Autism

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  • Could Desk Research Be a Good Fit for Adults with Aspergers?

    Prosper with Aspergers
    Stephen Borgman
    14 Apr 2014 | 8:00 am
    I was a senior in college.  Halfway through my year, I was hit with a wave of panic.  I had no idea what I wanted, really, to major in! I didn’t know what career I wanted to embark on! I had majored in Anthropology and Sociology, but had no idea what I could do with that. I decided to take a course in Psychology, and the rest was History! Just as I had overlooked Psychology as a key field I was both interested in and good at, I’m hoping some of you will consider research as a path to potential careers for Aspergers adults. Desk research is a type of research that analyzes…
  • Prenatal exposure to selective serotonin reuptake inhibitors associated with autism and developmental delays in boys

    Autism News From Medical News Today
    18 Apr 2014 | 12:00 am
    In a study of nearly 1,000 mother-child pairs, researchers from the Bloomberg School of Public health found that prenatal exposure to selective serotonin reuptake inhibitors (SSRIs), a frequently...
  • Autism’s Just a Little Bit

    AGE OF AUTISM
    Age of Autism
    20 Apr 2014 | 2:45 am
    By Cathy Jameson We’re celebrating another traditional holiday in our house today. Long gone are the expectations that Ronan will patiently sit throughout the Easter festivities though. It’s okay. Ronan makes up for his impatience in one area by dazzling...
  • Five Reasons to Celebrate Our Autistic Children's Small Victories

    About.com Autism
    14 Apr 2014 | 1:20 am
    Every day, we're reminded that our child or children with autism are "challenged," "disabled," and otherwise unable to come up to society's expectations.  That hurts.  But we're practical and realistic; we swallow the negative feelings and move forward.  Of course, soldiering on is part of parenting any child with a disability....Read Full Post
  • Common links between neurodegenerative diseases identified

    Autism News -- ScienceDaily
    17 Apr 2014 | 9:42 am
    The pattern of brain alterations may be similar in several different neurodegenerative diseases, which opens the door to alternative therapeutic strategies to tackle these diseases, experts say.
 
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    AGE OF AUTISM

  • Autism’s Just a Little Bit

    Age of Autism
    20 Apr 2014 | 2:45 am
    By Cathy Jameson We’re celebrating another traditional holiday in our house today. Long gone are the expectations that Ronan will patiently sit throughout the Easter festivities though. It’s okay. Ronan makes up for his impatience in one area by dazzling...
  • Weekly Wrap: Nightmare on Clifton Road - Freddy Krueger is Coming for the CDC

    Age of Autism
    19 Apr 2014 | 2:46 am
    By Dan Olmsted I hope the CDC is enjoying these warm spring days and basking in the sunshine of mainstream media love during Autism Awareness Month. But I strongly suspect that the shadow of darker times ahead is starting to...
  • Dr. Keith Ablow on Justina Pellietier Children's Hospital Of Boston Medical Freedom Case

    Age of Autism
    19 Apr 2014 | 2:43 am
    Managing Editor's Note: We in the autism community have been watching the Justina Pelletier case with horror (there is no softer word) as Children's Hospital of Boston took the teen from her family earlier this year. Dr. Keith Ablow, popular...
  • Safeminds: 1 in 68 is Only Part of the Autism Story - What CDC Didn’t Report

    Age of Autism
    18 Apr 2014 | 2:45 am
    1 in 68 is Only Part of the Autism Story; What CDC Didn’t Report Ten Times the Prevalence of Severe Autism over Time, But No Increase vs. 2008 By Katie Weisman, for the SafeMinds’ Research Committee Thanks to Mark Blaxill...
  • The Hate Debate: LivingWhole.org Tackles the Vaccine Debate

    Age of Autism
    18 Apr 2014 | 2:43 am
    Managing Editor's Note: Below is an excerpt we encourage you to share from Megan, of the LivingWhole site. From her bio, I have a degree in Political Science, a law degree, and am a Naturopath, Certified Natural Health Educator, Registered...
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    About.com Autism

  • Five Reasons to Celebrate Our Autistic Children's Small Victories

    14 Apr 2014 | 1:20 am
    Every day, we're reminded that our child or children with autism are "challenged," "disabled," and otherwise unable to come up to society's expectations.  That hurts.  But we're practical and realistic; we swallow the negative feelings and move forward.  Of course, soldiering on is part of parenting any child with a disability....Read Full Post
  • How My Kid With Autism Learned to Play the Clarinet

    10 Apr 2014 | 12:26 pm
    Hey, look! My amazing kid with autism can play the clarinet!  He plays solos...  he plays in theaters...  he plays in bands...  he plays in camp...  he plays in the junior symphony!...Read Full Post
  • Five Ways to Become Your Child's Autism Therapist

    7 Apr 2014 | 12:34 pm
    Parents get hands-on involved with their children's autism therapy for many different reasons -- to save money, to find more quality parent-child time, to provide higher quality experiences for their child, or simply because they find the opportunity interesting and worthwhile.  Whatever their reasons, many parents find that being an autism therapist for their is actually quite a lot of fun, very rewarding, and a great way to bond.  This article explores five models for becoming your child's autism therapist!...Read Full Post
  • World Autism Awareness Day Achieves Mainstream Status

    2 Apr 2014 | 3:06 am
    Well, it's World Autism Awareness Day, and by golly the world is now very, very aware of autism.  From the Empire State Building to the Sydney Opera House to the Macau Tower pictured in the photo, buildings are lit up blue as part of the Autism Speaks awareness initiative.   There are events, programs, symposiums, special parades, walks, marches...  in short, autism seems to have achieved the kind of status that were once reserved for more well-known and common disorders such as breast cancer, muscular dystrophy, and the like....Read Full Post
  • CDC: Autism Rates Now at 1:68 Children

    28 Mar 2014 | 1:08 am
    With Autism Awareness Week around the corner, the CDC held a press conference.  According to them, autism rates continue to climb at an incredible rate, and now stand at 1:68 among their select group of 8 year olds.  You can quarrel with the CDC's approach to identifying children with autism (they are not simply counting children who have been officially diagnosed), and it is rather confusing that they base their announcements on observations of 8 year olds in a few select states.  But even if you find fault with the process (or the institution of the CDC), there is no doubt…
 
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    Autism News -- ScienceDaily

  • Common links between neurodegenerative diseases identified

    17 Apr 2014 | 9:42 am
    The pattern of brain alterations may be similar in several different neurodegenerative diseases, which opens the door to alternative therapeutic strategies to tackle these diseases, experts say.
  • Atypical brain connectivity associated with autism spectrum disorder

    16 Apr 2014 | 2:23 pm
    Autism spectrum disorder in adolescents appears to be associated with atypical connectivity in the brain involving the systems that help people infer what others are thinking and understand the meaning of others' actions and emotions. The ability to navigate and thrive in complex social systems is commonly impaired in ASD, a neurodevelopmental disorder affecting as many as 1 in 88 children.
  • SSRI use during pregnancy linked to autism and developmental delays in boys

    15 Apr 2014 | 12:37 pm
    In a study of nearly 1,000 mother-child pairs, researchers found that prenatal exposure to selective serotonin reuptake inhibitors (SSRIs), a frequently prescribed treatment for depression, anxiety and other disorders, was associated with autism spectrum disorder and developmental delays in boys.
  • New method of screening children for autism spectrum disorders works at 9 months old

    15 Apr 2014 | 9:55 am
    Researchers have identified head circumference and head tilting reflex as two reliable biomarkers in the identification of autism spectrum disorders (ASD) in children that are between 9 and 12 months of age. ASD is identifiable as early as two years old, although most children are not identified until after the age of four. While a number of studies have reported that parents of children with ASD notice developmental problems in children before their first birthday, there has yet to be a screening tool to identify those children.
  • Dog ownership benefits families of children with autism

    14 Apr 2014 | 12:08 pm
    Dog ownership decisions in families of children with autism have been studied in a new project. Researchers have found, regardless of whether they owned dogs, the parents of these children reported the benefits of dog ownership included companionship, stress relief and opportunities for their children to learn responsibility.
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    Autism News Beat

  • Chili’s cancels benefit for anti-vaccine group

    autblog
    7 Apr 2014 | 4:20 am
      A spokesperson for Chili’s Grill and Bar announced Sunday that Monday’s Give Back Event which would have benefited an anti-vaccine group has been cancelled. Below is the statement from Brinker International, the restaurant’s parent corporation. Statement from Chili’s Grill & Bar “Chili’s Grill & Bar is committed to giving back to the communities in which our guests live and work through local and national Give Back Events. While we remain committed to supporting the children and families affected by autism, we are canceling Monday’s Give Back…
  • Chilis Grill and Bar serving vaccine rejectionism

    autblog
    4 Apr 2014 | 9:08 am
    Chilis Grill and Bar, which operates over 1200 restaurants, refuses to explain its plan to donate 10% of its sales on April 7 to the National Autism Association,  a well-known anti-vaccine advocacy group. “Right now we are coming up with what we are going to say about it,” a corporate spokesperson told AutismNewsBeat. She promised to call back when information becomes available. The chain is owned by Brinker International, which also operates Maggiano Little Italy. Revenue for 2012 was reportedly $2.8 billion. Chili’s, a Texas corporation, has been operating restaurants for 37…
  • CDC reports 1:68 prevalence forautism spectrum disorders

    autblog
    27 Mar 2014 | 10:00 am
    The Centers for Disease Control and Prevention estimates that 1 in 68 children (or 14.7 per 1,000 eight-year-olds) in multiple communities in the United States has been identified with autism spectrum disorder (ASD).  This new estimate is roughly 30 percent higher than previous estimates reported in 2012 of 1 in 88 children (11.3 per 1,000 eight year olds) being identified with an autism spectrum disorder.  The number of children identified with ASD ranged from 1 in 175 children in Alabama to 1 in 45 children in New Jersey. This is the sixth survey reported from the CDC’s Autism and…
  • To reporters on the eve of Autism Awareness Month

    autblog
    24 Mar 2014 | 4:30 pm
    April is Autism Awareness Month, when the words “Somebody get me an autism story” can be heard in newsrooms across the country. Some reporters will answer the call with factually accurate, nuanced, informative pieces that add value to the public’s store of knowledge. Others will just phone in their reports, literally and figuratively. And a few will embarrass themselves. In the six years that I’ve been monitoring America’s anti-vaccine movement, there’s been a sea change in how news and entertainment media have given voice to anti-vaccine advocates. There…
  • The Weather Channel rains on anti-vaccine parade

    autblog
    1 Mar 2014 | 8:24 am
    Add The Weather Channel to the growing list of media outlets gunning for the anti-vaccine movement.  In “The Dangerous History of Anti-Vaccine Conspiracies”, Jeffrey Kopman forgoes false balance, and instead calls out the fraud, paranoia, and general scientific illiteracy of a movement that recklessly endangers public health. The money quote: Part of [the movement’s continuation] comes from not fully understanding the science,” said Paul Spearman, MD. “When someone is maybe not well educated in the science, they can latch onto internet based theories of what is going on…
 
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    Square 8

  • Code Blue

    3 Apr 2014 | 10:36 am
    How does it feel? You lit it up blue, didn’t you? I told you about Autism Speaks and how their primary goal is a world without people like me in it and how they have degraded and threatened and ignored and sued and plagiarized autistic people and how they thought nothing of saying we are not fully human, that our families are not really living, can never be happy, and we are the reason. I talked to you when I didn’t have the energy or resources to speak. I wrote to you when I had other plans and more constructive work to do. I answered your questions. I was reasonably polite, though I…
  • More about Freaks

    4 May 2012 | 8:49 am
    This is Part 2 of a series on my participation in CUNY's ESA Conferece 2012. Part 1 is here. My initial thought was to explore the meaning of “autism scholar.” What are the credentials? Does blogging count? Even if it does, I haven’t done a lot of that in a while. Do I deserve the label based on my degree or the publication of a single paper? And if so, who is being left out? What can be done to create an atmosphere of learning and shared knowledge that would expand the notion of scholarship beyond academia? What types of knowledge and learning are currently ignored or discounted? I…
  • BADD: Connecting dots

    1 May 2012 | 8:14 am
    Somebody calls autism a tragedy. Somebody kills an autistic person. Somebody doesn’t see how these two events are connected. I try to explain. I try harder. It happens again and again and again and somebody ‘splains it away.The topic here is devaluation. When it becomes commonplace to pair the words autism and tragedy, the pairing seeps deep down into the collective mind. When the puzzle piece becomes the recognized symbol for autism, the message comes over and over that there is something unfinished about the person. Something mysterious that the general public cannot be expected to…
  • Attention

    30 Apr 2012 | 10:59 am
    There’s an old Zen story: A student said to Master Ichu, “Please write for me something of great wisdom.” Master Ichu picked up his brush and wrote one word: “Attention.” The student said, “Is that all?” The master wrote, “Attention. Attention.” The student became irritable. “That doesn’t seem profound or subtle to me.” In response, Master Ichu wrote simply, “Attention. Attention. Attention.” In frustration, the student demanded, “What does this word attention mean?” Master Ichu replied, “Attention means attention.” -Beck, C.J. (1993). Nothing special:…
  • Cripples, Idiots, Lepers, and Freaks

    27 Apr 2012 | 7:38 am
    It was a different sort of autism workshop from those in which I have usually been asked to participate. The topics included video games and manga. The presenters were academics, mostly English professors. The invitation I received referred to me as an autism scholar (!) I started to think about the meaning of the word “scholar” and whether I was or wasn’t. It was a spiral of thought resembling what happens when I think about the word “autism.” I like the idea of looking at the concept of autism in different contexts. I very much like the idea of expanding the definition of…
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    Reports from a Resident Alien

  • My Splinter Skill

    Lisa D.
    16 Apr 2014 | 1:55 pm
    Among the uninformed, autism is often associated with savant syndrome. You know--Rain Man, counting cards. Or calendar calculation, or memorizing books, or drawing something with photographic accuracy after having seen it once. It's always flashy and exotic-seeming, like savant syndrome is so hugely outside everyday experience that autistic people may as well be performing animals instead of people.So here's the reality: Only about 10% of autistics have a savant skill, and it's a lot less flashy than Rain Man. It's just a skill that you're so naturally good at that you…
  • Cats have shorter lifespans.

    Lisa D.
    11 Apr 2014 | 9:30 am
    We're all aware that our cats don't live as long as we usually do, and most of the time we just think of it as something sad.But lately I've been thinking that there's more to it than the sadness of saying goodbye when a cat is old and you're not.Cats grow up faster, age faster, live faster than we do. When I first adopted Tiny, he was a gangly street cat, the equivalent of a teenager in human terms, and he didn't trust anyone. I was twenty-three, and I was older than Tiny. I taught him how to trust. I taught him how to deal with his fear of thunderstorms and how to…
  • Equality

    Lisa D.
    30 Mar 2014 | 6:57 am
    Nobody's superior to anybody else. Everybody should be equally valued.Some people say that statements like that are naive and stupid and only made by people who have blinded themselves to the reality of the world. Obviously, the average person can't match the performance of an Olympic athlete or the brilliance of a famous scientist or the compassion of a saint. Obviously, some people are disabled and, in the area of their disability they can't match the performance of the average person. Therefore, it's silly to say people are equal, silly to pretend these differences…
  • Who is "Neurotypical"?

    Lisa D.
    23 Mar 2014 | 8:47 am
    "Neurodiverse" and "Neurotypical" are words we had to invent because there were no words for "People who have brains that work in a way that's close enough to average to be called average by the general observer," and, "People whose brains are demonstrably not average." You can't say "cognitively disabled", because some atypical conditions like synesthesia and giftedness aren't disabilities. You can't say "abnormal", because that implies disease and is rather pejorative anyhow. Thus we use the word…
  • "Overcoming Autism" is not on my To Do list

    Lisa D.
    18 Mar 2014 | 9:10 pm
    I am autistic, and my autism is not separate from my identity. "Autistic" is part of what defines me, just like "college student" and "American" and "short". If it's okay for me to say that being female is part of who I am, then why can't I say that about autism? Or is it because disability is something that's so terrible that we need to reject it and pretend it doesn't exist?Obviously, I'm not some kind of walking blob of autism, because autism doesn't come in blobs; it comes with people.One of the most patronizing and pitying…
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    drive mom crazy

  • Why Acceptance matters for all of Humanity!

    theamazinj
    12 Apr 2014 | 2:44 pm
    Acceptance is golden Acceptance is exceptionally important, Acceptance is joyous, Acceptance is full of life, Accepting yourself means you know your voice, Accepting others means other’s voices matter too. Not everyone gets along, Not everyone is meant to be together, Not everyone has the same mission, but we all strive for one main goal which is love. Loving those who are dying both figuratively and literally, Loving those who are feeling hurt, Loving those who we like, and bringing those we may disagree with and hate to the very aspect of acceptance. Humanity is making real choices…
  • Self-Determination is Important and Healthy for a Person’s Life

    theamazinj
    28 Mar 2014 | 10:56 am
    People live stronger and healthier when living with self-determination. Self-determination is moving toward independence with the support network we all need. However, many people who don’t have a strong support network need to find the inner strength to do it on their own finding people who can help them. No one needs to feel like any person with ableist attitudes will teach them that they are incapable, incompetent, and feel unwanted. Every one is capable, competent, and wanted with a mission to achieve anything they want in their life. Whether you already have a strong support…
  • Respecting and Recognizing Others is Important for Humanity

    theamazinj
    16 Mar 2014 | 3:41 am
    Identifying ourselves… In order to identify ourselves, we have to remind ourselves what we do, where we came from, and who we are. The poll question on the side column of this website expresses just that. It has been asking you to figure out how you would want to identify yourself. Identity is important for our own Humanity and it is defined by diversity since we all identify ourselves differently. Identity is important! Many able-bodied people try to define people with disabilities including Autistic people without the expressed consent from Disabled people themselves. This is unfair…
  • Let’s Give Everyone Their Chance For their Own Success!

    theamazinj
    12 Mar 2014 | 5:41 am
    Being Disabled is not the same as being able. It’s hard dealing with people who just don’t understand us as being a part of the Disability community. I have met many people who look at me like I am an Able-bodied person, but don’t realize the many things that disable me from the rest of society. Being Autistic has it’s many gifts for me, but I still am disabled by society’s standards. I am very capable of doing the many things like everyone else, but much of society does not understand how to accommodate me. For example, there are different ways I get overloaded…
  • Submissions are Ready to be Received for the 5th Annual Autistic Artistic Carnival!!

    theamazinj
    11 Mar 2014 | 4:51 am
    The Guidelines for this year’s Autistic Artistic Carnival is for every Autistic person to submit their works to be shown on this website on Autistic Pride Day, June 18 is being shown now!!! Any Autistic person from all AGES can submit their work to me from now until June 16 in the form or art, photography, film, poetry, other writings, music, anime, or any inventions/scientific discoveries they have created. If you want to look at the other works from previous Autistic Artistic Carnival’s, please do so to get some ideas!!! This carnival will ensure that Autistic CREATIVITY and…
 
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    Left Brain Right Brain

  • The Korean Community Services, Autism Speaks, the University of Pennsylvania and the George Washington University partner to provide autism resources to Korean Americans

    Sullivan (Matt Carey)
    17 Apr 2014 | 3:19 pm
    There are many groups in American where the autistics are under-diagnosed and underserved including many racial and ethnic minorities. A recent partnership (press release below) has been formed to address the issues of providing resources to the Korean American communities in the U.S.. We need more outreach such as this. More efforts to identify and serve all Americans with disabilities, including autism. FOR IMMEDIATE RELEASE THE KOREAN COMMUNITY SERVICES, AUTISM SPEAKS, THE UNIVERSITY OF PENNSYLVANIA AND THE GEORGE WASHINGTON UNIVERISTY PARTNER TO PROVIDE AUTISM RESOURCES TO KOREAN…
  • #StopCombatingMe: A New PSA from ASAN

    Sullivan (Matt Carey)
    15 Apr 2014 | 8:21 pm
    Below is an email message sent out by the Autistic Self Advocacy Network (ASAN) The Autistic Self Advocacy Network is proud to release our newest advocacy PSA, #StopCombatingMe. Produced in collaboration with We Are St. Elmo’s Fire, #StopCombatingMe provides a powerful perspective on the deeply flawed Combating Autism Act and urges for badly needed reforms and action. You can watch the PSA here. ASAN is working to try and reform CAA to align its goals with those of the Autistic community: self-determination, community integration, acceptance, and meaningful advocacy. Unfortunately, the…
  • Jenny McCarthy tries to position herself as in the “grey area” on vaccines

    Sullivan (Matt Carey)
    15 Apr 2014 | 8:11 pm
    Jenny McCarthy seems a bit angry at bloggers. She’s written an op-ed for the Chicago Sun Times Jenny McCarthy: The gray area on vaccines. She’s not antivaccine, she wants us to know. Well, Jenny, I don’t call you antivaccine. I call you irresponsible. And I stand by that. Mostly for your promotion of autism “therapies” which range from useless to abusive. Will you be speaking at the AutismOne conference this year? If so, will you speak out on forcing disabled children to drink diluted bleach solutions or undergo repeated diluted bleach solution enemas? Really,…
  • IACC Issues Statement Regarding Implications of Changes in the Diagnostic Criteria for Autism Spectrum Disorder

    Sullivan (Matt Carey)
    6 Apr 2014 | 10:00 pm
    The update of the DSM to the DSM-5 was met with a great deal of discussion by the autism communities. The U.S. Interagency Autism Coordinating Committee (IACC) has prepared a statement “IACC Statement Regarding Scientific, Practice and Policy Implications of Changes in the Diagnostic Criteria for Autism Spectrum Disorder“. The statement can be found online and as a pdf. The press release for the statement is below. For Immediate Release Wednesday, April 2, 2014 Contact: Office of Autism Research Coordination/NIH E-mail: IACCPublicInquiries@mail.nih.gov Phone: (301) 443-6040 IACC…
  • Presidential Proclamation — World Autism Awareness Day, 2014

    Sullivan (Matt Carey)
    6 Apr 2014 | 9:11 am
    April is Autism Awareness month and April 2nd was World Autism Awareness day. Below is the Presidential Proclamation about this. Presidential Proclamation — World Autism Awareness Day, 2014 BY THE PRESIDENT OF THE UNITED STATES OF AMERICA A PROCLAMATION Each year, people across the globe take time to recognize the millions of people living on the autism spectrum, including 1 out of every 68 American children. Americans with autism contribute to all aspects of society and are an essential thread in the diverse tapestry of our Nation. On World Autism Awareness Day, we offer our support…
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    Susan's Blog

  • Electric Shock is Never An Educational Approach

    Susan Senator
    11 Apr 2014 | 8:33 am
    Here is an issue that most of us can probably agree on: NO MORE ELECTRIC SHOCK for “treating” autism! I have written several times about the Judge Rotenberg Center, not 30 minutes away from me, and there they are infamous for their “method” of addressing “problem behaviors.” (Air quotes galore, because JRC is a sham.) Once again, there is no behavior that justifies this. If you think you need to resort to electric shock, which has been outlawed by The United Nations Special Rapporteur on Torture. If we are forbidden by the nation — and virtually the…
  • Really? Autism Awareness Month?

    Susan Senator
    1 Apr 2014 | 9:51 am
    Right, right. April first. How fitting that it is Autism Awareness Month begins on April Fool’s Day. Why do I say this? Because we claim to want or to have awareness but we are fooling ourselves. What are we aware of? What are we supposed to be aware of? That people with autism exist and struggle? Autism Awareness makes no sense to me anymore. Unless you live in a cave, you’re aware. But do you get it? I’m aware. Oh yes, I’m aware. I’m aware that there are more and more parents like me who do not know how to plan longterm for their transitioning/adult autistic…
  • Alternative to Group Home: Shared Living

    Susan Senator
    20 Mar 2014 | 6:02 am
    In Massachusetts there is a program called Shared Living, which is a good way to create an independent living set-up for your loved one with a fairly significant developmental disability. Shared Living is more of a community model, a more Self-Determined, Person-Centered model, whereas Group Homes can feel a little more isolated, perhaps more institutional, and are much more costly to sustain. Shared Living is basically a caregiver living with the person with the disability, together, in the caregiver’s apartment. The caregiver gets a stipend from which he pays rent and the disabled…
  • Small But Huge Innovation

    Susan Senator
    19 Mar 2014 | 2:44 pm
    Great story in the New York Times about a man who helps train folks with autism in employment. Jay Goltz, writer for the New York Times, desribes how Dave Geslak owns a small business, “Exercise Connection, a company in Chicago that works with children who have autism. Dave has discovered that the structure and routine that his students learn from exercise build confidence, which can be a gateway to getting a job.” (NYTimes, “On Hiring and Autism,” March 19, 2014). Read the story here and then think about the many less-known routes there are to the goal of employment…
  • Self-soothing

    Susan Senator
    12 Mar 2014 | 9:16 am
    I have just discovered something kind of important (to me). Almost every day at some point I start getting anxious but also yawning. I almost start to panic — I don’t know why. I feel like I want to connect more with people but at the same time I can’t face that. Some days this feeling overtakes me to the point where I can’t work, I can barely function other than to do chores like laundry and cleaning. I start to get sad about this feeling. Why does this keep happening, I think. What is wrong with me? Nothing is wrong — in fact many things are very right and good…
 
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    The Voyage

  • Action not Awareness for Autism

    2 Apr 2014 | 4:27 am
    It's World Autism Awareness Day and autism is all over the papers and radio. Some of the stories are great such as this by Fiona O'Leary, an Irish self-advocate explaining why she opposes the Light it Up Blue campaign and seeking an end to negative rhetoric:"Any research that will bring positive benefits to people on the autistic spectrum is welcome. However, the propaganda used by Autism Speaks is instilling fear and hatred about a condition that is struggling to find acceptance in society."Some stories attempt to tug at the heartstrings such as the story of a 9 year old girl who wrote in…
  • Please Don't Light up Blue for Autism

    28 Mar 2014 | 3:26 am
    You mean well. I know you hope that by persuading your local council to bathe your town or city's most significant building or monument in blue light, that you are doing a good thing. You have bought into the notion that increasing "awareness of autism" will help your autistic children. But do you know where the notion of "light it up blue" originated? Are you aware how people who are themselves autistic feel about this particular campaign? April 2nd has been marked as World Autism Awareness Day since the late 80's and in 2007 it was adopted by the United Nations. Light it up blue came along…
  • Autism Biomed Bullshit Booming in Ireland

    24 Mar 2014 | 3:00 pm
    I didn't expect that the promoters of uncontrolled and unethical experimentation on autistic children would be allowed to sell their services on RTE TV. Thanks to Suzy (who alerted me to all this stuff) I was able to catch the Morning Edition show of 21 March (segment starts at 57 minutes) when USA-based Great Plains Laboratory boss William Shaw was interviewed as an "expert in biomedical interventions" along with Karen O'Connor, boss of home-grown organisation The Child Development Centre. Shaw wasn't challenged despite claiming that they had "reversed" autism in many children with their…
  • Is This Autism?

    18 Nov 2013 | 7:31 am
    [Warning-  in this post, written in support of the This is Autism flash blog, I've quoted some of the dehumanising language used by Suzanne Wright.]I don't get to say what autism is. I'm not autistic though my thirteen year old son is. In learning how to parent him, I've met other autistic people, read their words and I've listened. I'm qualified to say what my son is like, how his awesomeness and autism intersect. I'm also authorised to say that the wretched "Call for action" edict by Suzanne Wright, co-founder of enormously wealthy and powerful, USA…
  • This is My Child

    20 Aug 2013 | 8:30 am
    This Is My Child is an awareness-raising campaign run by Mumsnet.This is my millennium baby. He didn't develop along quite the same path as his older sister and most of his peers and was diagnosed with autism when he was two years old.Ryan aged 2As a toddler he didn't speak but he communicated in other ways. Over time and with lots of help and teaching optimised to his way of learning he learnt to communicate more effectively. Ryan aged 4 in a play centre- he was speaking in 2 to 3 word sentences then.Over the years, just about every single time we have been out and about together, people…
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    MOM - Not Otherwise Specified

  • 1 in 68

    MOM-NOS
    2 Apr 2014 | 10:26 am
    Depending on whom you ask, today is World Autism Awareness Day, World Autism Acceptance Day,  or Everyone Matters Day.  From my perspective, awareness, acceptance, and mattering are all vitally important, so I say bring 'em on. Last week, in the lead-up to these events and to the month of April, which is Autism Awareness Month, the CDC released the latest autism prevalence rates - now 1 in 68
  • Christmas, present

    MOM-NOS
    21 Dec 2013 | 12:37 pm
    I have a new piece up at The Huffington Post, called Zen and the Art of Alzheimer's.  As I said when I posted the link on the MOM-NOS Facebook page, I rarely know what to get my father for Christmas, but this year I hope I can give him the perfect present. Happy holidays, friends, from Bud and me.
  • This is autism

    MOM-NOS
    18 Nov 2013 | 4:29 pm
    There's a flashblog going on today on blogs across the autism blogosphere in response to the most recent press release from Autism Speaks' co-founder Suzanne Wright, in which she writes, "These families are not living. They are existing. Breathing – yes.  Eating – yes. Sleeping- maybe.  Working- most definitely - 24/7. This is autism.  Life is lived moment-to-moment.  In anticipation of the
  • Presume competence

    MOM-NOS
    6 Nov 2013 | 10:13 am
    There has been a bit of back-and-forth in the comment section of my last post.  The gist of it goes something like this: "Hey, look at this great thing Bud did." "Actually, that might just be a deficit masquerading as a strength." "Really, I gotta say, I think it's a strength." "Perhaps.  On the other hand, it could just be a well-developed deficit." I'm not going to volley back, because
  • Autism, empathy, and understanding

    MOM-NOS
    28 Oct 2013 | 3:30 pm
    The other day, Bud was doing something I didn't want him to do - something I've told him a million times not to do, but something he just keeps doing anyway.  I intervened and redirected, and I tried to make it clear to him, once and for all, that this was important. "BUD!" I said sharply. "I mean it." "You're angry, Mom?" he asked half-heartedly, barely glancing in my direction. "Yes, Bud," I
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    Life With Joey

  • Walking for the Community

    Joeymom
    16 Apr 2014 | 6:48 am
    This year, we will be a team at the Autism Acceptance Walk on April 27. The Walk is an event to support the Autism Society of Northern Virginia, and to raise money for their Intervention Assistance Fund. This is a program that provides "mini-grants" to families to help pay for therapies and services their loved ones need to function and improve their lives.In other words, we are raising money to go directly to autistic people to help them. Now.Last year, the event raised $22,000. Our goal is $500. Your support, moral and financial, is much appreciated. Let's get people the services they…
  • Twelve Years

    Joeymom
    9 Apr 2014 | 9:34 pm
    HAPPY BIRTHDAY, JOEY-BOY!!!!
  • Preparations

    Joeymom
    8 Apr 2014 | 8:38 pm
    Tomorrow is going to be a big day.I have some friends coming to help me throw a bunch of stuff in tubs, and haul it to storage. My basement is full, I have a guest room full, I'm a hoarding packrat that would make a good TV show. It's all headed to the storage, so I can go through the dozens of tubs of crap in peace. I've been through a couple dozen already, mostly sent off to the dump or the donation bin. I'll get my basement back, and can set it up for the boys. My house will have a semblance of being picked up.Sounds great, doesn't it?I've actually been working on it, box/tub by box/tub,…
  • The Logistics of Hope

    Joeymom
    4 Apr 2014 | 8:09 pm
    It's been a bit of a tangled web of a week.On Monday, Joey had a meltdown over a test. He bolted from the classroom, and was finally caught just before he hit the school parking lot. Yes, that means he left the building. He spent a lot of the day in the red zone, and even had an incident where he called a fellow bus rider an ugly name, which had to be addressed. It was not a positive day. On Tuesday, he decided at some point in the afternoon that his parents were dead. With no defenses against the intense emotion that comes with such an idea, he naturally freaked out. They caught him on the…
  • Shine On

    Joeymom
    1 Apr 2014 | 2:37 pm
    Thank you, Jill Smo. Honoring the memories of those lost, and sending hugs and prayers to their families.Our families.Joey has completely escaped his school twice in the last two days. We don't know why he is having an anxious week, but this is our reality.Please join us in the vigil to support these families. Please pay it forward.After all, it could so easily be us.
 
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    I Speak of Dreams

  • Dear Parents, You Are Being Lied To...But Who is Lying?

    Liz
    12 Apr 2014 | 12:15 pm
    There are two antivaccine posts circulating.   Each is filled with errors, misstatements, and outright falsehoods. One was posted April 7, 2014 at the Giannelloni Family Blog, under the title of "Dear Parents, You Are Being Lied To". Another was posted at the LivingWhole blog, under the title  "Dear Parents, Are You Being Lied To?".  These two anti-vaccine propaganda posts appeared in response to a post published by Jennifer Raff (PhD in anthropology and genetics) on March 25, 2014 at her blog Violent Metaphors on vaccine misinformation, called Dear Parents: You…
  • Meyer Lemon Curd

    Liz
    10 Apr 2014 | 11:06 am
    Meyer Lemon Curd   You’ll need:   A double boiler, bain marie, or McGyver-style: heat-proof bowl (metal is best, or heat-proof glass; just make sure it’s heat-proof) and a saucepan big enough to hold the bowl over, not in, simmering water.   A container for the finished lemon curd (I prefer a glass bowl)Enough plastic wrap to cover the container   1/4 pound of butter (1 stick)1 cup sugar5 eggs; you’ll be using only the yolks.4 to 6 Meyer lemons, depending on size   How to select the lemons: rub the rind and smell the fragrance. Choose the ones that are most…
  • About the National Autism Association's Big Red Safety Box: Contents, Funding, Questions

    Liz
    8 Apr 2014 | 11:49 am
    For those of you who aren't conversant with issues in the autism community, elopement or wandering off can be a high safety risk for autistic people, especially children and those who do not have much expressive oral language, or who require one-to-one (1:1) supervision for their safety and well-being.  A 2012 study in Pediatrics found that almost half of families had experienced an elopement episode. (Note: the issue of wandering in autism is itself controversial in the autism community, which is beyond the scope of this post)  In 2011, the National Autism Association…
  • Case Study: Chili's Picked an Autism Charity Poorly, and Social Media Said, "NO WAY!"

    Liz
    7 Apr 2014 | 1:24 pm
    Updated April 12, 2014 Last week, The first week of April, 2014, the restaurant chain Chili's was promoting a Give-Back Day, promising 10% of receipts would go to an organization called the National Autism Association. On Sunday, Chili's cancelled the event. Here's the story.First, Yay, Chili's! This restaurant chain has a solid track record of supporting both regional and national philanthropic campaigns, through various days or longer campaigns. The most impressive of these is Chili's support for St. Jude's Children's Research Hospital. Typically, the Chili's…
  • National Autism Association Structure and Financials

    Liz
    6 Apr 2014 | 3:13 am
    Update: I wrote this post because Chili's was planning a "Give Back" day, funding the National Autism Association for Monday, April 7, 2014. As of Sunday, April 6, 2014, that event has been cancelled. The data on NAA is still accurate. What does the National Autism Association Do? The organization's stated mission is: The mission of the National Autism Association is to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential. NAA offers funding for biomedical "interventions" for…
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    Adventures in Autism

  • I Refuse To Be Enlisted Into The "Mommy Wars"

    Ginger Taylor
    17 Apr 2014 | 10:34 am
    So the attack on vaccine resistant parents in the media this "autism awareness month" has been nothing like any of us has ever seen before.  Even Paul Offit has taken a departure from his oh so laid back and wise doctor act to get nasty on us.  Pharma needs not only for parents to be ok with the current recommended schedule, but to be open to the open ended vaccine schedule that will include the 200 or so vaccines they have in their development pipeline.  They do not want to come to terms with the fact that their market has reached it saturation point and it is all downhill…
  • Annual Birthday Fundraiser

    Ginger Taylor
    30 Jan 2014 | 8:20 pm
    As today is my 29th... I mean 34th birthday, I will celebrate me by focusing on me. If my work has been of service to you this past year, I hope you will consider putting a little birthday gift in the tip jar.Thank you for being my community and my support.  
  • New Years To Do: Opt Out of Your State Vaccine Database

    Ginger Taylor
    29 Dec 2013 | 8:30 pm
    Today the Washington Post printed a story entitled, "2013 is the year that proved your ‘paranoid’ friend right."  So now that we are all on the same page that the US government is completely run amok, is all up in in everyone's business, and that those of us who trusted that it would look out for our own good (rather than the corporate $$$ interests of their donors or their own profit and power) were naive babies... and that none of the three branches give a crap that you don't like what they are doing... let's look forward to how to avoid the next thing that they are gonna do to…
  • Vaccine Trials Course at Johns Hopkins University, Institute of Higher Brain Washing. I Mean... Learning.

    Ginger Taylor
    11 Aug 2013 | 1:47 pm
    So biomed mom Shannon Strayhorn took a class on from my alma mater, Johns Hopkins University, on vaccine trials.  She offers us a little insight into the brain washing that is taking place inside the halls of "higher learning."So I took a class this summer from Johns Hopkins on VAX trials.  The class was "Vaccine Trials: Methods and Best Practice".  I started taking as many vaccine/health/eviro health classes as possible because I think we need to approach the subject from every imaginable way. Knowing what is being taught and what kind of conversations are bring had is…
  • CDC No Longer Denying Vaccine/Autism Link?

    Ginger Taylor
    9 Aug 2013 | 7:28 pm
    So the Actual Reporter, eagle eye Sharyll Attkisson posted this note on her facebook page... and apparently CDC has had the following on their autism page on the CDC web site for 18 months:Causes and Risk FactorsWe do not know all of the causes of ASDs. However, we have learned that there are likely many causes for multiple types of ASDs. There may be many different factors that make a child more likely to have an ASD, including environmental, biologic and genetic factors.Most scientists agree that genes are one of the risk factors that can make a person more likely to develop an…
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    Kim Stagliano

  • Easter Pies!

    Kim Rossi Stagliano
    19 Apr 2014 | 6:15 pm
    I made whole milk, organic ricotta cheese yesterday. And two pies today. Delish! Happy Easter. 
  • Easter Donuts!

    Kim Rossi Stagliano
    17 Apr 2014 | 6:47 pm
    Gluten free, spinach juice dyed green. I kid thee not!
  • Give Autism A Chance Summit Austin

    Kim Rossi Stagliano
    13 Apr 2014 | 4:43 pm
    Great event! Panel format was fabulous. Thank you Autism Trust USA and Polly Tommey, Andy Wakefield and the entire team. Some photos.   Food truck fried Oreos! Rupert "Horse Boy" Isaacson. Rob Schneider. Aiden Quinn. Many friends old and new. 
  • FREE Autism Telesummit with Temple Grandin, Julie Matthews, Kim Stagliano & 12 Other Experts

    Kim Rossi Stagliano
    24 Mar 2014 | 4:12 pm
    FREE Telesummit!I hope you will consider logging  into this fantastic telesummit featuring 15 experts including  Soma Mukhopadhyay of HALO - the Rapid Prompt method (featured in a beautiful parent report story on AofA) Temple Grandin, Julie Matthews, of Nourishing Hope, yours truly and just look at the list above!   Tackle diet, behavior, communication, medical treatment, alternative treatments and so much more! It's FREE and available for 48 hours if you can't listen LIVE - plus you can purchase the teleseminar after the fact if you would like.  Register for the FREE…
  • Donuts!

    Kim Rossi Stagliano
    22 Mar 2014 | 5:24 am
 
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    Squidalicious

  • Teh Busy: Quick Update, Long List

    Shannon Des Roches Rosa
    10 Apr 2014 | 10:16 am
    I swear to you that I am still here. It's just, teh busy, these last two months. So much so that I didn't even put up perfunctory posts in reaction to luminous BlogHer co-founder Lisa Stone mentioning me and this blog on CBS This Morning a few weeks ago. BAD BLOGGER. Maybe I'll talk about that when I give my BlogHer 10x10 talk in July!Below is all the stuff I've been doing -- writing, interviews, talks, etc. What's not recorded in there is that Iz, now a sophomore in high school, is playing lacrosse and soccer, perseverating just a bit on makeup and bands, and is a better student than I ever…
  • My Public Comments for Today's IACC Meeting

    Shannon Des Roches Rosa
    8 Apr 2014 | 11:01 pm
    I missed watching the live videocast of today's Interagency Autism Coordinating Committee (IACC) meeting because Leo's (really good, details later) annual IEP was held at the same time. But as the IACC meetings are for advising on policy, and as they welcome public input both in person and submitted in writing, I submitted comments to be included in the official public meeting record.I did this to counter the anti-vaccine autism zealots who would rather put other people's kids at risk from vaccine preventable disease than face the fact that autistic people have always been here. These angry…
  • Walking the Capitol Hill Walk for Life-Saving Vaccines

    Shannon Des Roches Rosa
    18 Mar 2014 | 6:56 am
    "There is no evidence to support a vaccine-autism link, and irrefutable evidence supports vaccination as one of the best ways to protect the health and lives of children all over the world."  "In the context of global vaccine efforts, vaccine hesitancy makes no sense and rarely comes up." These two statements underscore why I speak out about the critical importance of vaccines. I've lived in a country and gone to school with people affected by polio. Trust me, no one who has the real-world experience of living in fear of vaccine-preventable diseases questions the necessity of…
  • Edinburgh Is My New Favorite City

    Shannon Des Roches Rosa
    2 Mar 2014 | 5:29 pm
    I'd not been to Edinburgh since 1990, when I was 20 years old and pregnant, and my thoughtful studying abroad brother imported me for the UK for Spring Break to get my mind off being a 20 year old pregnant college student who was having a very difficult time deciding what to do about being a 20 year old pregnant college student.I enjoyed that visit quite a lot, but I don't remember Edinburgh being quite so ... lively. And Sunny! And full of everything a easily pleased yet slightly snobbish and gustatorially-oriented person could ever want. It is my new favorite city. Look at the goods from my…
  • There's an App for When Mommy Is Away on Business

    Shannon Des Roches Rosa
    27 Feb 2014 | 12:15 pm
    I am leaving this afternoon for two weeks of whirlwind international and bi-coastal conferencing. If you're going to be at the March 5th National Autistic Society conference in Harrogate, UK, where I'll be talking iPads & apps; or at the March 7th UCSF Developmental Disabilities Conference in San Francisco, where all four TPGA editrixes, myself included, will be discussing Thinking Person's Guide to Autism, social media, community, and outreach; or at the UN Foundation's Shot@Life Champions Summit to discuss vaccine policy and outreach in Washington DC March 9 - 12, please do say hello.
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    Stimeyland

  • All Around the Internet and Maryland

    Stimey
    18 Apr 2014 | 6:08 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Lessons of Packing #1

    Stimey
    17 Apr 2014 | 8:34 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • A Big Move

    Stimey
    14 Apr 2014 | 8:00 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Hungry Cats

    Stimey
    9 Apr 2014 | 7:35 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Introducing…

    Stimey
    7 Apr 2014 | 8:32 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
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    The Quirk Factor: Resistance is futile...

  • My 1 in 68

    mommy~dearest
    2 Apr 2014 | 5:38 am
    Love this kid with all my heart. 
  • La Petite Update

    mommy~dearest
    4 Mar 2014 | 8:34 am
    No excuses, I've just been busy. And lazy. But mostly busy.Okay, so maybe a few excuses...Let's recap, shall we?First off, I love you Stimey! She gets my #1 fan award. SchoolSchool has had it's ups and downs. Rylan is doing awesome in big fat first grade. He just did his science fair project on hovercrafts. Him are smert.Let me tell you alllll about hovercrafts.....Ta-da! I'm just awesome.Jaysen is doing really well too. He's in 7th grade, and although it was a heart-wrenching move to a self-contained classroom, it's proven to be a really good thing for him. He's still getting lost, but…
  • Pssssssst......

    mommy~dearest
    4 Feb 2014 | 8:27 am
    Anyone still around?? :)
  • Go Jaysen, it's your birfday...

    mommy~dearest
    15 Oct 2013 | 6:16 am
     HAPPY 12th BIRTHDAYJAYSEN! Ipod touch. That is a happy kid, folks. We love you bunches!~xoxoxo~
  • Our Little Ray of Sunshine (Sunny)

    mommy~dearest
    11 Oct 2013 | 9:07 am
    Working with Furget Us Not Rescue, we found the newest member of our family!Furget Us Not was absolutely great. Our volunteer, Nicole, was the best. She was so helpful, understanding, and knew that a good "match" meant on both sides. Happy people + Happy pooch = Happy family.  It's not rocket surgery, folks.So, let me introduce you to Sunny!Meet the fam!  Whoa!....She is beautiful!... Sunny LOVES her ball!Big pawz.Yay walks!Lurve her!This face makes me melt....So that's…
 
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    Disability Scoop

  • Home Videos May Allow For Quicker Autism Diagnosis

    Michelle Diament
    18 Apr 2014 | 11:35 am
    Using YouTube videos, researchers say they've identified a new approach to autism screening that could significantly speed up the path to diagnosis.
  • Court: Mom Acted Wrongly In Arranging Son’s Vasectomy

    Shaun Heasley
    18 Apr 2014 | 11:15 am
    In a case centering on the rights of people with intellectual disabilities, a court has ruled that an Iowa mother overstepped when she arranged a vasectomy for her son with special needs.
  • Ranking Names Best States For Disability Services

    Michelle Diament
    16 Apr 2014 | 9:01 pm
    An annual ranking of states offering the best services for people with intellectual and developmental disabilities reveals a familiar but evolving landscape.
  • Feds Impose Stiffer ADA Penalties

    Shaun Heasley
    16 Apr 2014 | 9:58 am
    For the first time in more than a decade, the fines that the federal government can impose for violations of the Americans with Disabilities Act are set to rise.
  • Study Finds Inpatient Autism Treatment On The Rise

    Shaun Heasley
    15 Apr 2014 | 11:00 am
    The number of children with autism who are being hospitalized -- often due to mental health concerns -- is on the rise, particularly among teens with the developmental disorder.
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    Square 8

  • Code Blue

    3 Apr 2014 | 10:36 am
    How does it feel? You lit it up blue, didn’t you? I told you about Autism Speaks and how their primary goal is a world without people like me in it and how they have degraded and threatened and ignored and sued and plagiarized autistic people and how they thought nothing of saying we are not fully human, that our families are not really living, can never be happy, and we are the reason. I talked to you when I didn’t have the energy or resources to speak. I wrote to you when I had other plans and more constructive work to do. I answered your questions. I was reasonably polite, though I…
  • More about Freaks

    4 May 2012 | 8:49 am
    This is Part 2 of a series on my participation in CUNY's ESA Conferece 2012. Part 1 is here. My initial thought was to explore the meaning of “autism scholar.” What are the credentials? Does blogging count? Even if it does, I haven’t done a lot of that in a while. Do I deserve the label based on my degree or the publication of a single paper? And if so, who is being left out? What can be done to create an atmosphere of learning and shared knowledge that would expand the notion of scholarship beyond academia? What types of knowledge and learning are currently ignored or discounted? I…
  • BADD: Connecting dots

    1 May 2012 | 8:14 am
    Somebody calls autism a tragedy. Somebody kills an autistic person. Somebody doesn’t see how these two events are connected. I try to explain. I try harder. It happens again and again and again and somebody ‘splains it away.The topic here is devaluation. When it becomes commonplace to pair the words autism and tragedy, the pairing seeps deep down into the collective mind. When the puzzle piece becomes the recognized symbol for autism, the message comes over and over that there is something unfinished about the person. Something mysterious that the general public cannot be expected to…
  • Attention

    30 Apr 2012 | 10:59 am
    There’s an old Zen story: A student said to Master Ichu, “Please write for me something of great wisdom.” Master Ichu picked up his brush and wrote one word: “Attention.” The student said, “Is that all?” The master wrote, “Attention. Attention.” The student became irritable. “That doesn’t seem profound or subtle to me.” In response, Master Ichu wrote simply, “Attention. Attention. Attention.” In frustration, the student demanded, “What does this word attention mean?” Master Ichu replied, “Attention means attention.” -Beck, C.J. (1993). Nothing special:…
  • Cripples, Idiots, Lepers, and Freaks

    27 Apr 2012 | 7:38 am
    It was a different sort of autism workshop from those in which I have usually been asked to participate. The topics included video games and manga. The presenters were academics, mostly English professors. The invitation I received referred to me as an autism scholar (!) I started to think about the meaning of the word “scholar” and whether I was or wasn’t. It was a spiral of thought resembling what happens when I think about the word “autism.” I like the idea of looking at the concept of autism in different contexts. I very much like the idea of expanding the definition of…
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    Facing Autism in New Brunswick

  • Canada's Autism Disgrace 2007: 2014 Update

    H L Doherty
    19 Apr 2014 | 11:31 pm
    Photo from Ameriquebec.net In December 2007 I wrote Canada's Autism Disgrace, describing the lack of a real National Autism Strategy in Canada.  It is now 2014 and nothing has changed. Canada still lacks a real National Autism Strategy. The words I wrote in 2007, reprinted below, are as true and accurate today as they were then:What is Canada's National Autism Strategy? The answer is simple; we don't have one. And as long as Stephen Harper's Reform-Alliance-Conservative government rules Canada with an iron fist we will not have a National Autism Strategy. My friends of Conservative…
  • The Smiles Gang: Conor and LHHS Friends Had a Blast Last Night Going to See Rio 2 in 3D

    H L Doherty
    16 Apr 2014 | 6:44 am
    L to R: Jesse, Christian, Kristen, ConorPhoto by Phyllis Van Dine-Humble This is one of my new favorite pictures of Conor, far right in the picture, taken last evening as Conor and some of his Leo Hayes High School friends went to see Rio 2 in 3D. Phyllis Van Dine-Humble took this awesome shot of the gang sharing tremendous smiles and having fun before the movie.  In attendance with Conor was excellent Education Aide, Lori Fitzgerald, who helps make every experience great for Conor. 
  • Joel Rubinoff's Angry, Ill Informed, Misleading Autism Rhetoric

    H L Doherty
    13 Apr 2014 | 5:27 am
    Conor Doherty on World Autism Awareness Day 2014,  as I tried to take a "selfie" of the two of us wearing blue, gave his old Dad an unexpected hug. As in this pic, Conor brings us great joy but his autism is a disorder which restricts his life and causes him harm. Joel Rubinoff father of a high functioning, smart autistic son is angry  and he is using his position as an arts and entertainment columnist to tell Canadians that parents and organizations who disagree with his feel good views of autism need "attitude adjustments".  In Joel Rubinoff's ill…
  • Gordon Porter's Vanity And Bill 61, An Act To Amend The Education Act, Will Result in MORE EXCLUSIONARY Education Practices in New Brunswick Schools

    H L Doherty
    10 Apr 2014 | 7:54 pm
    Gordon Porter believes that inclusive education is simple. Unfortunately most teachers, the NBTA organisation itself, aides and education administrators have been bullied and intimidated into following his simple philosophy unquestioningly even though they know it flies in the face of the truth. They know that many children are present in NB schools with complex learning, behavior, cognitive and sensory challenges which render education under any label anything but simple but they dare not speak out.  More and more children are, and with the current Bill 61, An Act to Amend the Education…
  • Once Canada's Autism Wasteland Has Saskatchewan Made Any Meaningful Progress?

    H L Doherty
    7 Apr 2014 | 1:21 am
    Apparently Saskatchewan is still having difficulty providing necessary levels of early autism intervention.  I once described it in a September 2, 2007 commentary as Canada's Autism Wasteland:  Canada's Autism Wasteland To Take First Step Forward.   At the time of my commentary Saskatchewan was one of the few provinces with no intervention program for autistic children.  A recent Global News article by Amber Rockliffe, Saskatchewan Families Moving Due to Lack of Autism Funding indicates that not enough hours of intervention are being delivered to Saskatchewan's autistic…
 
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    ASF Blog

  • Thoughts on World Autism Awareness Day

    autismsciencefoundation
    2 Apr 2014 | 11:44 am
    By Peter Hotez, M.D., Ph.D. Founding Dean, National School of Tropical Medicine, Texas Children’s Hospital Endowed Chair in Tropical Pediatrics   Today is the seventh annual World Autism Awareness Day, a day when organizations committed to autism research, advocacy, or policy promote awareness through events and public discussions. As both a scientist and a father of four – one of whom is an adult child with autism (as well as other mental and physical disabilities) and a second who is actually doing her Ph.D. on the developmental psychology of autism – I am often asked to speak…
  • Hilibrand Autism Symposium: Carving a Place in the World for Young Adults With Autism Spectrum Disorders

    autismsciencefoundation
    1 Apr 2014 | 7:19 am
    Every adult wants to lead a meaningful life, and individuals with autism spectrum disorders (ASD) are no different. More and more, people with ASD are working, living, and engaging in their communities, and are being recognized for their strengths and talents. Yet the questions still remain: What do young adults with ASD need to transition to being productive members of society whose skills and interests are used and valued? How can professionals, parents, advocates, and others ensure that a place in the world is carved out for these individuals? This conference will present new research and…
  • CDC: 1 in 68 Children has an Autism Spectrum Disorder

    autismsciencefoundation
    27 Mar 2014 | 10:36 am
    The Centers for Disease Control and Prevention (CDC) today reported that 1 in 68 children is diagnosed with an autism spectrum disorder. This new estimate is roughly 30 percent higher than previous estimates reported in 2012 of 1 in 88 children. The number of children identified with ASD ranged from 1 in 175 children in Alabama to 1 in 45 children in New Jersey. For the full press release, please visit our website.Filed under: autism, autism research, prevalence
  • A Night at the MRI Machine

    autismsciencefoundation
    11 Feb 2014 | 10:08 am
    Mike Morse 10:15pm. It’s Friday night, and I have dozed off in a hallway of the Psychology Department at NYU, sitting in a chair across from a sign that says “Sleep Study in Progress – Please Be Quiet!” Behind the sign there is a little room where several Thomas the Tank Engine sheets and pillows mask its position as the waiting room in a research lab. I had just emailed a friend of mine to say that if all goes well, we’ll be finished by midnight. In the Thomas the Tank Engine room, Dimitra is currently trying to get our son Yanni to sleep. We had just read the ironic news via…
  • Autism Science Foundation Offers Travel Awards for the 2014 International Meeting For Autism Research

    autismsciencefoundation
    7 Jan 2014 | 6:27 am
    Funds will enable parents, teachers, students, individuals with autism and other stakeholders to attend leading autism research conference (January 7, 2014—New York, NY)–The Autism Science Foundation, a not-for-profit organization dedicated to supporting and funding autism research, today announced that it is offering a limited number of grants to parents of children with autism, individuals with autism, and other stakeholders to support attendance at the International Meeting for Autism Research (IMFAR), to be held in Atlanta, Georgia from May 14-17, 2014. Awards of up to $1000 can…
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    Autism Jabberwocky

  • Autism Rising : The Emperor's New Clothes

    M.J.
    30 Mar 2014 | 6:42 am
    It's that time of the year again - winter is finally starting to fade, spring is in the air, and Autism Awareness month is right around the corner.  Which means that it is time to play one of my favorite games - rationalize about the latest massive increase in the rate of autism.In case you haven't heard, the CDC just this week released the latest in its series of reports on autism prevalence.  This new report which looked at children who were eight in 2010 found that overall 1 in 68 children had a form of autism - 1 in 42 boys and 1 in 189 girls.   Since a picture is worth a…
  • ASAN on Non-Verbal Autism

    M.J.
    22 Dec 2013 | 8:17 am
    Just in time for the holidays, the Autistic Self Advocacy Network (ASAN) has put out a new video promoting its views of autism.  The video is pretty much in line with most of what they have said in the past but there is one very prominent theme that I wanted to talk about. So, first thing first, if you haven’t seen the video, go watch it here.  Did you notice how non-verbal autism was portrayed?  If you missed it, here are a few lines from the video about what it means to be non-verbal - People know what "nonverbal" means: I can't speak, so I use my computer to communicate.
  • A Tale of Two Communities

    M.J.
    19 Nov 2013 | 3:47 pm
    An inconsistency concerning Autism Speaks has been bothering me for a while now and, in light of the controversy surrounding the organization in the past week, I thought I might take this opportunity to write about it.There is this idea that I have seen repeated in numerous places online that the "autism community" isn't all that fond of Autism Speaks.  Whether it is the "pro-vaccine choice" community, the "anti-cure" "just a difference" groups, the "independents" in between, or whatever group you want to talk about, everyone seems to say that they either don't like or are ambivalent…
  • Missing the Point

    M.J.
    16 Nov 2013 | 9:17 am
    A couple of days ago an article written by Suzanne Wright appeared on the Autism Speaks blog entitled "Autism Speaks to Washington - A Call for Action".  The point of the article was that autism is not only a growing problem but one that needs a national response to solve.Parts of the autism community have been less than amused by the article.  They are currently in the middle of having a collective conniption and declared that Autism Speaks is the new incarnation of the (insert your particular incarnation of ultimate evil here). While it is possible that Autism Speaks should have…
  • Stimming

    M.J.
    18 Aug 2013 | 3:37 pm
    Stimming is harmless, right?  Maybe it is just me but it sure seems like many autism self-advocates think that stimming is something harmless or is only a problem because of other people's opinions.Here's one recent example -But people tell autistic kids not to stim in public all the time. Again and again I see conversations and articles insisting that stimming–or if they’re trying to be politically correct, certain types of stimming– isn’t appropriate public behavior.  Really? And why is that? Who exactly does stimming embarrass? Not the autistic person who’s doing…
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    AutMont

  • April is Autism Awareness Month

    1 Apr 2014 | 9:01 pm
    April is Autism Awareness Month and today is World Autism Awareness Day, April 2, 2014.  This date was adopted by the United Nations in 2007 to shine a bright blue light on Autism as a growing global health crisis. The numbers are increasing and we need to respond.  Activities and messages of awareness are designed to increase knowledge, spread information about how early intervention and diagnosis can change lives.  Autism is one of only three health issues recognized by the UN with it's own day.Each day in the month of April, this website will feature some news, story,…
  • Autism Awareness Month

    1 Apr 2014 | 7:02 pm
  • MC Transitions

    29 Jul 2013 | 7:36 pm
    MC Trans, or Montgomery County Transitions is a grassroots organization featuring discussion and e-groups for families of adults with mild to significant disabilities offering support, information, resources as the disabled individual transitions from school-age entitlements within the state of Maryland to a young adulthood and beyond.MC Trans has announced their meeting schedule for this coming fall.  I have added their meetings to our calendar, beginning with September.  Most meetings will be held on the 2nd Tuesday, exceptions will be noted.  You can read more about MC…
  • Summer Status

    5 Jul 2013 | 7:50 pm
    Greetings AutMont Readers ...I just wanted to let you all know what's happening behind the scenes here and when you should expect more posts and information. Summertime has hit me like an unexpected water-balloon to the head - my kids have busier-than-I-anticipated schedules with camp for a few morning hours every day and therapy, speech, OT, social group, home therapy and vision therapy three days a week and gymnastics and swimming lessons, throw in a vacation last month and a few visits from out of town family, a weekend or two away which is really just code for…
  • Autism Night Out

    25 Jun 2013 | 8:17 pm
    Montgomery County Police are hosting an Autism Safety Night Out event on Thursday July 25 from 6-9pm.You will have access to resources and tools to help keep kids safe, learn how to prepare for an emergency, kids can tour emergency vehicles and play in a moonbounce.  The K9 unit will be on site as well.Information will be available about Project Lifesaver, take pictures with police officers and learn about swimming lessons for special needs children.The event will be at the Montgomery County Police Academy, 9710 Great Seneca Highway, Rockville, MD 20850 from 6-9pm on Thursday July…
 
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    Autism Blogs Directory

  • Inclusion means everyone-or when special isn't special...an open letter to Special Olympics Maine

    kathleen
    11 Apr 2014 | 12:21 pm
    Cross posted from autismherd. Please share! contact info is Phil Geelhoed   PhilG@somaine.org   To whom it may concern-or Hey Person who picked the venue for today's state swim meet! I sat at the special Olympics today. It should have been wonderful.  It is not often that people with disabilities (either physical or developmental) are able to get together without judgement to participate in sporting events.But it wasn't wonderful. I sat there and quietly seethed because I knew of at least one individual who worked equally as hard-but was unable to participate. This…
  • 15, autistic and wary of awareness...

    kathleen
    29 Mar 2014 | 8:48 am
     ~"These are the things that require neither signs nor       labels. Churches, coffins, and urinals all proclaim,This is what I am.No questions asked."~ Andrew Smith~Grasshopper Jungle(cross posted from www.autismherd.blogspot.com)   Autism awareness month is about to rear it's weird head..and I have been wondering (after five plus years of blogging)- what more I could say about it. By this point everyone is aware-so, now what? Really? What does awareness mean or do anyway?  This past week-I have learned what it means to my Sam.(I didn't even know that…
  • Scott Levine's New Poetry and Podcast Interview

    K Wombles
    7 Feb 2014 | 6:41 am
    Acceptance of Autism Wanting to be freeWanting to be meTrying to make people seeAnd accept the real meSome people think my voice is too loudAnd that my mannerisms strike them as being oddThis perception of me by others keeps me feeling blueBut there are plenty of struggles in life that I must get throughI am determined to show my critics my true personalityHoping that people move away from their narrow-minded mentalitiesI want them to know that I am a bright young manWho is willing to take on as many challenges in life as I canI want to make new friends and create a new startI like to…
  • Not Okay: Autism Speaks Owes Kassiane Sibley More Than a Public Apology

    K Wombles
    25 Jan 2014 | 6:26 pm
    by Kim WomblesThe number one search term for Kassiane Sibley and Autism Speaks is a pdf file that was supposed to be removed, was removed in 2012 after the autism community lit up in justified anger that a major non-profit was violating copyright as well as the author's wishes.Whiting it out while leaving the text in the file so it would still get hits was an offensive move. Restoring the original whitewashing with a new url sometime in 2013 (according to Alyssa) is nothing short of a dick move.Despite deep reservations about the organization, for a short time I tried to work with it in my…
  • Putting Our Money Where Our Priorities Are: Our Children Deserve Better

    K Wombles
    23 Jan 2014 | 5:23 pm
    "Good teachers are to education what education is to all other professions—the indispensable element, the sunlight and oxygen, the foundation on which everything else is built." --Lowell MilkenThis is especially true when it comes to teachers for children with disabilities like autism, ADHD, and dyslexia, among other common learning and/or neurological disorders. I wouldn't be surprised if most if not all parents of special needs students haven't run up against teachers whose education was inadequate to the task, especially when are children are mainstreamed with regular education teachers.
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    Countering...

  • Rituals,Traditions and Customs: Creating Meaning

    K Wombles
    19 Apr 2014 | 7:32 pm
    After 26 years together (we met April 15, 1988 and fell for each other instantly), I've grown to embrace Rick's refusal to accept traditions just because they exist or to celebrate holidays because they are on a calendar. It took some time to get used to, since my mom loves holidays and traditions and I grew up under that mindset, but over time I've gotten to like what's replaced it: our own traditions and rituals.We don't do anything about the New Year, because, well, we're usually asleep or Rick's working and for me, the year always starts at the end of August. :)Valentine's Day...well,…
  • Out of the Mouth of Babes

    K Wombles
    12 Apr 2014 | 9:53 pm
    Our busy world keeps us from "doing the things that keep us in balance, healthy, and connected with our inner selves and our place in the world."  --SavorI think the idea of balance and that we, as women, have the right to have it takes us by surprise. And forget about an inner self. We wouldn't recognize her if we saw her.Our culture pushes the idea of women who are always on the go, and too often that's true. We're all so very busy. Our health, our well-being, goes on the back burner. It's not necessarily a martyr complex, although sometimes it is. The hardest part is believing we…
  • Nearly five weeks later...the fiercest of loves

    K Wombles
    11 Apr 2014 | 8:22 am
    Come Monday, Snapple will have been with us for five weeks--five weeks that flew by. She has integrated into the furry side of the family very well, and makes sure to love on us humans as she does with her furry brothers and sisters. Ouch. We are having to teach Snapple to not live up to her name--her little bites hurt.Not that Val minds those sharp little teeth. They love to play.As many pets as I have had over my life, it never fails to surprise me how deeply I fall for these critters,how intensely I love them.Watching Lily carry her puppy everywhere, the bond they are…
  • If Focusing Only on the Pleasant Bits Worked

    K Wombles
    10 Apr 2014 | 6:33 am
    Vonnegut, in Slaughterhouse-Five, has Billy Pilgrim talk about the Tralfamadorians' philosophy of ignoring the unpleasant times and focusing only on the positives. Pilgrim, however, is constantly being pulled back into the war and his times in Dresden. He is helpless to avoid it, although he compensates by creating a future with centerfold Montana Wildhack on a Tralfamadorian zoo where they live happily and procreate.  Wish fulfillment, lovely daydreams or schizophrenic visions?I've taught this novel for several years, and each time, I try to deepen my knowledge of Vonnegut and his…
  • Ding Ding Ding: And We Have A Winner

    K Wombles
    6 Apr 2014 | 3:07 pm
    I should have known something was awry when I got these heads, months apart, a year (2?) ago (time slips and I'm too lazy to look back through thousands of pictures to figure out how long these heads have been hanging at the foot of my bed staring at me). It should have been a huge red flag that something was wrong. A dear friend (who is great for giving me the necessary nudges I need) and I discussed it the other day on the phone and I took them down while we were still on the phone, trying to figure out why I would let them be there, staring at me, when I really didn't like them,…
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    Different Roads to Learning Blog

  • Safety, Wandering and Emergency Planning for Individuals with Autism: An Interview with Gary Weitzen of POAC and the Autism Shield Program

    Different Roads to Learning
    17 Apr 2014 | 7:25 am
    The safety of individuals with autism is an enormous concern for parents and caregivers across the country. POAC Autism Services consulted with Dennis Debbaudt to pioneer The Autism Shield Program providing safety training for police, fire fighters, and EMTs. More recently, POAC has developed a companion workshop designed for caregivers, teachers, and child study team members. Sam had a chance to talk with Gary Weitzen, Executive Director of POAC Autism Services. Gary is an excellent source of information and has been incredibly generous and proactive in sharing his experiences and…
  • 5 Essential Resources for Your ABA Program

    Different Roads to Learning
    15 Apr 2014 | 5:30 am
    Our focus here at Different Roads to Learning is always on supporting the language and social skills in children on the spectrum through evidence-based interventions. We’re staunch believers in Applied Behavior Analysis and we’ve built our extensive product line around the tools that will best support these programs. As we continue to focus on Autism Awareness this month, we asked our BCBA Sam Blanco to choose five of her go-to resources and tell us a bit about why they’re integral components in her work. This week, we’re are also offering a 15% discount* on these five essential…
  • Ready Set Play! Strategies for Modifying Games

    Different Roads to Learning
    10 Apr 2014 | 6:30 am
    In continuing our celebration of Autism Awareness Month, we’d like to share with you another article from our very own Sam Blanco, BCBA on how to modify games for learners with autism.  Sam focuses on helping educators and parents understand how to thoughtfully integrate games, toys, and technology for students with autism and other developmental delays, and here she presents a few simple, yet effective, ways of adapting every day games and toys to meet the needs to students on the spectrum. Ready Set Play! Strategies for Modifying Games by Sam Blanco, BCBA Choosing games for…
  • Pick of the Week: Early Intervention Resources

    Different Roads to Learning
    8 Apr 2014 | 8:52 am
    It’s a fact that Early Intervention leads to positive outcomes for our children. Understand the key principles of Early Intervention approaches with our two newest additions to our early intervention books, The Early Intervention Workbook and Early Intervention Every Day! These reference books cover evidence-based intervention approaches, as well as the best practices on implementation.  Buy one or both of them this week only and save 15% by using our promo code DRLEI15 at check out. The Early Intervention Workbook: Essential Practices for Quality Services was written for current…
  • Interview with Alex Jackman, Creator of “A Teen’s Guide to Autism”

    Different Roads to Learning
    4 Apr 2014 | 3:27 am
    Our consultant Sam Blanco recently had the opportunity to talk with Alex Jackman about her  video, A Teen’s Guide to Autism. Alex created this film when she was in eighth grade to educate high school students about autism. You can view the 15-minute film here. For those of you in Florida, the film is going to be showing this weekend at the Palm Beach International Film Festival in the short documentary category. There will be a Q&A afterwards. For more information, click here. Here is Sam’s interview with Alex about her experience making the film, as well as her thoughts on…
 
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    Autism News and Views

  • April 2014: Autism Awareness Month: What Have We Learned In The Last Year?

    29 Mar 2014 | 12:41 pm
    What Have We Learned In The Last Year?There's been a lot of important and significant news affecting individuals with Autism in the past year.  Let's take a few moments to review some of these developments:Last February, a new APP became available for parents of children with Autism. The APP---"My Socius"---was designed to be a digital tutor for parents. The APP is available by calling 402.423.2444. Cost: $24.99.iSTAR program at the University of Utah developed a unique program teaching students with Autism how to use computers in 3-D modeling.TheJournal of the American Medical…
  • What You Should Know About The Myths Of Autism

    19 Feb 2014 | 6:36 pm
    Autism MythsIt's unfortunate there are countless myths about autism. For example, people with autism are aggressive is one common myth. Another myth supposes people with autism are all geniuses. Let's put some of these myths to rest now:People with autism are aggressive. While there are some individuals with autism who exhibit aggressive behaviors, most do not. Like most people, individuals with autism may get angry on occasion because of some type of discomfort. They may also feel frustrated because of their inability to communicate.Individuals with autism are a danger to society, to…
  • Some Of The Best Autism Blogs For 2013; Staggering Cost Of Autism For Families; Noise: What Is It Good For?

    19 Jan 2014 | 5:46 pm
    Autism Is Not A Tragedy. Being Judged Is...Author UnknownSome Outstanding Autism Blogs For 2013While there are many good blogs on autism (allow me to add---like this one), we are also fortunate to be rich in the availability of diverse blogs targeting autism.The following is a list of some of the best blogs on the subject of autism:John Elder RobisonAutism From A Father's Point Of ViewFighting Monsters With Rubber SwordsThe Third GlanceJust StimmingAsperkidsHope Saves The DayBig Daddy AutismMostly True StuffAutism DaddyAnybody Want A Peanut?BabbleFamilies Can Be Overwhelmed By The Cost Of…
  • LEGOS Improve Social Skills In Children With Autism; Cell Types + Regions Of The Brain Identified In Autism

    3 Dec 2013 | 6:14 pm
    The Benefits Of LEGOS For Children With AutismRecent research at the University Of Cambridge found that LEGOS play therapy improves social skills in children with autism. The researches found LEGOS therapy groups encourage collaboration, pretending and non-verbal communication. Autism Daily NewscastYale University And UCSF Pinpoint Cell Types And Brain Regions Affected By Autism Gene MutationsHistorically, it's been difficult to target the genetic causes of autism considering several hundred genes have been linked to autism spectrum disorders.But a new study by researchers at Yale…
  • New Blood Test Hopes To Diagnose Autism Early; Motor Development Important; Hit The Pool

    17 Oct 2013 | 5:54 pm
    New Blood Test In Diagnosing Autism EarlyThe average age of children diagnosed early with autism is now 4. This may soon change. Diagnosing children earlier can get children treatment earlier. The earlier the treatment; the better the outcome.Emory University researchers in Atlanta, GA, and 20 other universities nationwide have recently joined clinical trials to evaluate blood tests that could diagnose autism as early as 12 months to 2 years old. AthensOnlineImportance Of Motor DevelopmentStudies published in Research In Autism Spectrum Disorders found toddlers and pre-school children…
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    Asperger's Diary

  • Using Structure To Help Autistic Kids Build Flexibility

    Lynne Soraya
    31 Mar 2014 | 8:42 am
    A few weeks ago, during a weekly Twitter chat that I host about autism, a mother of an adult on the spectrum mentioned how, when her daughter was a child, structure had been crucial in helping her to learn flexibility. It sounds like an oxymoron, but I found it to be absolutely true in my life as well.read more
  • Autism and Exercise

    Lynne Soraya
    9 Mar 2014 | 5:14 pm
    I’ve spent years now trying to deconstruct why certain experiences and environments growing up affected me the way they did, pro and con. Activity came up again and again in those analyses, but I could never pinpoint exactly why. A recent blog post shed some light on why that is. read more
  • Acceptance, Empathy and Presuming Competence

    Lynne Soraya
    31 Jan 2014 | 7:07 pm
    When a child has a diagnosis or difference, it’s easy to get caught up in treatments and therapies to the exclusion of everything else. But my experience is the right attitude can have just as much impact. It shapes how you relate to the child, and how they relate to you. Most importantly, it shapes how they feel about themselves.read more
  • Early Memory and Autism

    Lynne Soraya
    30 Dec 2013 | 4:51 pm
    In a recent Psychology today post, Arthur J. Clark, Ed.D. asks “Why are early recollections sparse and prosaic?” This caught my attention, because my early memories are not sparse at all. Dr. Clark mentions that most people can recall only four or five memories which occurred prior to the age of seven. I came up with more than three times that in a matter of seconds.read more
  • Talking About Trauma Part 3

    Lynne Soraya
    30 Nov 2013 | 6:55 pm
    Earlier this year, a video clip went viral. Taken at Comicpalooza in Houston, Texas, it took on topics one wouldn't have expected for such a venue — domestic violence and trauma. And it touched a lot of hearts in the process.read more
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    Prosper with Aspergers

  • Could Desk Research Be a Good Fit for Adults with Aspergers?

    Stephen Borgman
    14 Apr 2014 | 8:00 am
    I was a senior in college.  Halfway through my year, I was hit with a wave of panic.  I had no idea what I wanted, really, to major in! I didn’t know what career I wanted to embark on! I had majored in Anthropology and Sociology, but had no idea what I could do with that. I decided to take a course in Psychology, and the rest was History! Just as I had overlooked Psychology as a key field I was both interested in and good at, I’m hoping some of you will consider research as a path to potential careers for Aspergers adults. Desk research is a type of research that analyzes…
  • Famous People With Autism: The Magical Tim Ellis

    Stephen Borgman
    7 Apr 2014 | 12:03 pm
    People used to ask me, “Who’s your hero?” I used to think, and think, and think…. But I couldn’t think of anyone! Recently, my son also had an assignment in one of his classes, to come up with a portrait and character sketch about one of his heroes.  He chose himself! I used to wonder why people made such a big deal about having heroes. One of my best college friends had a notebook full of heroes.  He cut out their pictures, listened to their speeches, read their books, and studied them.  Years later, he’s become   like them, and even surpassed those…
  • How To Work From Home

    Stephen Borgman
    31 Mar 2014 | 9:00 am
    A young man I know recently started a new job with a Fortune 500 Company. Prior to this job, he had a number of positions that went well, but didn’t last.  This young man doesn’t have Aspergers, but he does struggle at times with interpersonal communication. One of his relatives knew someone at this Fortune 500 Company, explained his son’s skill set (he is very good with technology), and disclosed some of his son’s interpersonal communication difficulties. The person at this company helped this young man land a contracting job.  He works from home, with flexible hours, and so far it…
  • How To Stop Procrastinating

    Stephen Borgman
    4 Mar 2014 | 9:00 am
    “Procrastination makes easy things hard, hard things harder.” Mason Cooley It’s easy to rip a sheet of paper in half.  But place one hundred sheets of paper together, and you’ll have a very hard time cutting that stack of paper in half. Just as it’s easy to rip one sheet of paper, procrastination is like letting one sheet of paper fall on top of another, and then trying to tear the stack in half after 100 sheets have fallen, one on top of the other. Procrastination.  Saying, and reading, and writing the word produces a sense of uncomfortable dread in the pit of…
  • Have a Job Interview You Can Be Proud Of

    Stephen Borgman
    18 Feb 2014 | 6:00 am
    It was my first corporate job.  I went to lunch with some co-workers at the company cafeteria. I had meat, mashed potatoes, and gravy for my lunch.  As I walked to the table, I placed my tray on the table, leaning over as I did so. And my fancy tie dropped its tip neatly into the lake of gravy in the middle of the mashed potatoes! I could feel the blood rush to my face as I saw the huge gravy stain on my tie and the amusement of my co-workers. Going on a job interview can be like dipping your tie in gravy – if you’re not thinking, you can make some mistakes and feel quite…
 
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    From Inside the Puzzle: Raising a Child with Autism Blog

  • More Communication Surprises

    Devon Alley
    15 Apr 2014 | 8:12 am
    A little over a week ago, I could hear A. talking in her room. She was sitting in front of the computer, but it seemed like she was having a conversation with someone. Being the nosy mother that I am, I poked my head into her bedroom to investigate. "Who...(read more)
  • Teenagers Need Their Sleep

    Devon Alley
    8 Apr 2014 | 5:06 am
    A.'s sleeping patterns have really changed over the past year. For as long as I could remember, A. has always been an early bird. Even when she would have the opportunity to stay up really late (especially when visiting relatives) she would still generally...(read more)
  • Spring Break

    Devon Alley
    1 Apr 2014 | 6:17 am
    Last week was A.'s Spring Break. On the one hand, she was really excited and enjoyed having an entire week off where she didn't have to worry about going to school. On the other hand, she was a little disappointed that she really didn't get to do anything...(read more)
  • Not Your Typical Weekend

    Devon Alley
    12 Mar 2014 | 6:21 am
    So, A. had a pretty adventurous and rather momentous weekend. On Friday evening, two of her friends stopped by for a small slumber party. She'd invited a few more girls, but they were not able to make it due to family obligations. The two who showed up...(read more)
  • Middle School Theatre Production

    Devon Alley
    10 Mar 2014 | 10:18 am
    When I returned from my big conference in February, I was able to look forward to the middle school production of The Wizard of Oz, in which A. got to play the role of the Door Keeper. What door keeper, you might ask? The one who was at the gate to Oz,...(read more)
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    The Autism News

  • Enquêtes Extraordinaire – L’autiste est en fuite “Gordon PAGE Jr.”

    The Autism News
    18 Apr 2014 | 8:04 am
    By EnquetExtraordinaire (YouTube) Après d’innombrables erreurs de diagnostic, Gordon PAGE est reconnu autiste par les médecins. Il est trop tard, Gordon s’est enfui d’un centre de traitement, et il erre aujourd’hui à travers le pays, à la recherche de lui-même. Read the full articleRead the full article on a new tab Source: https://www.youtube.com/watch?v=jBECXjS8eLs
  • Autisme : les antidépresseurs durant la grossesse de nouveau pointés du doigt

    The Autism News
    18 Apr 2014 | 7:49 am
    By Sophie Bartczak | Le Point.fr Lorsque les femmes enceintes prennent des antidépresseurs, les risques de troubles autistiques pour leur enfant seraient multipliés par trois, selon une nouvelle étude.En France, un enfant sur cent naîtrait avec un trouble du spectre autistique. Aux États-Unis, ce serait désormais un enfant sur 68 qui serait concerné, d’après une récente étude soulignant une augmentation des cas de 30 % en deux ans. Alors que la prévalence de cette maladie augmente à un rythme inquiétant dans tous les pays occidentaux, les recherches se multiplient pour…
  • Enfants sous Ritaline, futurs adultes sous Prozac ?

    The Autism News
    18 Apr 2014 | 7:40 am
    By Bénédicte Cart | Contrepoints Une épidémie récente chez l’enfant, le TDA-H, fait l’objet d’interrogations et d’études. Un mal à quatre lettres s’étend dans notre société : le TDA-H, une épidémie récente qui fait l’objet d’interrogations, d’études et de commentaires nombreux. Le dernier en date que j’ai lu étant un article paru le mois dernier par Le Figaro Madame : « Nos enfants sont-ils devenus fous ? » Ces enfants, diagnostiqués TDA-H (trouble de l’attention avec ou sans hyperactivité), « sont-ils des Town Sawyers d’aujourd’hui qui ne comblent…
  • ¿Cómo identificar el autismo en nuestos hijos?

    The Autism News
    18 Apr 2014 | 7:36 am
    By Univision San Diego (YouTube) Entravision)SAN DIEGO-Continuamos reconociendo el mes de la concientización de autismo y como identificarla para poder ayudar a nuestros hijos, nos acompaña Juan León co-fundador de la organización no lucrativa de Autism Research “NFAR” Read the full articleRead the full article on a new tab Source: https://www.youtube.com/watch?v=Ok4VpgG47gE
  • Elaboran guía para ayudar a detectar el autismo en la primera infancia

    The Autism News
    18 Apr 2014 | 7:33 am
    By rosario3.com El aleteo de manos, el retraso para empezar a hablar y la falta de interés para interectuar con otros niños pueden advertir a los padres de que su hijo tiene autismo, según precisa una guía elaborada por el Ministerio de Salud bonaerense Hoy se estima que uno de cada 88 chicos tiene algún tipo de Trastorno del Espectro Autista (TEA), un conjunto de discapacidades del desarrollo. Estos cuadros requieren que tanto las familias, los educadores como los pediatras estén atentos: cuanto antes lo detecten, mejores resultados se obtendrán a la hora de integrar a esos chicos a…
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    We Go With Him

  • Finally, Spring Break

    autismvox
    19 Apr 2014 | 12:39 pm
    Charlie is now on Spring Break. Hee's been anticipating it for the past three weeks, with a surge of worry this past week (as manifested...
  • Working Papers

    autismvox
    16 Apr 2014 | 7:29 am
    Charlie is starting in the Workability program (last Friday, his job was to clean up the Richmond auditorium). On Monday, Jim texted me (I was...
  • If You Ride a Bike For Miles and Miles and Miles and Miles

    autismvox
    12 Apr 2014 | 11:20 pm
    After a bike (Charlie's bike, in particular) has been ridden for thousands and thousands of miles, it is inevitable that it shows some signs of...
  • Musa, mihi causas memora

    autismvox
    6 Apr 2014 | 10:09 pm
    Two bike rides is the standard on our weekends. Saturday, over one bridge to Marin County and then over the Golden Gate to San Francisco...
  • Student of the Month! and Charlie on Everyday Health

    autismvox
    2 Apr 2014 | 10:29 am
    Charlie has been named Student of the Month for March at his school! A piece I wrote, Charlie in Autismland: A Lesson in Parenthood, was...
 
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    Autism from a Father's Point of View

  • This is what happens when the Minecraft community accepts the challenge – autism, bullying

    Stuart Duncan
    31 Mar 2014 | 6:31 am
    Hi, I’m AutismFather. Well, that’s what I’m known as in Minecraft. I recently created a Minecraft server for children with autism and their families. Due to its crazy success and the incredible amount of stories from those children about how often they’re bullied, not just in real life but on other Minecraft servers, I put out a challenge to the Minecraft community to speak up and take a stand against bullying on April 2nd, Autism Awareness Day. Most people seem to believe bullying can’t be stopped and that it’s just a regular part of growing up or that…
  • What if I fail even just one time – on Minecraft, autism, bullying and suicide

    Stuart Duncan
    25 Mar 2014 | 8:39 am
    I wrote recently, a plea to the Minecraft community from the autism community for help on April 2nd because I had received not one but two messages from children that were ready to take that final action, suicide. They’re both great kids but their lives are plagued by bullies. It affected me, I became emotional and that post was the result. Click for full size Monday morning, the start of a brand new week and first thing in the morning, another child was on the server, demolishing his buildings, giving away all his belongings and talking of committing suicide. The difference this time…
  • Destroying the term “special needs”

    Stuart Duncan
    24 Mar 2014 | 7:48 am
    “Special needs children” is the all encompassing term used to describe all children that have a disability or disorder. What it implies is, and this is where people start to see “special needs” people as a burden, is that special accommodations are needed just to make life easier for “special needs” people. An example of this is when a library spends a bunch of money to put in a ramp along side their entrance stairs so that a person in a wheelchair can get in. An architect, disability specialist/advocate, contractor, construction team and a whole host of…
  • This is a plea to the Minecraft community from the autism community for help on April 2nd.

    Stuart Duncan
    19 Mar 2014 | 12:24 pm
    Creeper On your Dessssssktop 2by BrotherPrime This is a plea to the Minecraft Community from myself and the Autism Community, whether you are with Mojang, or you create videos for Youtube, do live streams or just play on servers with other people, I beg you for just a moment of your time. Recent studies show that children with autism are 4 times more likely to be bullied than anyone else. And although research can’t ever rate such a thing, I can assure you that the severity of the bullying is far worse as well. These studies are done in schools and playgrounds. But if I were to guess,…
  • When you have a teenager sibling that is driving you crazy

    Stuart Duncan
    18 Mar 2014 | 8:29 am
    I received a request for advice recently from a rather frustrated sibling who’s brother seemed to be doing well… until he hit puberty. Since then he’s peaked, maybe regressed, diet went downhill and has become aggressive, with yelling and breaking things. If only I could say that the teenage years are supposed to go smoothly… if only I could say that there was some kind of therapy, or words of wisdom or even a pill that could make it so that everything would settle down and… and be normal. And I’m still talking about a neurotypical teen here. It’s…
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    Living With Autism: A Parent's Perspective

  • Must Have Marvin Review and Giveaway

    Carl Bainbridge
    23 Mar 2014 | 4:13 pm
    “Disclosure (in accordance with the FTC’s 16 CFR, Part 255: “Guides Concerning the Use of Endorsements and Testimonials in Advertising): Many thanks to Propeller Consulting, LLC for providing this prize for the giveaway. Choice of winners and opinions are 100% my own and not influenced by monetary compensation. I did receive a sample of the product in exchange for this review and post. About Must-Have Marvin! The second title in the Shine Bright Kids series, Must Have Marvin! teaches children that […] The post Must Have Marvin Review and Giveaway appeared first on Living With…
  • Eyes Of The Sage by Peter J Ochs II Book Review

    Carl Bainbridge
    16 Mar 2014 | 4:01 pm
    Disclosure: I got a copy of Eyes Of The Sage as part of an advertorial. I am largely a sci-fi/fantasy reader and tend to actually stick away from historical fiction. This particular book actually caught my attention simply because it was not your normal historical fiction book. Eyes of the Sage is a journey through the eyes of a group of scientists as they finish the work of one of their colleagues and work to find a vanished society.  The […] The post Eyes Of The Sage by Peter J Ochs II Book Review appeared first on Living With Autism: A Parent's Perspective.
  • Veronica Mars DVD Giveaway

    Carl Bainbridge
    16 Mar 2014 | 11:40 am
        On the eve of graduating law school, Veronica Mars has put Neptune and her amateur sleuthing days behind her. While interviewing at high-end New York law firms, Veronica Mars gets a call from her ex-boyfriend Logan who has been accused of murder. Veronica heads back to Neptune just to help Logan find an attorney, but when things don’t seem right with how Logan’s case is perceived and handled, Veronica finds herself being pulled back into a life she […] The post Veronica Mars DVD Giveaway appeared first on Living With Autism: A Parent's Perspective.
  • Mouse And Mole Review and Giveaway

    Carl Bainbridge
    2 Mar 2014 | 3:17 pm
    Disclosure: I got this product as part of an advertorial.   Adventures Of Mouse And Mole This DVD is a collection of little clips that are short enough to keep a child’s attention, while interesting enough to keep the older kids watching. The little clips are small full episodes, that I found were a mixture of humour with little life lessons mixed in. The kids totally enjoyed the episodes and sat through the entire DVD enjoying the show. There are two DVDs in […] The post Mouse And Mole Review and Giveaway appeared first on Living With Autism: A Parent's Perspective.
  • Warner Brothers Month Of Love DVD Giveaway

    Carl Bainbridge
    16 Feb 2014 | 10:01 am
    Warner Home Entertainment supplied the materials to me to conduct this giveaway.  Winners are chosen at random and all opinions are my own and not influenced my monetary compensation. February is the one month of the year where everyone has love on their minds! It’s can be romantic, it can be love for your children or parents or you could just be a movie lover! Whatever you love, this February Warner Bros. has you covered with some amazing DVDs perfect for […] The post Warner Brothers Month Of Love DVD Giveaway appeared first on Living With Autism: A Parent's Perspective.
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    Young Autistic Female

  • The Significance of Me

    15 Apr 2014 | 12:40 pm
    I am very happy.  I have a lot to be thankful for, and I do feel like I have been blessed in so many ways.Images like this make me remember how insignificant I am, but then I think that, out of all the people in all the places, out of all the lifeforms wherever they are, isn't is pretty remarkable that I am me?Now. Here. This. is an amazing musical that played at the Vineyard Theatre in New York.  If you like musical theatre - which I do, and many of my friends do - this is one you need to check out.  Heck, if you like musical theatre, you've already heard the whole OCR…
  • I'm Not Always Clueless

    14 Apr 2014 | 5:33 pm
    This is kind of an important post. Well, for me it's an important post. For me, it's an important concept. I was diagnosed with autism when I was 9 years old.  I have been Autistic my whole life.  I was Autistic yesterday, I am Autistic today, and I will be Autistic tomorrow.  That is not a difficult thing for most people to understand. Being Autistic has challenges.  People understand that. Sometimes, I don't understand everything that's said to me, or everything that happens around me.  Sometimes I need a bit of extra help.  People understand this.  And…
  • 100 Unique Names

    13 Apr 2014 | 9:17 am
    I recently posted this about my name obsession.  I love names.  I have Asperger's Syndrome and, characteristic of Asperger's Syndrome, I make lists and I have strange passions.  My first passion was names.  Making lists of names has been my passion since before kindergarten. I collected a bunch of "new" names recently into a list of over a thousand names, and thought I'd pick out 50 of the top female and male names that really stand out to me from that list.  I posted a handful of each here, but of course a handful of names is never enough for me. FEMININE…
  • Recent Name List With Some New Interesting Names

    12 Apr 2014 | 9:12 pm
    This is ten pages of a name list I started a few days ago. This is the Microsoft Word transcription of the list.  On Excel, it's 214 columns with rows filled out to L.  Does that mean anything to you?  Probably not.  But to me, that's something.  To me, that's kind of important. I really like name lists.  From this list, a selection of some of my favorite names are:For girls: Grejsa, Cerelia, Clarity, Phillida, Ellenore, Thandie, Bijou, Tonli, Hestia, Ceridwen, Maevis, Jerusalem, Aurora, Keturah, Keziah, Merrilla, Sonet, Linnea, Lyneth, Delynne, Modest, Honor,…
  • How To Study For Exams

    11 Apr 2014 | 7:21 pm
    I actually enjoy tests.  Sure, I find them stressful -- sometimes really stressful -- but I usually do well and I do enjoy how satisfying it feels to show my knowledge and succeed in something.  It feels really good to get a good mark -- even a decent mark -- and be proud of something I've accomplished. Read the textbook.This is a hard one for a lot of people, including me, but it's really important to read the textbook for your course if you're going to do ensure your success on the exam.  Here's the thing: someone decided that the textbook would be a good idea.
 
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    Around the Autism Spectrum

  • Temple Grandin speaking at Las Positas

    Patricia Robinson
    31 Mar 2014 | 11:55 am
    For those of you who are long time readers of this blog, I'm sure you've seen plenty of posts about Dr. Temple Grandin. Temple Grandin is probably the more well know autistic individual in the country.And now, you can see her in person. Dr Temple Grandin will be speaking at Las Positas College on Thursday, April 24, 2014, at 7 pm. You can get more information and purchase tickets by going to the post on the Las Positas site.
  • Can I call myself a blogger if I never write my blog?

    Patricia Robinson
    25 Feb 2014 | 4:02 pm
    In the grand scheme, that’s not an important question. But, in its own trivial sense, it does touch on the ideas of semantics, language, identity. And those are issues of importance. I just read a whole series of articles on “people-first language.” An example of people-first language is “person with autism” rather than “autistic person” There are good arguments to be made for both preferences. Person-first language emphasizes the individual, rather than the diagnosis. People-first language is often advocated by disability rights organizations as a more respectful form of…
  • Time to Think about Summer Camps!

    Patricia Robinson
    17 Feb 2014 | 3:16 pm
    It's well known that kids on the autism spectrum struggle with generalizing learning from one setting to another. Simon Baron-Cohen explains this by way of the extreme systemizing theory of autism, where autistic individuals set up rules to understand the world, and those rules don't easily generalize from one situation to another. I think this difficulty is clearly apparent in social situations. So often, I've worked with children who could teach the content of a social skills class, yet they struggle to apply those same skills in any meaningful way in their own lives.That's why I like to…
  • Bay Area Parent Support Group

    Patricia Robinson
    3 Oct 2013 | 5:12 pm
    There is a new support group forming in Walnut Creek, CA for parents of Middle and High School age kids with Asperger's or Autism Spectrum Disorders. The first meeting is October 9, 2013, at 7 pm, at John Muir Hospital. See the flyer below for more information.  
  • ADHD Parent Support Group in Walnut Creek

    Patricia Robinson
    4 Sep 2013 | 9:29 pm
    I just got this notice, and I'm really excited that this is available to local families:We are pleased to announce a new CHADD Parent Support Group in Walnut Creek, beginning this month. Let's start off the new school year with tips and tools to help your child be successful. WHAT:  Parent Support Group (drop-in). The purpose of our group is to develop and foster positive skills for parents of children with ADHD.WHEN:2nd Wednesday of every month from 6:30 - 8:00pm; next meeting is Sept. 11th   WHERE:Kaiser Mental Health Bldg., 710 S. Broadway, Walnut Creek  (the…
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