or all the toys they could dream of or unlimited video game time. That’s what we want for children to wish for, right? That’s the…
  • I refuse to be your saint

    Stuart Duncan
    25 Jul 2014 | 9:08 am
    When I started writing about autism, I came under heavy criticism with each word I wrote from everyone and everywhere. I had to make sure that each word was the right word, each opinion was as least offensive as possible, that each fact was verifiable and that anything I could say about me or my situation was in no way inferred to mean that it’s how it is for anyone else. Since starting my Minecraft server for children with autism (Autcraft), all that changed. Now, I can’t just preface the things I say, I can’t just claim things as my own thoughts, I can’t just choose…
  • 10 things I’ve learned from running a Minecraft server for children with autism

    Stuart Duncan
    16 Jun 2014 | 11:19 am
    It wasn’t that long ago that I registered a domain name, opened up a shiny new Facebook page and Twitter account and announced to the world that I had started a Minecraft server just for children with autism and their families. Now, one year later, I can honestly say that I’ve changed a lot. I’ve changed because I’ve learned a lot. Some of it good, some of it not so much. This is what I’ve learned in 1 year of running a Minecraft server for children with autism. 1. Bullying is far worse than anyone realizes In one year, Autcraft‘s list of approved players…
  • Disability Savings Benefits For Low-Income Families With Special Needs

    Samuel
    30 May 2014 | 5:22 am
    Canada Disability Savings Bonds The Registered Disability Savings Plan (RDSP) is a wonderful savings vehicle for people with prolonged disability. It may attract two key benefits from the government. One is the Canada Disability Savings Grants, a very helpful matching grant to enhance the savings for the person with special needs. However, I’m often being asked the question: “If a low-income family could not afford to make any contribution now, how could they get benefited from having a RDSP account?” This is when the Canada Disability Savings Bonds (CDSB) comes into play.   The…
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    my Cartesian Theatre

  • No Gray Allowed

    mud
    8 Aug 2014 | 8:08 am
    Black and White The world is filled with moments. Each moment leads to the next and each one is a swirl of ambiguity. There is no such thing as a black and white situation in reality. Although you can ignore certain criteria to a point where the choice becomes 50/50 in which it truly is […] The post No Gray Allowed appeared first on my Cartesian Theatre.
  • Life might get interesting…in 3-4 months

    mud
    30 Jul 2014 | 8:14 am
    Two weeks ago I was feeling brave. I decided to apply for a bunch of jobs with cruise companies. I had thought about it before and it was an entertaining fantasy more than anything. The idea was very appealing of cruising around the world, meeting new people at each port, working with smelting pot of […] The post Life might get interesting…in 3-4 months appeared first on my Cartesian Theatre.
  • One mistake after the next…

    mud
    26 Jul 2014 | 2:04 pm
    I’m growing tired of my lack of social awareness. It’s so exhausting to try and keep an eye on the right things. I went for a few drinks last night with some people from work. After having a four beers in the pub, three of us went to meet a friend and to get some […] The post One mistake after the next… appeared first on my Cartesian Theatre.
  • Aspergers & Me

    mud
    16 Jul 2014 | 5:23 am
    Welcome to my Cartesian Theatre. It’s just a blog where I can talk with relative anonymity about my perspective on life. I have Aspergers and I realized it would be nice to have a place to talk about my life, let off steam and just give my two cents on what being a person with […] The post Aspergers & Me appeared first on my Cartesian Theatre.
  • Aspergers: Where I am on the ASD Spectrum

    mud
    16 Jul 2014 | 5:13 am
    Below is a list of symptoms from the Mayo Clinic website that describe certain traits and behaviours observed in people on the ASD spectrum. I’ve decided to go through the list and see what elements I can relate with and to comment on in what way. I’m aware it’s not a definitive list of symptoms […] The post Aspergers: Where I am on the ASD Spectrum appeared first on my Cartesian Theatre.
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