Autism

  • Most Topular Stories

  • Report: Nearly 1 In 3 With Disabilities In Poverty

    Disability Scoop
    Shaun Heasley
    18 Sep 2014 | 9:11 am
    A confluence of factors ranging from prejudice to the complexity of support systems are leaving people with disabilities disproportionately impoverished, a congressional report finds.
  • Autism treatment in infancy 'may prevent further symptoms'

    Autism News From Medical News Today
    9 Sep 2014 | 8:00 am
    A researcher who has developed an autism therapy for infants claims that, by beginning treatment as soon as symptoms appear, full onset of symptoms can be avoided by age 3.
  • Parts of the brain's cortex develop differently in people with schizophrenia

    Autism News From Medical News Today
    18 Sep 2014 | 1:00 am
    Schizophrenia is generally considered to be a disorder of brain development and it shares many risk factors, both genetic and environmental, with other neurodevelopmental disorders such as autism and...
  • When Things Fall Apart

    AGE OF AUTISM
    Age of Autism
    19 Sep 2014 | 2:45 am
    By Kent Heckenlively This article is addressed to those members of the Centers for Disease Control or other branches of our government's research programs who have knowledge of the vaccine-autism connection. It's time to cross the line and come over...
  • Gene linked to increased dendritic spines -- a signpost of autism

    Autism News -- ScienceDaily
    18 Sep 2014 | 9:13 am
    Knocking out the gene NrCAM increases the number of dendritic spines on excitatory pyramidal neurons, researchers have discovered. Other studies have confirmed that the overabundance of dendritic spines allows for too many synaptic connections – a phenomenon strongly linked to autism.
 
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    AGE OF AUTISM

  • When Things Fall Apart

    Age of Autism
    19 Sep 2014 | 2:45 am
    By Kent Heckenlively This article is addressed to those members of the Centers for Disease Control or other branches of our government's research programs who have knowledge of the vaccine-autism connection. It's time to cross the line and come over...
  • Dachel Media Update: #HearThisWell

    Age of Autism
    18 Sep 2014 | 3:00 pm
    (Note due to Internet issues at our printing plant (ahem) the media update looks a bit different today. Please don't ask. 3 kids with autism. No Wifi. Need I say more? K) By Anne Dachel Sept 18, 2014, KHC-NEWS TV:...
  • Manifest Injustice – the End Result of Scientific Fraud

    Age of Autism
    18 Sep 2014 | 2:45 am
    By Louis Conte and Wayne Rohde “I regret that my coauthors and I omitted statistically significant information in our 2004 article published in the journal Pediatrics. The omitted data suggested that African American males who received the MMR vaccine before...
  • Dachel Media Update: Selling Vaccines Like Soap

    Age of Autism
    17 Sep 2014 | 3:00 pm
    By Anne Dachel Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand. Sept 16, 2014, Harvard Gazette: Panelists see communications gap on vaccines Sept...
  • CDC Whistleblower Calls on Congress to Intervene in Autism-Vaccine Research

    Age of Autism
    17 Sep 2014 | 10:51 am
    A new video from the Autism Media Channel has audio of CDC Senior Scientist William Thompson calling on Congress to step in because the CDC is afraid to do the right research and tell the truth: "I have a boss...
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    Autism News -- ScienceDaily

  • Gene linked to increased dendritic spines -- a signpost of autism

    18 Sep 2014 | 9:13 am
    Knocking out the gene NrCAM increases the number of dendritic spines on excitatory pyramidal neurons, researchers have discovered. Other studies have confirmed that the overabundance of dendritic spines allows for too many synaptic connections – a phenomenon strongly linked to autism.
  • Spontaneous mutations in key brain gene are a cause of autism, study concludes

    18 Sep 2014 | 6:10 am
    Spontaneous mutations in the brain gene TBR1 disrupt the function of the encoded protein in children with severe autism. In addition, there is a direct link between TBR1 and FOXP2, a well-known language-related protein, researchers report.
  • Jacobsen syndrome, autism: Link found

    17 Sep 2014 | 11:14 am
    A rare genetic disorder known as Jacobsen syndrome has been linked with autism, according to a recent investigation. In addition to suggesting better treatment options for people with Jacobsen syndrome, the finding also offers more clues into the genetic underpinnings of autism.
  • Size at birth affects risk of adolescent mental health disorders

    17 Sep 2014 | 9:07 am
    Compelling support has been offered for the general evolutionary theory that birth weight and length can partially predict the likelihood of being diagnosed with mental health disorders such as autism and schizophrenia later in life. The study analyzed medical records of 1.75 million Danish births, and subsequent hospital diagnoses for up to 30 years, and adjusted for almost all other known risk factors.
  • Brain development in schizophrenia strays from normal path

    15 Sep 2014 | 5:37 am
    Schizophrenia is generally considered to be a disorder of brain development and it shares many risk factors, both genetic and environmental, with other neurodevelopmental disorders such as autism and intellectual disability. The normal path for brain development is determined by the combined effects of a complex network of genes and a wide range of environmental factors. However, longitudinal brain imaging studies in both healthy and patient populations are required in order to map the disturbances in brain structures as they emerge, researchers say.
 
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    LoriB.me

  • Interview on Laravel News

    Lori
    13 Sep 2014 | 12:43 pm
    I got interviewed by Eric Barnes on Laravel News about the Baltimore Laravel group and other web development related things No related posts.
  • Mother’s Day Wish

    Lori
    11 May 2014 | 6:20 am
    Wish I could take your pain away Wish I could take you out in the sunny day Wish I could make you stronger So you could come home for longer Wish I could hurt instead of you I’d give anything to make that true Wish I could hold you and make things right Wish I was there with you tonight Hope you are having a happy day I’m there with you, in spirit anyway You are the best mom, I know it’s true Can’t wait ’til the next time that I see you No related posts.
  • Favorite Codex Tip Of The Day

    Lori
    22 Apr 2014 | 1:10 pm
    To remove meta boxes created by plugins, 'admin_menu' is fired too early, use 'do_meta_boxes' instead. Such a simple thing, but I wasted at least 15 minutes by using the wrong action hook. The meta box in this case was not created by a plugin, but by the parent theme of a child theme that I am building. No related posts.
  • 2013

    Lori
    31 Dec 2013 | 5:12 pm
    Craziest year ever. Not even sure what to write about it. 2014 looks to be more of the same. So many things. K’s dad. I hope he has a better 2014 than 2013. Same with K and her mom and her sister, L. And me. Too many things have been going on for so long, I can barely remember what is like to be able to think clearly. Tired of being so confused and tired all the time. It is not all bad. There are breaks. Every now and again, K and I get a day, or part of a day, off. I get more breaks than K, but when she is not here, I tend to spend all my time working. This year, our definition of…
  • This is Autism

    Lori
    18 Nov 2013 | 2:16 pm
    This is autism. Sometimes I can’t talk, but I can think. Sometimes I can’t think, but I can feel. Sometimes I don’t fit in. Sometimes I am just like you. This is autism. Thoughts crash. Never-ending attempts to organize the world into separate parts. The lines are blurred. When all things are one, everything fits together. When one thing is many, blurred lines clash, and overlap defies logic. This is autism. An explosion of color and light and sound and texture. Every tiny detail is a universe I can get lost in forever. I try to learn your ways and to teach you mine. We all…
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    Ballastexistenz

  • Deliberately stressing me out is, at this point, assault.

    Mel Baggs
    12 Sep 2014 | 11:08 am
    That’s how I see it anyway.  I don’t mean disagreeing with me.  Anyone who wants to disagree with me can disagree with me as much as they want to.  I’m talking about personal attacks, and you people know who you are by now. I have severe adrenal insufficiency.  For those who don’t know what that means, it means that my body is not making cortisol.  I have to replace all of my cortisol with a steroid called dexamethasone, and I will be on dexamethasone for the rest of my life. Cortisol is one of the hormones that is called a stress hormone, meaning it gets used…
  • Lock and Key

    Mel Baggs
    12 Sep 2014 | 10:42 am
    If I could hand you just one thing It would be a Mason jar Filled with mud Collected at twilight On a rainy day From the ground Underneath a nurse log In a redwood forest In San Mateo County If I possessed this Mason jar It would be my most prized possession I would sleep curled around it Every night, all night long I would keep it always Closed up tight as it could close And I would hand it to you So that you could see all my secrets Because only a trustworthy person Would be able to find my deepest And most beautiful secrets In an old Mason jar full of mud Anyone not fit to find them Would…
  • Almost Alike: A Medical Cautionary Tale

    Mel Baggs
    26 Aug 2014 | 1:24 pm
    Medical bracelet that says “Adrenal Insufficiency”. I’ve been thinking about medical stuff a lot lately, so apologies if my posts tend towards the medical for a little while.It’s what happens when you suddenly realize how lucky you are to be alive, and how close you came to death.My father’s cancer has me thinking about life and death and medical care a lot, too. In my dealings with doctors, I have found that they like the solutions to their problems to be neat and tidy.In particular, they want there to be one diagnosis that explains all the symptoms they’re observing.They…
  • Unfolding

    Mel Baggs
    23 Aug 2014 | 6:42 pm
    Me with Fey sitting on my shoulder. Sometimes I want to unfold The beauty of the world As if it was the most intricate Origami flower That had ever seen the light of day Then I want to wait And wait Until the flower blooms for real Until its velvet black blossoms Tinged with purple edges Grow fuzz that you can run your hand over And I want to hand it to you And watch you rub the fuzz Against your cheek Against your lips Against your nose — The yellow-black stamens tickle And then fold the flower Back into paper And put it in my pocket For safekeeping I would make more of them And write…
  • Gastroparesis Awareness Month: A Day In The Life

    Mel Baggs
    23 Aug 2014 | 3:15 pm
    This is my second post for Gastroparesis Awareness Month.  Read my first post, Tube Love, here.  My first post was a love poem to my feeding tube.  :-)  My second one is a little more serious and a lot longer.  I apologize for the length.  I have trouble reading lengthy posts myself.  But sometimes I’m incapable of summarizing myself, so I have to write posts that are too long for even me to read.  I hope you’ll at least be able to skim through the important parts.  I’ve tried to break up the text with lots of photos, to see if that helps any. A DAY IN THE LIFE My…
 
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    Reports from a Resident Alien

  • What could an autism rights movement give us that we don't have now?

    Lisa D.
    16 Sep 2014 | 1:01 am
    What could an autism rights movement give us that we don't have now?Jobs. We're unemployed at a rate that's high even for people with disabilities, and many of the unemployed are perfectly capable of working. Many of the ones who are working, do so at sheltered workshops often earning less than a dollar an hour.Equal protection from harm. We're several times more likely to become crime victims, and among the people who victimize us the most are the caretakers and family members who are supposed to protect us. We are the victims of sexual abuse, rape, and murder at much higher…
  • Q&A: Informing an Undiagnosed Adult Friend

    Lisa D.
    29 Jul 2014 | 7:54 pm
    Q: Would it be a good idea to inform an adult friend that he most probably has Aspergers/HFA? He is very intelligent, has a well-paid responsible job [that he can do from home totally on his own, usually], has verbal but not behavioural meltdowns; his friendships are odd and shallow and his love-life alternately a mess or non-existent.A: Short answer? Yes. If it's bad enough for you to worry about it, it's probably a good idea to tell him what you've observed. The worst that happens is he gets offended and you apologize; at best, you might have given him a clue that'll help…
  • Thoughts on oxytocin

    Lisa D.
    29 Jul 2014 | 7:33 pm
    Oxytocin is associated with the way NTs "group up". It makes you want to bond with someone and trust them, while rejecting anyone outside your group.So, oxytocin is involved with bonding and trust, and also with prejudice.I think the oxytocin/autism picture is going to be more complex than it seems at first glance. For example, autistic people are known to trust too much--the opposite of what an oxytocin deficiency would imply. And we are securely bonded with our parents, the same as neurotypical children are--meaning that we don't have issues with bonding, either.My personal…
  • Fear of disability

    Lisa D.
    6 Jul 2014 | 11:34 pm
    The fear of disability is an old fear, older than humanity itself.If you are a wild animal, being close by to another animal that is ill or acting oddly can be dangerous. You might catch the illness, or the animal's confusion could attract a predator that might hurt you both.So it is a natural instinct to stay away from those who are ill. It can be seen in humans most significantly in the disgust reaction. If you saw an infected wound, or a sore, or a person with a runny nose and red eyes, you would instinctively back away. That is a survival instinct and it's been around since we had…
  • Bittersweet News

    Lisa D.
    4 Jul 2014 | 9:52 am
    I spend some time each day monitoring the news and maintaining the Autism Memorial site, and lately, things have been unusually quiet. This year so far, 2014, I've added only seven new people, mostly children. That there should be any is bad, but that the new cases are a trickle instead of a flood is somewhat hopeful.Recently, the killers of two autistic teenagers, guardians who were supposed to protect and teach them, were brought to justice.Brandon White, age 15, was killed by his mother's boyfriend, who tied him up and suffocated him. Brandon's killer was sentenced to 90 years,…
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    drive mom crazy

  • The Importance of Being A Role Model for Others

    theamazinj
    30 Aug 2014 | 1:36 pm
    Many people need role models to be able help facilitate and empower their life. A role model we seek out, helps us build who we are by giving us the opportunity to reach for our proudest moments. There are many things we look for in a role model. A role model needs to be a responsible person who knows who they are, how they want to be represented, knows how to take care of their own needs, and knows how to get what they want. It’s important for a role model to be able to set and enforce their boundaries for themselves whether it is a verbal, non-verbal, or a physical boundary we set for…
  • Always Remember It’s Okay to Feel what we Feel as Individuality

    theamazinj
    22 Aug 2014 | 5:23 pm
    Being who I am, I am easily swayed to think one way or the other. Organizations like Autism Speaks and the media know how to easily manipulate people to think their opinion is the right opinion. No opinion is wrong, but we need to be more intuitive as a World Wide theme. Are psychiatrists seeking a cure for autism? Many just say they are seeking to help the individuals live their life better. Helping is good, but no person or group of people can overtly talk against a certain culture to eradicate them. Society needs to give everyone their choice of living their life without suggesting or…
  • A Poem and a Challenge for you from Drive Mom Crazy Blog

    theamazinj
    12 Aug 2014 | 4:22 pm
    Life bleeds, life burns, life scars, life rejoices, life reoccurs, life sulks, life smiles, life rises, life declines, but most importantly, life emerges from the distance as either a rising up to the sky or a rebirth and rejuvenation to live it all over again. Life cries with weeping tears, life misses other people, but life also brings the spirit to all of us to live our life. I know the passing of great people in our lives is saddest when we can’t seem to fathom why? Why them and not US? Why them and not I? Our mission is one and our mission is whole, our mission is guided, and our…
  • 5th Annual Autistic Artistic Carnival is UP!!!!

    theamazinj
    17 Jun 2014 | 9:24 pm
    As you watch and look at all the creative Autistic artists who submitted their talented works in the 5th Annual Autistic Artistic Carnival, I would like to thank all those people and groups that promoted the Carnival for me this year. Thank you to Landon Bryce at ThAutcast at his Facebook page, Thank you Thinking Person’s Guide to Autism and their Facebook page, Thank you to the Artists and Autism Facebook page, and Thank you to the many other individual people who promoted the Carnival for me including Renee Salas. If I missed anyone specifically please let me know and I will add you…
  • Struggles for Control and Supporting Individualities within Caring Communities

    theamazinj
    11 Jun 2014 | 12:42 pm
    Everyone in society likes to be in control. Being in control of another person is not being a community. Everyone loves it because they feel they have power over others. This also creates entitlement, sadly. It means that people tend to love their ego over themselves that they lose sight of who they are. Ego controls not only the person, but can control others within the community as well. If a person loses control over others, they will do harmful things to society and/or themselves. The only control we should have is the control of ourselves while following the laws the community created.
 
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    Left Brain Right Brain

  • Andrew Wakefield loses frivolous defamation lawsuit. To pay court costs.

    Sullivan (Matt Carey)
    19 Sep 2014 | 12:24 pm
    In 2011 the British Medical Journal (BMJ) published a series of articles about Andrew Wakefield and his efforts to promote the idea of the MMR vaccine causing autism. Brian Deer has a list of links on his website: Secrets of the MMR scare. Here are just a few of those links: Piltdown medicine – the missing link between MMR and autism Editorial: Wakefield’s article linking MMR with autism was fraudulent How the case against the MMR vaccine was fixed How the vaccine crisis was meant to make money The Lancet’s two days to bury bad news Nearly a year after those were published,…
  • When a child is killed by a parent the word “but” does not apply

    Sullivan (Matt Carey)
    12 Sep 2014 | 4:24 pm
    Isabelle Stapleton is an autistic teenager. Thankfully we get to say “is” as, you see, her mother tried to kill Isabelle (“Issy” to her friends). The mother took her daughter to a remote area and lit two charcoal grills in her van so that the carbon monoxide would poison them both. It has been reported that at times Isabelle has been violent. Keep in mind most of those reports seem to source back to the mother, the mother who tried to kill her. I’m not trying to downplay Isabelle’s struggles. Some in our community have very great needs. “Dr.
  • Shannon Des Roches Rosa: Changing Conversations: When Parents Murder Disabled Children

    Sullivan (Matt Carey)
    11 Sep 2014 | 11:47 am
    Shannon Rosa is the incredible parent of incredible kids, one of whom is autistic. I could say this from what I’ve read because Ms. Rosa is an excellent writer, but I have also met her and Leo in real life. Ms. Rosa writes at BlogHer as well as The Thinking Person’s Guide to Autism and Squidalicious. A recent BlogHer article she wrote covers a very important topic: how when a disabled person is murdered the conversation usually focuses on the murderer, not the victim Changing Conversations: When Parents Murder Disabled Children Her article starts: Michigan parent Kelli Stapleton…
  • An open letter to the National Whistleblowers Center: David Lewis and the outing of a CDC whistleblower

    Sullivan (Matt Carey)
    11 Sep 2014 | 6:28 am
    Dear National Whistleblowers Center,   I appreciate the work you do but I would like some clarification on recent events.   A gentleman came forward from the CDC to provide information about what he felt were inappropriately withheld results on an old autism study.  This gentleman guided someone outside the CDC to reproduce the result.  These results were published and with that publication a public relations campaign was started.  This is where your board member, David Lewis, comes into the story.  Mr. Lewis can be seen in the video produced.  That video can be found here:…
  • NOVA: Vaccines — Calling the Shots

    Sullivan (Matt Carey)
    9 Sep 2014 | 9:21 am
    The question of vaccine safety comes up a lot in the online autism parent community. The PBS program Nova is taking a look at vaccines and vaccine safety in a show “Calling the Shots”. As they point out, it is OK to question vaccine safety, but that is just the start of the conversation. The program airs tomorrow (September 10) at 9pm. It looks like it will be an excellent program. Here is the webpage for the show complete with a brief sneak preview: Here is a 3 1/2 minute here is a “behind the scenes” look at the show – By Matt Carey
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    Susan's Blog

  • Great News About the ABLE Act!

    Susan Senator
    19 Sep 2014 | 1:43 pm
    This article is from the Disability Scoop, by Michelle Diament. If you are a person with a disability and you have Medicaid benefits, the bipartisan ABLE Act would allow you to save up to $14,000 a year, and up to $100,000 total, rather than the current $2000 total  — and you would not lose your Medicaid benefit. You could save for a home, education, transportation…
  • The Stealth Mommer

    Susan Senator
    19 Sep 2014 | 8:50 am
    I decided to be the Stealth Mommer today. I was so anxious as I drove to Nat’s workplace. But I told myself there was no need to worry, that I would not let him see me. He would not detect a blip in the Shaw’s parking lot forcefield and freak out. And why should he freak out that his mom was shopping there? Well, because it is Nat and me. We are connected by an invisible umbilical cord. That is not meant to infantilize him. It is a statement of fact, that our connection is deep and eternal. I’ve mentioned my plans to haunt him, yes? I do not plan to lie passively in some…
  • Love nat

    Susan Senator
    7 Sep 2014 | 6:31 am
    Today Nat wanted to do some Facebooking. The way we do that is I have him look at the column of all the people who are logged on at the moment — the green dots show him — and then he chooses whom to talk to. He initiates the conversation with “hi.” After the person responds, I help him by reading their response and then repeating it to him. So when they say, “Hi Nat, what are you doing today?”  I then say, “Nat, she wants to know what are you doing today. So tell her, what are you doing?” And whatever he says, I say, “Okay, so tell her…
  • The Heartbreaking Quiet

    Susan Senator
    5 Sep 2014 | 4:42 pm
    Nat comes home every weekend. He is quiet. Sometimes he’s “activated” as his psychopharmacologist says — I hate that. It is such an inhumane way to describe someone. He’s just active. That’s it. Activated — what’s that? It’s referring to how maybe his meds make him? No, his meds are not like that. Besides, he is practically weaned off them. Sometimes Nat is not active at all. Sometimes he just moves from one couch to another. I can’t get away from feeling like this is something that should not be. I remember years ago, a behavioral…
  • Our Journey Into Shared Living

    Susan Senator
    28 Aug 2014 | 2:07 pm
    Here is an essay I wrote for our service provider’s newsletter, about Shared Living for Nat. Enjoy!
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    MOM - Not Otherwise Specified

  • I see the picture you're not posting

    MOM-NOS
    26 Aug 2014 | 2:08 pm
    Hey, you guys? I just want you to know, I get it. I get how hard it is at this time of year when your Facebook feed is full of the shining, happy faces of your friends' kids on the first day of school. I know how much it stings.  I know the pain, and then the guilt you feel that someone else's joy should cause you pain, and then the loneliness you feel because, it seems, nobody else really seems
  • 1 in 68

    MOM-NOS
    2 Apr 2014 | 10:26 am
    Depending on whom you ask, today is World Autism Awareness Day, World Autism Acceptance Day,  or Everyone Matters Day.  From my perspective, awareness, acceptance, and mattering are all vitally important, so I say bring 'em on. Last week, in the lead-up to these events and to the month of April, which is Autism Awareness Month, the CDC released the latest autism prevalence rates - now 1 in 68
  • Christmas, present

    MOM-NOS
    21 Dec 2013 | 12:37 pm
    I have a new piece up at The Huffington Post, called Zen and the Art of Alzheimer's.  As I said when I posted the link on the MOM-NOS Facebook page, I rarely know what to get my father for Christmas, but this year I hope I can give him the perfect present. Happy holidays, friends, from Bud and me.
  • This is autism

    MOM-NOS
    18 Nov 2013 | 4:29 pm
    There's a flashblog going on today on blogs across the autism blogosphere in response to the most recent press release from Autism Speaks' co-founder Suzanne Wright, in which she writes, "These families are not living. They are existing. Breathing – yes.  Eating – yes. Sleeping- maybe.  Working- most definitely - 24/7. This is autism.  Life is lived moment-to-moment.  In anticipation of the
  • Presume competence

    MOM-NOS
    6 Nov 2013 | 10:13 am
    There has been a bit of back-and-forth in the comment section of my last post.  The gist of it goes something like this: "Hey, look at this great thing Bud did." "Actually, that might just be a deficit masquerading as a strength." "Really, I gotta say, I think it's a strength." "Perhaps.  On the other hand, it could just be a well-developed deficit." I'm not going to volley back, because
 
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    Life With Joey

  • The Elephant in Room

    Joeymom
    15 Sep 2014 | 5:43 am
    I did a little experiment this week. I commented on a story about Kelli Stapleton. For those who don't follow news, Kelli Stapleton attempted a murder-suicide of herself and her 14-year-old autistic daughter, Issy. She was well-known in the parenting circles, and a friend to many people I know. Like many such stories, this one has gathered a very specific rhetoric, the "for Kelli" crowd and the "anti Kelli" crowd. That rhetoric has become so strong and loud, it has drowned out any other ideas or voices, and everyone is expected to pick a side and then be torn to shreds by the other.It isn't a…
  • Empathy

    Joeymom
    12 Sep 2014 | 8:28 pm
    We have two new fur babies. Joey has been so excited about getting his very own cat, especially in the throes of still missing Luna. We finally brought them home.This is Joey's kitty, Lily. She looks suspiciously like Luna.This is Andy's kitty, Marshmallow. She is totally not shy. At. All. And she approves of the changes in her fortunes. At long last, we found our kitties, and Joey was looking forward to seeing her home safe when he came home from school. Andy and I picked them up from the shelter, and took them directly to our vet (do not pass Go, do not collect $200), and had our vet…
  • Week One of the Big Changes: Success!

    Joeymom
    6 Sep 2014 | 7:49 pm
    I have to say, one week in... well, half a week, since Joey started school on Wednesday, so that's also when Andy and I started official lessons... and so far, so awesome.The first week of school for Joey the last few years has always been... well, a disaster, really. This year? His teachers allow hugs. They help him, they guide him, they make it clear what their expectations are and provide him tools to meet them. They are busy teaching him those tools right now. He gets the attention he craves, and his fellow student thinks he's the bee's knees, and doesn't tease or otherwise make fun of…
  • Big Changes

    Joeymom
    24 Aug 2014 | 7:33 pm
    Good news: Joey's school is officially licensed! He is set to start and is in the transition camp now! Can I get a "woo-hoo"?Joey is going to Stafford Academy, and we are hoping for it to be as awesome, wonderful, supportive, and miraculous as he needs it to be. We have lost a lot of time, and there has been a lot of damage from leaving him in schools that just would not do what he needed them to do: provide an autism-specific classroom with trained autism professionals, and pull out to the mainstream classrooms as he was able to deal with those broader environments. They are doing it right…
  • The Wild Ride

    Joeymom
    7 Aug 2014 | 9:46 pm
    It's been a weird summer.Remember back once upon a time when we were going spend our summer in Baltimore getting Joey all this wonderful help and therapy at Kennedy Krieger? It sounded so awesome. 8-10 weeks, and they would help him. We'd get some of the damage from the anxiety and depression mitigated. We were scrambling to figure out how to pay for it, where to stay, how to make it work. We sent back paperwork and held our breath.We got the call back much later than we were expecting- mid-June, when we were under the impression from the doctor that he was keen for us to get started ASAP.
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    I Speak of Dreams

  • Ooops, DDB-Chicago, You Hired The Wrong Actor to Represent State Farm

    Liz
    19 Sep 2014 | 2:27 pm
    Click to embiggen. Image source: https://twitter.com/sciencebabe/status/512965458912231425/photo/1 For non-USians, State Farm® is a large insurance company offering various lines of insurance -- automotive, homeowner's, and so on.  They even offer various lines of health insurance.  Recently, State Farm® launched a new ad, Steve's Kid, featuring the actor Rob Schneider (in his Saturday Night Live character 'Richard Lamer" or "the #Richmeister"), promoting State Farm's "Discount Doublecheck™ " promotion.  Here is a…
  • International Talk like a Pirate Day 2014

    Liz
    19 Sep 2014 | 6:48 am
    International Talk Like a Pirate Day See if pirates ruled the world, we'd only need one letter. See all the images for "If Pirates Ruled the World" at Worth 1000 It wouldn't take long to learn how to type, either. Cory, who wishes he were a pirate told me about it. This year, ToddW's gang defeats the wee creepies.  The Book o' Face has more for yez.   Some songs for yez ears, mayhap, to while  the long watch along betimes.
  • One Birmingham Sunday: September 15, 1963

    Liz
    15 Sep 2014 | 12:58 pm
    Via For Harriet on Facebook On September 15, 1963 a bomb exploded before Sunday morning services at the 16th Street Baptist Church in Birmingham, Alabama–a church with a predominantly black congregation that served as a meeting place for civil rights leaders. Four young girls, Carole Robertson, Addie Mae Collins, Cynthia Wesley and Denise McNair, were killed and many other people injured; outrage over the incident and the violent clash between protesters and police that followed helped draw national attention to the hard-fought, often dangerous struggle for civil rights for African…
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    Adventures in Autism

  • My Op Ed in the Portland Press Herald on the Real Reasons for the Growing Vaccine Refusal

    Ginger Taylor
    2 Sep 2014 | 10:29 am
    So in July, I was interviewd for an hour for an article on vaccine refusal in the Portland Press Herald.  I long story short, they did a hatchet job on me.  So I wrote an op ed response, and they actually printed it. Please visit and comment. "Maine Voices: Breakdown in accountability at heart of decline in vaccinationsOpposition to the current U.S. vaccination program is based on its failures, denial and bad law and policy.BY GINGER TAYLORBRUNSWICK — I was interviewed for an Aug. 9 front-page article by Joe Lawlor, titled “More Maine families are skipping or delaying childhood…
  • Invisible Threat: Ugh.

    Ginger Taylor
    24 Jul 2014 | 12:24 am
    I've been gone for a long time doing Health Choice and media work... please forgive... blah blah blah...So tonight I was down in Portland for some business meetings, and after the first Scott and I walked two blocks to Starbucks for a coffee.  I was at the table when he brought my drink and dropped a piece of paper in front of me.  "Look what I found on their bulletin board."It was a flier for the new "hit" vaccine propaganda piece, "Invisible Threat."  (Since when to people who are in a film, review the film? Oh wait... HHS owns patents on the vaccines it licenses and…
  • I Refuse To Be Enlisted Into The "Mommy Wars"

    Ginger Taylor
    17 Apr 2014 | 10:34 am
    So the attack on vaccine resistant parents in the media this "autism awareness month" has been nothing like any of us has ever seen before.  Even Paul Offit has taken a departure from his oh so laid back and wise doctor act to get nasty on us.  Pharma needs not only for parents to be ok with the current recommended schedule, but to be open to the open ended vaccine schedule that will include the 200 or so vaccines they have in their development pipeline.  They do not want to come to terms with the fact that their market has reached it saturation point and it is all downhill…
  • Annual Birthday Fundraiser

    Ginger Taylor
    30 Jan 2014 | 8:20 pm
    As today is my 29th... I mean 34th birthday, I will celebrate me by focusing on me. If my work has been of service to you this past year, I hope you will consider putting a little birthday gift in the tip jar.Thank you for being my community and my support.  
  • New Years To Do: Opt Out of Your State Vaccine Database

    Ginger Taylor
    29 Dec 2013 | 8:30 pm
    Today the Washington Post printed a story entitled, "2013 is the year that proved your ‘paranoid’ friend right."  So now that we are all on the same page that the US government is completely run amok, is all up in in everyone's business, and that those of us who trusted that it would look out for our own good (rather than the corporate $$$ interests of their donors or their own profit and power) were naive babies... and that none of the three branches give a crap that you don't like what they are doing... let's look forward to how to avoid the next thing that they are gonna do to…
 
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    Kim Stagliano

  • Kicking Zumba Fundraiser

    Kim Rossi Stagliano
    12 Sep 2014 | 5:20 am
    We had a great time and raised a generous amount of money at our Mantone Family fundraiser last Sunday, 9/7. Both parents are battling cancer and they have 12 year old twin girls, one with special needs. Thank you to Heatherly Law and her Zumba team for making the event a success. 
  • A Day at the Beach Weapons Style with Hanko Ryu Martial Arts

    Kim Rossi Stagliano
    17 Aug 2014 | 5:55 am
    We trained in Twin Brooks Park on Saturday. The sand made for a tough workout but loads of fun. This is Traditional Okinawan kobudo. And you thought my only weapon was my tongue..... Join us at Hanko Ryu Martial Arts, in Trumbull CT to start training in Karate, Kickboxing and/or Kobudo. Osu!SaiNunchakuSai with the guys!Tonqua vs. BoSaiSai kataBlockingGedan (low) blockNunchaku, Tonquia, Bo, and Sai
  • Blueberries!

    Kim Rossi Stagliano
    20 Jul 2014 | 8:05 am
  • Momjas

    Kim Rossi Stagliano
    8 Jul 2014 | 3:24 am
    Training every week with Lisa and Maria at Hanko Ryu Martial Arts is a joy. Maria and I tested last month. Lisa tests soon for her next black belt kyu. Osu!
  • Karate Girl Street Fight: Why Women Should Train

    Kim Rossi Stagliano
    15 Jun 2014 | 10:47 am
    This video shows actual technique we learn in the dojo in traditional Karate - in "bunkai" or application. It's choreographed, of course, but conveys the message that Karate is about self-defense and having an arsenal of ideas to fall back on in case of emergency.  Few of us will ever be in a street fight with 5 or more attackers. But any of us can face an attack coming out of the grocery store, the mall or even in our own homes. Get your daughters into a dojo. Join yourself. I was 47 when I first put on a gi.  You don't have to be fit or thin to start - you just have to have a…
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    Squidalicious

  • Amplify This: "Don't Murder Your Autistic Kids"

    Shannon Des Roches Rosa
    13 Sep 2014 | 6:30 am
    When we hear that a mother has tried to murder her own child, most people howl in agreement that the mother deserves to be prosecuted to the fullest extent of the law. Most would be angry if that mother successfully plea bargained her attempted murder charge down to child abuse. Most people would not "understand" mothers abusing or murdering their kids.Autistic, Not Less Valuable[image description: Leo in foreground, Golden Gate Bridge & camera-wieldingtourists in background]Most people would feel that way, unless they learn that the child in question is autistic or otherwise disabled.
  • So What if God Is Change; Change Is Hard.

    Shannon Des Roches Rosa
    4 Sep 2014 | 12:20 pm
    Anything different is bad. That is Leo's mantra. It's also mine. And we have had a lot of change lately. None of it is truly awful, but some of it sucks, and some of it is just different, and all of it means adjusting. Those of us who are happiest wallowing in our ruts simply prefer not to emerge unless we have to, like contented little piggies in nice squishy mud. Lots of "have to" just now. Which means I've got a lot of "Oh, bother," after my role model Winnie the Pooh. Much of that "have to" is not really bloggable, but here's what is (what I can recall right now, anyhow).Mali has started…
  • Blogust: When Your Comments Save Lives

    Shannon Des Roches Rosa
    1 Aug 2014 | 10:08 am
    August = Blogust. And Blogust is the wonderful time of year when the UN Foundation's Shot@Life taps members of the social media milieu and Blogosphere, to use our synergistic connectivity to save lives: "Every time you comment on or share the Blogust posts, Walgreens will help provide a life-saving vaccine for children around the world who need them most."That means that every comment -- on this post, or on one of the Blogust14 posts that will be rolling out during this month of August -- is literally a chance to save a life, to get a vaccine to a child who otherwise would not get have that…
  • Autism, Staycations, Patience, and Decompression

    Shannon Des Roches Rosa
    31 Jul 2014 | 6:41 pm
    Image description: a beige-skinnedboy with brown hair, seen from behind,at a distance, swimming in a poolsurrounded by a beige railing & deckwith trees and blue sky behind and aboveLeo and I have had a lot of together time this week. It's a bit of a staycation. The rest of our immediate family is in Canada, ziplining over 500 ft chasms and watching firework festivals. My Dude and I stayed here because it's the last week of his summer school, and One Does Not Simply Miss ESY. Though we feel the absence of the rest of our crew, I'm exhausted and grateful for the break. I think Leo also…
  • I Like Smart Smut And I Cannot Lie

    Shannon Des Roches Rosa
    31 Jul 2014 | 1:21 am
    I do love intelligent smut. A smart smutty novel is one of my favorite ways to decompress (and mental decompressing is key right now, after the wonderful whirlwind that was BlogHer14).Unfortunately, good smut can be hard to find. The trashy novels in my grandmother's basement blew my naive teenage mind, but in hindsight were indistinguishable Olden Tymes ravishment fantasies (a.k.a. rose-tinted rape), combined with breathless and statistically improbable odes to schlongs of unusual size. Ew to that. Adult me wants well-written smut, ideally of a fantasy, sci-fi, or historical bent; with…
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    Karianna

  • tempus fugit

    11 Sep 2014 | 10:58 am
    We're wrapping up the third week of school, the first full week. Only three weeks, though it feels as though I've lived three months during that time. On the second day of school, my physical therapist found a "burn" on my leg. I didn't have time to get it checked out right then, though, because I received a call from the middle school that my son was vomiting and wanted to come home. One thing led to another, and he ended up in emergency surgery for testicular torsion. (Look that up if you... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • The Final Selfie with my Cat

    20 Aug 2014 | 9:19 pm
    This is my final selfie (or maybe an "us-ie") with my cat, Becca. I'm smiling because although I'm saying "goodbye," I'm also telling her exactly why she was such a kick-ass cat. I'm thanking her for over 16 years of love. I'm recognizing that she was uncharacteristically tender with me post spinal-surgery, knowing that I wasn't up to her usual exuberant jumps on my lap or shoulder. I whisper that she's been the best cat ever, because she was. She hated pretty much everyone, but she loved me.... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • Speak Up!

    14 Aug 2014 | 12:00 pm
    When I go places with my parents, inevitably one of them has a complaint: whether a food order is slightly incorrect, or there is some sort of perceived safety issue in a venue. It isn't that they are negative people --they really aren't-- but rather that they want mistakes corrected. They speak up. I often cower a bit, OMG Dad don't... because I know it is impossible to be perfect. But, I also know I take things personally. Still, with the Golden Rule and all, I figure other people probably... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • Suicide, Part II

    13 Aug 2014 | 10:00 am
    I wrote a bit about suicide the other day. But I realize I have more to say. Yes, I linked up my posts on two former classmates who have died via suicide. (Plus I remember now that the younger brother of one of my friends took his own life, too.) And I mentioned that a friend's father died. I love (in a tragic, heart-breakingly poetic-but-accurate aspect) the way she puts it: "[He] set his soul free from his body." Indeed, that is what suicide is: freedom from unmanageable, unbearable pain.... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • Goodbye Camp G! (But Hello Summer Quest!)

    12 Aug 2014 | 7:00 pm
    My email box is filled with school registration details for my two sons: one set from elementary school, one set from middle school. Amazingly, next year those both ramp up to middle school and high school, since both are in their final years of their respective schools. Everything is going so fast: it is amazing that summer is nearly gone. And next summer, neither of my boys will be eligible for Camp Galileo. I'm shocked at how quickly our time with Camp G passed. It has without a doubt... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
 
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    Stimeyland

  • Captain Clumsy and the 21K Race

    Stimey
    17 Sep 2014 | 6:10 am
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • I Will Celebrate My Triumphant and Exhausted Return From Disney World With a Gerbil Video

    Stimey
    13 Sep 2014 | 2:03 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Guess What Time It Is?

    Stimey
    3 Sep 2014 | 7:03 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Electric Fun

    Stimey
    3 Sep 2014 | 5:25 am
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Dipshit Friday: The Key Edition

    Stimey
    29 Aug 2014 | 8:01 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
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    Disability Scoop

  • Deal Reached On Tax-Free Disability Savings Accounts

    Michelle Diament
    19 Sep 2014 | 11:54 am
    Federal lawmakers say they've reached a deal to move forward on a bill that would establish a new way for people with disabilities to save money without jeopardizing their government benefits.
  • For Adults With Autism, ABA Coverage Scarce

    Michelle Andrews, Kaiser Health News
    19 Sep 2014 | 11:11 am
    As insurance coverage for applied behavioral analysis becomes increasingly available for children, options remain limited for adults on the spectrum.
  • Report: Nearly 1 In 3 With Disabilities In Poverty

    Shaun Heasley
    18 Sep 2014 | 9:11 am
    A confluence of factors ranging from prejudice to the complexity of support systems are leaving people with disabilities disproportionately impoverished, a congressional report finds.
  • Vote On UN Disability Treaty Blocked

    Michelle Diament
    17 Sep 2014 | 11:16 am
    An effort in the U.S. Senate to bring a vote on an international disability rights treaty has been squashed.
  • States Move Forward With Expanded ABA Coverage

    Michelle Diament
    16 Sep 2014 | 12:58 pm
    Months after federal officials ordered them to do so, states are starting to include coverage of treatments like ABA for kids with autism within their Medicaid programs.
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    Facing Autism in New Brunswick

  • Autism and the Liberal Party 2014 Election Platform: Nothing on Autism - No Adult Autism Care Centre

    H L Doherty
    8 Sep 2014 | 12:29 pm
    The Liberal platform is published and there are no commitments to address autism issues, no mention of autism disorders.  In particular there is no mention of any intention to change the current system of adult autism care from generic group homes lacking autism trained staff, hospital wards, the Regional (in fact the only) tertiary care psychiatric hospital in New Brunswick and export out of province and country to Spurwink (Maine) facility.  In the long run the continued neglect of the needs of severely autistic adults in NB will continue to  reduce the their quality of life…
  • Autism and the PC Election 2014 Platform: No Adult Autism Care, More Harmful Forced Classroom Inclusion of Severely Autistic Students

    H L Doherty
    5 Sep 2014 | 2:15 pm
    The PC Plan for New Brunswick does not include any provisions that will help severely autistic students or adults, the same people who have been harmed by PC policies during the Alward-Porter-Carr administration.  In fact the the Platform brags about the Gordon Porter-Jody Carr harmful, discriminatory, inclusion remake and is silent on the topic of adult autism care. Gordon Porter was a member of the Alward government transition team.  He has relentlessly pushed his own  non evidence based inclusion philosophy on all NB students since the 1970's and he has collected many…
  • Autism and the NDP 2014 Election Platform: A Centre for Adult Autism Care

    H L Doherty
    4 Sep 2014 | 12:43 pm
    NDP Leader Dominic Cardy at the NDP 2014 Election Platform launch today at their campaign HQ's on Regent St.   As with each political party platform I immediately search out autism specific commitments or comments and the NDP have made a specific comment in a very neglected area in NB - adult autism care:PREVENTATIVE CARE:We will establish a provincial centre for the care of adults with autism.A provincial centre for the care of adults with autism would fill a huge gap in our autism services in New Brunswick.  At present adults with autism at best can hope for care in a Level 4…
  • Autism and the Green Party New Brunswick 2014 Election Platform

    H L Doherty
    3 Sep 2014 | 3:50 pm
    I was pleased to see some autism issues addressed in the Green Party 2014 election platform.  Much as I like the Green Party, particularly leader David Coon, in standing up for NB's environment, I didn't expect anything relevant to my central "issue" ... autism.  I was wrong. Although there is not a lot of details on how specific changes would be put in place the statements of principle are encouraging:ACCESSING HEALTH CAREEstablish regional residential facilities for autistic adults who are unable to care for themselves.Regional residential facilities for autistic adults would be a…
  • Severely Autistic NB Youths & Adults Need Special Treatment & Residential Care After Age 16

    H L Doherty
    31 Aug 2014 | 8:22 am
    From: luigi.roccaDate: 07/08/05 09:32:22To: Ron.Harris@rvh.nb.ca; Robert.Lecky@rvh.nb.ca; sheila.bulmer@gnb.ca; mbmurphy; elizabeth.weir@gnb.ca; kentlib@nbnet.nb.ca; premier@gnb.ca; elvy.robichaud@gnb.ca; tony.huntjens@gnb.ca; news@timestranscript.com; letters@dailygleaner.com;newsroom@nbpub.com; cbcradionews@fredericton.cbc.cainfoam; Johnw.BETTS@gnb.caCc: abowie2408; dav.lin; deversandy; hammelhome; hchamb; lbrry; nancybl; yolandepSubject: Stan Cassidy Centre for Rehabilitation Dear Minister Robichaud: It has come to our attention that officials at the Stan Cassidy Centre for…
 
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    ASF Blog

  • Can “Sticky Mittens” Jump-Start a Baby’s Brain?

    autismsciencefoundation
    18 Sep 2014 | 8:21 am
    by Klaus Libertus, PhD Research Associate at the Learning Research and Development Center University of Pittsburgh In a study published this week in the journal Frontiers in Psychology we were able to encourage grasping behaviors in three-month-old infants with a family history of Autism Spectrum Disorders (ASDs). This was done by using “sticky mittens” – infant mittens with Velcro attached, to be used with toys that also have Velcro attached. While wearing these mittens, a baby can swipe at a toy and the toy will stick to the mitten – giving the child the experience…
  • New Blog “Inspectrum” About the World of Severe Autism, Hosted by Psychology Today

    autismsciencefoundation
    29 Jul 2014 | 1:06 pm
    Amy Lutz, author of “Each Day I Like It Better: Autism, ECT, and the Treatment of Our Most Impaired Children” and president of the EASI Foundation, introduces her new blog, Inspectrum, hosted by Psychology Today. This is Psychology Today’s first blog focused on the world of severe autism. View the first post from Inspectrum, “To Cage or Not to Cage? That is Not the Question” here.Filed under: autism
  • 24-Hour Livestream Gaming Event Raises over $16,000 for ASF

    autismsciencefoundation
    15 Jul 2014 | 8:41 am
    On July 2, 2014, Rikki Cabler of Sullivan, Indiana hosted the second annual RJC Memorial Charity 24-Hour Livestream. This 24-hour online-gaming event united gamers, or rather “Mechwarriors”, from around the world to show their support for autism. Surpassing its goal of $10,000, this event raised over $16,000 for the Autism Science Foundation. Approximately one thousand gamers entered the No Guts, No Galaxy online community to participate in the RJC Memorial Charity event. Rikki and colleagues encouraged gamers to participate by reminding them, “Nearly every Mechwarrior knows someone…
  • Should We Believe the Centers for Disease Control and Prevention’s Autism Spectrum Disorder Prevalence Estimates?

    autismsciencefoundation
    12 Jun 2014 | 6:44 am
    Autism: The International Journal of Research and Practice has published an important and interesting new editorial by Dr. David Mandell and Dr. Luc Lecavalier that challenges the methods the CDC uses to collect and publish autism prevalence data, now at 1 in 68. While acknowledging that tracking ASD is no easy task, the authors question whether the CDC’s surveillance studies should be used as a basis for estimates of prevalence. Read the full article here. Filed under: autism
  • Costs of Autism Spectrum Disorders in the United Kingdom and the United States

    autismsciencefoundation
    9 Jun 2014 | 1:01 pm
    Having an accurate estimate of the economic cost of autism has many implications for service and system planning. The most recent estimates are almost a decade old and had to rely on many estimates for which there were no good data. Today in JAMA Pediatrics, researchers, including ASF Scientific Advisory Board member Dr. David Mandell, updated older estimates and further expanded our understanding of costs by estimating them for two countries: the United States and the United Kingdom. They also estimated costs separately for children and adults, and for individuals with autism with and…
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    Autism Jabberwocky

  • Research Shenanigans At The CDC

    M.J.
    13 Sep 2014 | 7:10 am
    Unless you have been hiding under a rock for the past couple of weeks, you might have noticed a little story going around about a "CDC Whistle-blower" or whatever you want to call it.  Most of you probably know the story so I am not going to talk about the study, counter study, recording of secret informants, or whatever the current drama is surrounding the story.  Plenty of other people have done that, and badly I might add (no, it IS a doctored picture of cell phone text message screen and I should know because I am a doctor).Nor am I going to add yet another opinion to the ever…
  • Autism Rising : The Emperor's New Clothes

    M.J.
    30 Mar 2014 | 6:42 am
    It's that time of the year again - winter is finally starting to fade, spring is in the air, and Autism Awareness month is right around the corner.  Which means that it is time to play one of my favorite games - rationalize about the latest massive increase in the rate of autism.In case you haven't heard, the CDC just this week released the latest in its series of reports on autism prevalence.  This new report which looked at children who were eight in 2010 found that overall 1 in 68 children had a form of autism - 1 in 42 boys and 1 in 189 girls.   Since a picture is worth a…
  • ASAN on Non-Verbal Autism

    M.J.
    22 Dec 2013 | 8:17 am
    Just in time for the holidays, the Autistic Self Advocacy Network (ASAN) has put out a new video promoting its views of autism.  The video is pretty much in line with most of what they have said in the past but there is one very prominent theme that I wanted to talk about. So, first thing first, if you haven’t seen the video, go watch it here.  Did you notice how non-verbal autism was portrayed?  If you missed it, here are a few lines from the video about what it means to be non-verbal - People know what "nonverbal" means: I can't speak, so I use my computer to communicate.
  • A Tale of Two Communities

    M.J.
    19 Nov 2013 | 3:47 pm
    An inconsistency concerning Autism Speaks has been bothering me for a while now and, in light of the controversy surrounding the organization in the past week, I thought I might take this opportunity to write about it.There is this idea that I have seen repeated in numerous places online that the "autism community" isn't all that fond of Autism Speaks.  Whether it is the "pro-vaccine choice" community, the "anti-cure" "just a difference" groups, the "independents" in between, or whatever group you want to talk about, everyone seems to say that they either don't like or are ambivalent…
  • Missing the Point

    M.J.
    16 Nov 2013 | 9:17 am
    A couple of days ago an article written by Suzanne Wright appeared on the Autism Speaks blog entitled "Autism Speaks to Washington - A Call for Action".  The point of the article was that autism is not only a growing problem but one that needs a national response to solve.Parts of the autism community have been less than amused by the article.  They are currently in the middle of having a collective conniption and declared that Autism Speaks is the new incarnation of the (insert your particular incarnation of ultimate evil here). While it is possible that Autism Speaks should have…
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    Countering...

  • Break, then--that's what crazy glue is for

    K Wombles
    6 Sep 2014 | 8:33 pm
    Several years ago, I was told by my therapist, who was trying to be helpful, that if I hadn't broken yet, I wouldn't in the future, in response to my concern that I would face the same mental health issues some family members had, that I would, in fact, at some point break.That's stuck with me, but not because it made me feel better about the several challenges I was facing, but because it made me feel pressured to continue to be the one that kept on going, didn't make major foul ups, to keep being the responsible one.That one sentence from my well-meaning therapist, meant to…
  • Mixed, with a chance of serious storms

    K Wombles
    4 Sep 2014 | 7:22 am
    Not the weather, me.Not the weather. ME.I hate admitting to struggling.I hate feeling the storm brewing in me, the internal tornado...the sense that I'm about to fly off, scatter into pieces, shatter beyond repair.Even more, I hate that to a degree I can contain that tornado so that most people are unaware that anything is amiss.I feel like it's unfair, not to me, necessarily, but to those around me, so I bottle it up, let it trickle out in the purchase of things I don't need, animals I shouldn't take in, books I may never read, shoes I may never wear.And so on.The biggest issue is the…
  • Two decades in: What autism means in our house

    K Wombles
    10 Aug 2014 | 8:09 am
    This is Bobby, our oldest, wearing our cat Hammy, as you do, naturally. In December Bobby will turn 25. A quarter of a century old. 1/4 of his way to 100, although fractions are not his strong suit, so he probably, almost certainly, wouldn't be able to describe it in those terms to you.Bobby is autistic and intellectually disabled. That's what the government, both local and national, focuses on. His impairments. His not-able to's. Every year I fill out guardianship papers and SSI paperwork to show how Rick and I have cared for Bobby, how we have managed his time, made sure he socializes and…
  • Drama-free, or nearly so

    K Wombles
    2 Aug 2014 | 8:46 pm
    It's been interesting, this summer, and it's flown by. Two weeks left and back to work I go. I took the summer off from teaching, but was lucky enough to watch the sweetest baby this summer, and the change she's brought has been a godsend. I've been moping a bit the last year or so over the lack of grand babies and the probability that I won't have them unless the girls change their minds some day.Let me tell you that holding a baby and loving on her for hours several days a week is absolutely absorbing and joyous. Moping gone. She has been a wonder at keeping me busy while still leaving time…
  • A Family Tradition

    K Wombles
    24 Jun 2014 | 6:39 am
    Each summer, the kids and I eagerly await the yearly library book sale. We go at least two of the four days, and we spend hours jockeying for position and searching for goodies. And then we come home and lay the books out on the floor and take stock of our booty. This year, we weren't able to lay the goodies out on the floor--six cats and four dogs plus the rearrangement of our living room made that task unwise at best. This is the first year I didn't tally the number of books we got (although we did count the manga Bobby scooped up: 33) and we didn't go back on Sunday for the $6 bag…
 
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    Different Roads to Learning Blog

  • Do-It-Yourself Fall Crafts: Paper Plate Owls and Apple Sensory Cards

    Different Roads to Learning
    19 Sep 2014 | 4:30 am
    Crisp sunny days and cool nights mean that Fall is really on its way. The changing weather is a great opportunity to work on some seasonal activities with your kids. We found two wonderful little do-it-yourself fall craft projects for parents and teachers to engage in with their kids this season. Dr. Carrie Wells over at Huppie Mama came up with an adorable Paper Plate Owl project that requires no more than just a few easy-to-find materials: White paper plates Scraps of construction paper Glue Markers, crayons, or paint …and of course, some creativity! Click here for the full DIY Paper…
  • Tip of the Week: Altering the Teaching Environment to Address Problem Behaviors

    Different Roads to Learning
    18 Sep 2014 | 7:23 am
    A few years ago, I went in to observe an ABA therapist I was supervising. She was working with a ten-year-old girl with Aspergers. One of her goals was to increase eye contact during conversation, but her student wasn’t making much progress in this area. She had consulted the research and was considering a new behavior intervention plan, and wanted my input before doing so. The first thing I noticed when I walked in to observe was that she did her entire session at a long wooden table, sitting side-by-side with her student. After watching for about ten minutes, I asked if we could…
  • States Begin to Include ABA Coverage

    Different Roads to Learning
    17 Sep 2014 | 9:15 am
    It looks like progress is being made on getting treatments such as ABA covered by insurance. Disability Scoop is reporting that states are finally starting to include coverage of treatments like Applied Behavior Analysis for children with autism under Medicaid. This means that states must cover services consistent with the categories defined by Early and Periodic Screening, Diagnostic and Treatment services (EPSDT). This includes Applied Behavior Analysis, speech and occupational therapies, and other personal care services. Read the full article here. Has anyone in CA, NV, and CT had success…
  • Pick of the Week: Unifix Cubes & Workbook with CD – Hands-on early math activities

    Different Roads to Learning
    16 Sep 2014 | 4:45 am
    Perfect for early counting and mathematical operations, our newly added Unifix Cubes and accompanying Mathematics for Unifix Cubes Workbook and CD: Kindergarten will provide numerous activities and games for teaching young learners early math concepts. This week only, save 15%* on your set of Unifix Cubes and/or the accompanying Mathematics for Unifix Cubes Workbook and CD-Rom by entering our code UNIFIX at check-out. Each set of Unifix Cubes contains 300 cubes in 10 assorted colors: red, dark blue, light blue, yellow, green, orange, maroon, brown, black, and white, great for teaching math…
  • Simplifying the Science: Parent-Conducted Toilet Training for Kids with Autism

    Different Roads to Learning
    11 Sep 2014 | 4:30 am
    For many of the families I work with, toilet training their child with autism becomes a long, painful process. I typically recommend the Rapid Toilet Training (RTT) protocol developed by Azrin & Foxx (1971) but many parents struggle to maintain implementation without the presence of a behavior therapist or toilet training specialist. And while Azrin & Foxx’s results have been replicated in other studies, RTT has primarily been used in educational and outpatient settings, and the amount of time it has taken to complete toilet training has been longer than in the initial study. This…
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    Asperger's Diary

  • Catastrophic Encounters and Autistic Identity

    Lynne Soraya
    30 Aug 2014 | 10:42 pm
    How do you react, as a parent, when you have a child who faces judgement and danger, because of his or her racial and neurological differences? Here is one mother's perspective from activist, advocate, writer, and researcher Kerima Çevik. read more
  • It’s Not Mayberry

    Lynne Soraya
    29 Aug 2014 | 6:06 pm
    Years ago, when I was just out on my own, I had an experience that has deeply shaped how I view events like those in Ferguson, Missouri these past weeks. One which taught me a lot about how biases can shape perception, and how those perceptions can have devastating consequences in law enforcement.read more
  • Disability and the Sharing Economy

    Lynne Soraya
    11 Aug 2014 | 6:59 pm
    I admit, I’ve developed a fascination with what some have called “collaborative consumption,” exemplified in sites like Airbnb, Uber, and Taskrabbit. I see real possibilities in these technologies to make my life easier — but there are aspects of it that trouble me. read more
  • Barriers to Effective Medical Care for Autistic Adults

    Lynne Soraya
    30 Jun 2014 | 7:33 pm
    A recent visit to the hospital underlined for me the challenges of getting medical care when you're on the autism spectrum. read more
  • Discussing Evil: The Problem of “Us” and “Them”

    Lynne Soraya
    9 Jun 2014 | 7:46 pm
    "There's a pattern that has existed in my life for as long as I can remember. Not only do I do it, many other people that I know do it as well. I learn about some type of problem—a robbery, a shooting, a murder...I close my eyes for a moment, and then I brace myself as I await more information. And all the while one thought/prayer/chant/fear is running through my head..."read more
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    From Inside the Puzzle: Raising a Child with Autism Blog

  • It's Easy Being a Mom

    Devon Alley
    17 Sep 2014 | 5:28 am
    Now that I have a two month old at home, I've been thinking a lot about motherhood, lately. It's interesting, because I think when you are new to motherhood, you spend a lot of time thinking about what kind of mother you are going to be - what sort of...(read more)
  • High School is a Thing

    Devon Alley
    9 Sep 2014 | 6:05 am
    This year, A. turns fifteen, and she begins her first year of 9th grade. Just like that, High School is a Thing that we do. It's hard to believe that we're here already. It's hard to believe it's been ten years since we moved to this city, since A. started...(read more)
  • The Lego Movie

    Devon Alley
    26 Aug 2014 | 6:28 am
    It hasn't always been easy to get A. to watch new movies. Even now, she still doesn't like going to the theater, and whenever anyone makes a suggestion of a movie for her to watch, she'll still watch several scenes from the film on YouTube before she...(read more)
  • You'll Always Be My Little Girl

    Devon Alley
    20 Aug 2014 | 8:47 am
    I know it sounds crazy, but before K. was born, I was actually a little worried about the love I would have for both of my daughters. When A. was first born, I was absolutely overwhelmed by just how much I loved her I could have never imagined I would...(read more)
  • Underwhelmed by Theatre Camp

    Devon Alley
    14 Aug 2014 | 10:52 am
    Last summer, I enrolled A. in an acting class at a local community college, and she absolutely had a blast. In fact, I would even hypothesize that the experience was part of the reason she became so interested in acting during the 8th grade, which of...(read more)
 
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    The Autism News

  • Ask an Autistic: Living Atypically – “Coming Out”

    The Autism News
    19 Sep 2014 | 3:42 pm
    By Amythest Schaber (YouTube) In this video I discuss coming out as a/Autistic to your family and friends. The tips I give could also apply to coming out as any other kind of neuro-atypical Read the full articleRead the full article on a new tab Source: https://www.youtube.com/watch?v=CtWooEacubI
  • Millionaire socialite ‘emailed her financial adviser as she poisoned her autistic son, 8, and watched him die in $2,300-a-night Manhattan hotel suite’

    The Autism News
    19 Sep 2014 | 3:40 pm
    By Sophie Jane Evans | MailOnline Gigi Jordan, 54, force-fed her son Jude Mirra fatal cocktail of pills and juice She then emailed financial adviser as he lay dying next to her, court heard She wrote: ‘Can you please wire $125,000 to Bruce as requested below?’ Socialite ‘hoped to siphon cash from son’s trust fund into her own account’ Jordan claims she fed her autistic son, eight,the drugs as a ‘mercy killing’ She also reportedly tried to kill herself after taking son’s life, but was saved Incident occurred in $2,300-a-night suite at luxury…
  • Disney Slams Expanding Autistic Kids Lawsuit — Claims “Irrelevant” Action More About Media Attention

    The Autism News
    19 Sep 2014 | 3:37 pm
    By Dominic Patten | Deadline This is not the happiest place on Earth by far for either side. Not only does Walt Disney Parks and Resorts want an Americans With Disabilities Act lawsuit from the families of children with developmental disorders tossed, it also really doesn’t want to see any more plaintiffs added to the controversial case. “Most of the proposed complaint is repetitive, argumentative, inflammatory, irrelevant and unnecessary,” said the media giant’s parks and resorts division in opposition earlier this week to the amended compliant of August 27 that seeks to include 69…
  • State briefs

    The Autism News
    19 Sep 2014 | 3:36 pm
    By Poughkeepsie Journal Federal charges for pair in Amish kidnapping case The couple accused of kidnapping two young Amish sisters in northern New York were charged Thursday in federal court with sexual exploitation of children and possession of child pornography. Nicole Vaisey, 25, and Stephen Howells Jr., 39, of Hermon, have already pleaded not guilty to state kidnapping charges. They are being held without bail in St. Lawrence County and were taken to federal court Thursday in Syracuse to hear the five new charges. Handcuffed and wearing orange-and-white jail clothing, they acknowledged in…
  • Researchers link gene to increased dendritic spines – a signpost of autism

    The Autism News
    19 Sep 2014 | 3:34 pm
    By MedicalXpress Scientists at the UNC School of Medicine have discovered that knocking out the gene NrCAM leads to an increase of dendritic spines on excitatory pyramidal cells in the brains of mammals. Other studies have confirmed that the overabundance of dendritic spines on this type of brain cell allows for too many synaptic connections to form between neurons – a phenomenon strongly linked to autism. The finding, published in The Journal of Neuroscience, adds evidence that NrCAM is a major player in neurological disorders. Previous UNC studies showed that knocking out the NrCAM gene…
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    Lexiloo

  • Protected: I’m honestly shaking right now. Grr.

    Miss LexiLoo
    5 Sep 2014 | 9:31 am
    This post is password protected. You must visit the website and enter the password to continue reading.
  • Still alive…

    Miss LexiLoo
    20 May 2014 | 7:32 am
    Yeah, it’s been seven months since I posted. Not sure who’s still out there reading, but here goes… This is the last full week of the school year. Heaven help us. We just had a meeting with the school psychologist because he just did an MFE (multi-factored evaluation) on big J. He has made huge strides in every area since the last time he had one. He’ll keep an aide for next year. Even better, it’s the same one he had this year. She really helps him a lot. So good news on that front. He still has some challenges, behaviorally. The biggest is getting him to…
  • School.

    Miss LexiLoo
    30 Sep 2013 | 10:46 am
    So…school’s been back for just over a month. Very exciting. Little J finally started kindergarten, which he was really excited about. And, as expected, I prepared him academically but he’s having a bit of trouble adjusting to the whole being at school thing. He does strange things…he actually got caught falling on purpose at recess so he could get an ice pack, because another kid got one and that wasn’t fair. Another time, it was super-hot and they couldn’t find him after recess, and then somebody found him sitting in the bathroom in his underwear because…
  • The Good, the Bad, the Ugly. (Mostly the Ugly)

    Miss LexiLoo
    16 Aug 2013 | 10:00 am
    It’s been a while since I blogged here, so I should probably post some kind of update, or whatever. But since all 4 remaining readers are likely on my Facebook anyway, I’ma skip it, because a venting session may be in order… Problem behaviors abound, I’m afraid. And I’m frustrated. It feels like every time we make progress, it’s “two steps forward, one step back”. Or maybe five steps back, I don’t know. Let me preface this whole thing by saying that it is coming up on the end of summer vacation (thank GOD. 5 more days!), and we’re…
  • Grr.

    Miss LexiLoo
    25 Mar 2013 | 8:32 pm
    Big J has been rather frustrating lately. There, I said it. It seems like a lot of different behaviors –pervasive behaviors– which were believed to be eradicated, or nearly so, have popped back up recently. Chewing. Oh, lord, the chewing. The boy has constantly got something in his mouth. Wrappers, small toys, you name it. None of our toy cars have rubber tires any longer. Pencils? You won’t find them with an eraser, unless I’ve been successful in hiding them. Fortunately for me, he prefers things that are noisy, so I usually catch him at it. He doesn’t ever…
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    Autism from a Father's Point of View

  • The most important lesson that I had to teach to the adults just as much as the children

    Stuart Duncan
    19 Sep 2014 | 2:46 pm
    During my time running Autcraft, I found myself constantly teaching people things. I taught children how to work together, how to be a friend, how to play the game, how to deal with bullies and so much more. I also found myself teaching adults as well. How to play the game mostly but also how to cope with troubling behaviours, how to extend their patience level and even how to switch a system which focuses on punishments to one that focuses on positive reinforcement. The biggest thing though, the number one thing that I found myself constantly having to teach, reteach, remind and reinforce…
  • I am no longer with Autcraft

    Stuart Duncan
    16 Sep 2014 | 9:40 am
    Let me start out by saying that there is no drama, no behind the scenes reasons, nothing that must have happened to set me off to do this… this is something that I’ve been planning and working towards for a while now. Autcraft started as I watched more and more parents with children on the autism spectrum reach out to other parents hoping to find friends to play Minecraft with. Why were they looking for other parents? Well, their children first tried playing on regular servers like most other children but because they had autism, because they struggled with the social aspect of…
  • “Reversing autism” and why you’re not

    Stuart Duncan
    9 Sep 2014 | 11:17 am
    A news story hit my social media feed called “Could Early Intervention Reverse Autism?” and I just had to sign into my blog and start typing. I see this term all over the place… “reversing autism.” It accompanies it’s not so distant cousin “recovering from autism.” First and foremost, let me just say I am not a doctor, scientist, geneticist nor can I see the future. That being said… no. You have not reversed autism. Let’s just forget for a moment that autism is not a truck that you can simply throw into reverse and back up, there are…
  • In search of monsters

    Stuart Duncan
    5 Sep 2014 | 11:51 am
    So the autism community is up in arms once again, divided down the middle and taking shots at one another. Kellie Stapleton faced a judge one year to the day that she tried to kill herself and her daughter Issy and plead “not guilty” to first-degree child abuse. The earthquake was felt through out the entire autism community. Finding Monsters Like a Disney movie, when a tragedy falls upon the land, your first instinct is to identify the monster. Who is the evil villain this time? Many people point to the obvious, Kelli Stapleton. The one who tried to take 2 lives, one that was…
  • This is the scariest part about the CDC Whistleblower story by far

    Stuart Duncan
    28 Aug 2014 | 6:57 pm
    CDC As I watched the news unfold on August 22, 2014 about a CDC “whistle blower” coming forth to speak out about the CDC concealing results from the general public about any potential links between autism and the MMR vaccine, I couldn’t help but notice some very disturbing trends. Panic – This is pretty normal. Having been in the autism community for a few years now, I see this every single time anyone says the “V” word. But this time it was on an unprecedented scale the likes of which haven’t been seen since 1998. Confusion – People throw…
 
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    Around the Autism Spectrum

  • Local DIR/Floortime Conference in Lafayette, CA

    Patricia Robinson
    15 Sep 2014 | 11:34 am
    I'm a big fan of DIR/Floortime, and the work of Dr. Greenspan. It's exciting that the conference is so close for those of us in the Bay area. It's open to professionals and parents, on Friday, October 10, 2014.Here is the flyer:
  • Temple Grandin speaking at Las Positas

    Patricia Robinson
    31 Mar 2014 | 11:55 am
    For those of you who are long time readers of this blog, I'm sure you've seen plenty of posts about Dr. Temple Grandin. Temple Grandin is probably the more well know autistic individual in the country.And now, you can see her in person. Dr Temple Grandin will be speaking at Las Positas College on Thursday, April 24, 2014, at 7 pm. You can get more information and purchase tickets by going to the post on the Las Positas site.
  • Can I call myself a blogger if I never write my blog?

    Patricia Robinson
    25 Feb 2014 | 4:02 pm
    In the grand scheme, that’s not an important question. But, in its own trivial sense, it does touch on the ideas of semantics, language, identity. And those are issues of importance. I just read a whole series of articles on “people-first language.” An example of people-first language is “person with autism” rather than “autistic person” There are good arguments to be made for both preferences. Person-first language emphasizes the individual, rather than the diagnosis. People-first language is often advocated by disability rights organizations as a more respectful form of…
  • Time to Think about Summer Camps!

    Patricia Robinson
    17 Feb 2014 | 3:16 pm
    It's well known that kids on the autism spectrum struggle with generalizing learning from one setting to another. Simon Baron-Cohen explains this by way of the extreme systemizing theory of autism, where autistic individuals set up rules to understand the world, and those rules don't easily generalize from one situation to another. I think this difficulty is clearly apparent in social situations. So often, I've worked with children who could teach the content of a social skills class, yet they struggle to apply those same skills in any meaningful way in their own lives.That's why I like to…
  • Bay Area Parent Support Group

    Patricia Robinson
    3 Oct 2013 | 5:12 pm
    There is a new support group forming in Walnut Creek, CA for parents of Middle and High School age kids with Asperger's or Autism Spectrum Disorders. The first meeting is October 9, 2013, at 7 pm, at John Muir Hospital. See the flyer below for more information.  
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    Autism Lighthouse

  • How to help your child with autism get a good night’s sleep

    Connie Howse
    22 Aug 2014 | 4:18 pm
    According to WebMD, significant sleep problems occur in 40 – 80% of children with autism spectrum disorder. If you are a parent reading this right now, you are probably a card-carrying member of the sleep-deprived-parents-of-an-autistic-child club. Guess what? I am a long-time member, too. I fulfilled my qualifications for a lifetime as a member of...    Read More...The post How to help your child with autism get a good night’s sleep appeared first on Autism Lighthouse.
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    my Cartesian Theatre

  • Fuzzy People

    mud
    29 Aug 2014 | 4:38 am
    Dealing with difficult interpersonal situations are a blessing and a curse. I find them a blessing because they challenge me. I often need to learn as I go with people. At this point in my life I’ve accrued depth of information about how people work and act but every day they surprise me. Humans are […] The post Fuzzy People appeared first on my Cartesian Theatre.
  • No Gray Allowed

    mud
    8 Aug 2014 | 8:08 am
    Black and White The world is filled with moments. Each moment leads to the next and each one is a swirl of ambiguity. There is no such thing as a black and white situation in reality. Although you can ignore certain criteria to a point where the choice becomes 50/50 in which it truly is […] The post No Gray Allowed appeared first on my Cartesian Theatre.
  • Life might get interesting…in 3-4 months

    mud
    30 Jul 2014 | 8:14 am
    Two weeks ago I was feeling brave. I decided to apply for a bunch of jobs with cruise companies. I had thought about it before and it was an entertaining fantasy more than anything. The idea was very appealing of cruising around the world, meeting new people at each port, working with smelting pot of […] The post Life might get interesting…in 3-4 months appeared first on my Cartesian Theatre.
  • One mistake after the next…

    mud
    26 Jul 2014 | 2:04 pm
    I’m growing tired of my lack of social awareness. It’s so exhausting to try and keep an eye on the right things. I went for a few drinks last night with some people from work. After having a four beers in the pub, three of us went to meet a friend and to get some […] The post One mistake after the next… appeared first on my Cartesian Theatre.
  • Aspergers & Me

    mud
    16 Jul 2014 | 5:23 am
    Welcome to my Cartesian Theatre. It’s just a blog where I can talk with relative anonymity about my perspective on life. I have Aspergers and I realized it would be nice to have a place to talk about my life, let off steam and just give my two cents on what being a person with […] The post Aspergers & Me appeared first on my Cartesian Theatre.
 
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