Autism

  • Most Topular Stories

  • The medical odyssey of an undiagnosed child

    Autism News From Medical News Today
    22 Jul 2015 | 1:00 am
    Discovery by Tel Aviv University, Antwerp University researchers of the mutations of a neuroprotective protein finds expression in the story of a 7-year-old patientChildren born with...
  • Rising autism prevalence 'driven by changes in classification'

    Autism News From Medical News Today
    25 Jul 2015 | 12:00 am
    Between 2000 and 2010, rates of autism have tripled. However, a new study suggests that this rise is largely due to changes in intellectual disability categorization in the US.
  • Where are Pan, Public Health Community, Politicians, Media, Neurodiversity Proponents as THREE Kids with Autism Wander and Die?

    AGE OF AUTISM
    Age of Autism
    27 Jul 2015 | 2:45 am
    By Kim Stagliano Where is Dr. Richard Pan? Where is Dr. Paul Offit? Where is Dr. Tom Insel? Where is Nancy Snyderman? Where is Emily Willingham? Where is Liz Szabo Where is Anderson Cooper? Where is Jimmy Kimmel? Where is...
  • Experimental drug treatment for Rett syndrome suggests disorder is reversible, mouse study shows

    Autism News -- ScienceDaily
    27 Jul 2015 | 3:02 pm
    A strikingly new approach for treating Rett syndrome has been developed by scientists, a devastating autism spectrum disorder. In their report, the researchers demonstrate that treatment with small-molecule drug candidates significantly extends lifespan in male mice that model Rett and ameliorates several behavioral symptoms in females.
  • Japan 2015- Getting Ready to Go!!

    Life in the New Republic
    The Jedi Family of Blogs
    5 Jul 2015 | 10:52 am
    On July 8th Charlie, Brendan & I will head back to Japan. We will spend a week in Tokyo, a week in Kyoto, & then the final week back in Tokyo. This year we decided to rent a house in Kyoto and invite friends from around Japan to visit us over a holiday weekend in mid-July, rather than zoom around ourselves. We know at least 2 families of friends will be able to visit us there, & we are psyched! We also plan to visit Nara for the first time this trip, & re-acquaint ourselves with some favourite places, like Uji.We are packing and doing the last-minute planning as I type this. I…
 
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    AGE OF AUTISM

  • Where are Pan, Public Health Community, Politicians, Media, Neurodiversity Proponents as THREE Kids with Autism Wander and Die?

    Age of Autism
    27 Jul 2015 | 2:45 am
    By Kim Stagliano Where is Dr. Richard Pan? Where is Dr. Paul Offit? Where is Dr. Tom Insel? Where is Nancy Snyderman? Where is Emily Willingham? Where is Liz Szabo Where is Anderson Cooper? Where is Jimmy Kimmel? Where is...
  • CDC Whistleblower Story Buried Alive

    Age of Autism
    27 Jul 2015 | 2:44 am
    By Anne Dachel I was talking with Ken Stoller, a San Francisco physician and expert in hyperbaric oxygen treatment, about how Congress needs to move on the whistleblower story and how the media is already trying to discredit it, The...
  • 5 Reasons to Watch Trace Amounts

    Age of Autism
    26 Jul 2015 | 2:45 am
    By Fiona Jameson Mom’s helping Ronan this evening. He’s had a few seizures. So, while she’s staying close by his side, I thought I’d help her get a Sunday post ready. I saw Trace Amounts when Eric Gladen was in...
  • Pfood Pharma and The Right to Know and No

    Age of Autism
    25 Jul 2015 | 2:45 am
    Pfood and Pharma have "most favored industry" status in America at this time. Used to be the oil industry, the war machine and its tech/aviation/ship building companies. Used to be the auto industry. Tobacco. No more. Pfood and pharma are...
  • AofA Book Contest: Victory Over Autism

    Age of Autism
    25 Jul 2015 | 2:44 am
    We're happy to share a new book from our friends at Skyhorse Publishing called "Victory over Autism" by Mary Romaniec. Perhaps you heard Mary speak at Autism One last month? We have a copy of her book for one lucky...
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    Autism News -- ScienceDaily

  • Experimental drug treatment for Rett syndrome suggests disorder is reversible, mouse study shows

    27 Jul 2015 | 3:02 pm
    A strikingly new approach for treating Rett syndrome has been developed by scientists, a devastating autism spectrum disorder. In their report, the researchers demonstrate that treatment with small-molecule drug candidates significantly extends lifespan in male mice that model Rett and ameliorates several behavioral symptoms in females.
  • It don't mean a thing if the brain ain't got that swing

    27 Jul 2015 | 10:08 am
    Like Duke Ellington's 1931 jazz standard, the human brain improvises while its rhythm section keeps up a steady beat. But when it comes to taking on intellectually challenging tasks, groups of neurons tune in to one another for a fraction of a second and harmonize, then go back to improvising, according to new research.
  • Predicting whether children with DiGeorge syndrome will develop autism or psychosis

    27 Jul 2015 | 6:26 am
    New findings are the first to suggest a potential way to predict whether children with DiGeorge syndrome will develop one of two mental impairments. The researchers report having isolated specific genetic differences between people with the syndrome who have autism and those who have psychosis.
  • Premature birth linked to withdrawn personality

    24 Jul 2015 | 5:25 am
    Adults born very premature are more likely to be socially withdrawn and display signs of autism, research shows. The results showed that the adults born very preterm scored highly for displaying a socially withdrawn personality, indicated by autistic features, neuroticism, introversion and decreased risk taking.
  • Expert panel sets nutrition guidelines to manage GI symptoms in autism

    23 Jul 2015 | 8:13 am
    A new guideline for the nutrition of management gastrointestinal symptoms in children with autism spectrum disorders provides a framework for clinicians to navigate frequently seen issues such as food selectivity, alternative diets and nutritional deficits.
 
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    Life in the New Republic

  • Japan 2015- Getting Ready to Go!!

    The Jedi Family of Blogs
    5 Jul 2015 | 10:52 am
    On July 8th Charlie, Brendan & I will head back to Japan. We will spend a week in Tokyo, a week in Kyoto, & then the final week back in Tokyo. This year we decided to rent a house in Kyoto and invite friends from around Japan to visit us over a holiday weekend in mid-July, rather than zoom around ourselves. We know at least 2 families of friends will be able to visit us there, & we are psyched! We also plan to visit Nara for the first time this trip, & re-acquaint ourselves with some favourite places, like Uji.We are packing and doing the last-minute planning as I type this. I…
  • Home again.....?

    The Jedi Family of Blogs
    9 May 2009 | 8:03 am
    Yes, we've been home for a little over a week! The transition has been complicated by all of us catching an annoying cold (even Charlie, who usually doesn't succumb). I started out with it a week ago, & it's definitely prolonged my usual post-travel, um, dislocation in place & time (that's the only way I can describe it). Brendan was coughing & blowing his nose by Wednesday night (& was up a considerable amount of it) so I kept him home from school Thursday. This certainly didn't help his transition back to normal life. Charlie came home from work Thursday & pulled a box of zinc lozenges out…
  • Japan 2009- Tuesday, April 28

    The Jedi Family of Blogs
    28 Apr 2009 | 10:40 pm
    When we decided to take a couple days in San Francisco to recuperate on our way back to the east coast of the US, I was worried that I might feel bad about not being HOME YET after all of our travels. As it turns out, it really was a good decision. Not only didn’t we go through customs after being up more than 24 hours, as happened last time (aka: hell), but it all still feels vacationy, in a woozy sort of way.After worrying about sleeping last night, & waking up at 4:45 am... I fell right back to sleep & slept until 10:00, & Brendan did, too :) Charlie had to get us up so we wouldn’t…
  • Japan 2009: Monday April 27th

    The Jedi Family of Blogs
    28 Apr 2009 | 4:48 pm
    I’m writing this from Japan- we’re hanging around waiting for a taxi to take us to Nishi-Nippori station to catch the Keisei Line train to Narita Airport. This station is exactly where we arrived in Tokyo, so it’ll feel like we’ve come full-circle. Charlie was able to change traveler’s cheques this morning when the banks opened, so we have taxi & train fare :) Brendan & I watched some more NHK tv shows- including a full episode of Pythagoras Switch, which was a real treat. Now they’re working on Brendan’s research- looking at the ways you can distinguish Shinto Shrines from…
  • Japan 2009: Sunday, April 26th

    The Jedi Family of Blogs
    27 Apr 2009 | 1:47 pm
    Brendan & I were sure to be up early today, since our favourite tokusatsu shows were on, but we weren’t sure exactly when, so we turned on the tv at 7:00 am. Our first show- Samurai Sentai Shinkenger- was on at 7:30 & it was a lot of fun to see in real time, on a big tv (at home we usually watch it on a laptop). Kamen Rider Decade was on right after. Luckily, we had only missed one episode of each, so we were able to keep up with the story. It was a lot of fun to watch our shows together in Japan :) The day was sunny & looked to be a lovely day for a day on the town. I did some last-minute…
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    Reports from a Resident Alien

  • Divide and Conquer

    Lisa D.
    27 Jul 2015 | 10:14 am
    I really wish autistic people who can talk and live on their own would stop trying to distance themselves from the autistic people who can't do those things... It frustrates me that they're still kind of buying into the idea that "I'm autistic but it's okay because I'm smart"... because that buys into the idea of ranking people's worth by their abilities.I want autism rights to stop emphasizing our talents or our disabilities, and start talking about what we want, what we need, what our lives are really like. It just makes me really sad when I hear somebody say, "It's okay that I'm autistic,…
  • Still God's Children

    Lisa D.
    27 Jun 2015 | 7:05 am
    A friend of mine recently expressed that they disagreed with the recent decision allowing same-sex marriage in all states. I'm re-posting my response here...I disagree with you on this one... I understand that some people believe that loving someone of the same sex is a sin, but I don't think the government should be denying marriage to any adult capable of entering into a legal contract. Gay couples have really been suffering when they cannot marry. They've been barred from the ICU when their partner is desperately ill; their children have been sent to foster care when one partner dies…
  • A four-dimensional cat.

    Lisa D.
    2 Jun 2015 | 10:23 am
    You want to experience the way my brain works?Picture a four-dimensional cat.That's what my brain got up to last night. It does this kind of thing all the time, leaving me rather bemused. Think of something odd. Pull together all kinds of information. Solve a problem. Draw a picture.I lie in bed petting Tiny (because Tiny finds me too intimidating when I'm not on his level), and I should be sleeping; but instead I look at him and I think... "How many legs would a four-dimensional cat have?"When you read this, remember that it's transcribed into words. I didn't think…
  • Shoulds

    Lisa D.
    22 May 2015 | 9:11 am
    You should do.          I won't do.You should do.          I am I, not you.          I want to. Not should.          You should; but I want.          I can, or could, or might--or I won't.          My choice.You should.          You should; but I won't.Your shoulds are I…
  • Taking marriage for granted

    Lisa D.
    21 May 2015 | 10:17 am
    I can’t help but think how nasty it was of us to deny gay people the formal commitment and legal acknowledgement that straight people have enjoyed for so long.I’m not surprised that the fight for gay marriage has made straight people think about the value of marriage, too; we took it for granted for so long, until we realized what it was like not to be able to marry at all, whether you wanted to or not. I think gay marriage will probably strengthen the institution of marriage, overall.Humans, psychologically, pair-bond. We just do. We want to find another person and take on life together.
 
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    Wrong Planet - Asperger / Autism News

  • Positive Relationships are Possible for People on the Spectrum – Love & Autism

    alex
    30 Jun 2015 | 10:45 pm
    Anita & Abraham burst into a fit of giggles as they recount their first night as a couple. Anita builds the story and Abraham shares the punch line. In telling it, they appear transported to this early period in their courtship. As the story goes, Anita has a secret that she has kept from Abraham, her best friend and now lover. She is worried beyond belief. She doubts that he will love her when her secret is revealed. She has shared everything except this with the man she now calls her fiancé.   At this point, during our weekly skype call, I too start to become concerned about what…
  • Will these behaviors ever stop? Getting the big picture of behavior and autism

    RNaseef
    17 Jun 2015 | 8:16 am
    Will these behaviors ever stop? Getting the big picture of behavior and autism My head felt like it was going to explode when my son was diagnosed with autism in the mid-1980s. The diagnosis explained why he was flapping and spinning, but the “A” word stuck in my throat. Some parents, mostly mothers, have told me they were relieved when they finally received an official diagnosis because they knew something was wrong. Regardless of where one fits on the spectrum of reactions, the mind goes fast forward to the future and can’t help wondering what will happen: Will these behaviors…
  • Autism Job Club

    Bernick
    11 May 2015 | 11:34 am
    The following is an excerpt from Michael S. Bernick and Richard Holden‘s The Autism Job Club, which is now available. If you like what you see, please purchase a copy of this excellent book! Chapter 15: Autism, Craft and Calling It is through the values of craft and calling that will come additional hiring of adults with autism in the practical economy. The autism-focused businesses,  major employer initiatives and employer outreaches set out in the previous chapter are necessary, but not sufficient. They must be tied to answering how adults with autism bring advantage to employers…
  • Coping with Conversation

    androbot01
    8 Apr 2015 | 11:45 am
    Social interaction is like navigating a maze.  One wrong turn can lead to disheartening rejection.  But, a lot of difficulties arise from misinterpretation and misunderstanding.  These are some tricks I use to try to get through successfully. Take charge of social situations.  Social interactions are shaped by both participants.  If someone is being grumpy, be kind to them.   How the other person acts does not determine how you act and there is no rule that one must follow the other’s lead.  Stay true to yourself. Listen and think about what the other has said.  There is a…
  • Revisiting Masculinity: The father’s journey with autism

    RNaseef
    29 Mar 2015 | 11:38 am
    When my son was born in November 1979, I jumped for joy.  When he was diagnosed with autism 4 years later, I thought my head was going to explode.  I couldn’t get the word autism out of my mouth for months. In general, it is harder for men to talk about problems than women. Women seem able to talk about problems and find comfort without needing to fix them. Of course, women do want to fix problems. As for men, when we can’t fix something, we don’t want to talk about it—and this is a factor in male depression and a problem in relationships. As Nelson Mandela wrote, “A boy…
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    Left Brain Right Brain

  • Autistic kids are more likely to be hospitalized–and that includes for vaccine preventable diseases

    Sullivan (Matt Carey)
    15 Jul 2015 | 2:53 pm
    There’s a lot of talk about comorbid conditions and autism. Sadly that conversation is often used to suggest that vaccines cause autism. As in, “look at how much GI disease there is in autism. Must be caused by vaccines!” And because of that discussion, probably most of the people drawn to read this article will be because I highlighted vaccines in the title. So let’s get that out of the way first. A group of researchers looked at what leads to hospitalization of autistic kids. In specific, they looked at “Ambulatory care sensitive conditions” which are defined as:…
  • Jim Carrey, you are part of the problem for us in the Autism Community

    Sullivan (Matt Carey)
    14 Jul 2015 | 4:59 pm
    Years back Jim Carrey was and autism were mentioned together regularly in the news.  This was at the height of the vaccine misinformation campaign of his then partner, Jenny McCarthy.  Mr. Carrey went so far as to be a speaker at the “Green Our Vaccines” rally in Washington.  That was 2008. Since then the Green Our Vaccines as a movement has died, Jenny McCarthy has tried to distance herself from her very vocal stance on vaccines, and given that Mr. Carrey and Ms. McCarthy split, it seemed like we had seen the last of Mr. Carrey. Until recently. You see Mr. Carrey took offense…
  • California Senate Bill introduced to increase disability services funding

    Sullivan (Matt Carey)
    2 Jul 2015 | 3:05 pm
    I just got an email forwarded to me from Senator Beall’s office.  The Senator has introduced a bill to increase funding levels for the regional center system.   Be ready to advocate for passage of this bill.   Here’s the email: Today, Senator Beall introduced SB X 2-1 in response to the developmental community service system crisis. He is joined by Senators Pavley and Monning who are principal coauthors.   Specifically, SB X2  1 mandates: Provides a 10% increase in the funding paid to a regional center and purchase-of-service vendors; Requires funding to enable the…
  • Action Alert: You guessed it, we need more emails to save our services

    Sullivan (Matt Carey)
    1 Jul 2015 | 2:37 pm
    Below is an action alert email from The Arc of California and United Cerebral Palsey.  The short version is “First, click here once to email to your state senator and assemblymember, no matter how many times you’ve already done it. ”  and “And second, if you’re in LA County, please click a second time email the 10 legislators there who we think have the most power to decide whether our community gets the funding increase we need to stabilize our service system. “ By now I hope most readers here are aware that there’s a fight ongoing in California to…
  • Protesting Kerri Rivera and Chlorine Dioxide Abuse

    Sullivan (Matt Carey)
    25 Jun 2015 | 11:06 pm
    Sullivan (Matt Carey):You always hear from groups promoting false cures “listen to the parents”. Well parents, like me, see MMS (Miracle Mineral Solution) aka CD (Chlorine Dioxide) as abusive. There is no evidence that it works. There is no good explanation for why it should work as a therapy. And there is the chance of adverse reactions. No benefit and a risk. Risk/reward ratio is 0. Originally posted on The Skeptical Beard: Guest Post by Alison Bernstein of Mommy, PhD This past Saturday, a small group gathered outside the Loews Chicago O’Hare Hotel to protest the presentation…
 
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    Myomancy

  • The Low Budget, Healthy Home Kitchen

    Chris Tregenza
    9 Jul 2015 | 6:54 am
    As the old cliche says, the kitchen is the heart of the home. But hearts, and kitchens, can become unhealthy and impact on every part of our lives. The good news is the reverse is also true. Improve your heart and everything else follow. A few small, cheap changes to your kitchen and the food you prepare can make a big difference to the well being of you and your family. These are my personal tips for making a healthier kitchen on a budget. Blender + Fruit + OJ = Smoothie The health benefits of fresh fruit are well known but most of us struggle to incorporate them into our daily diet.
  • Reborn Dore – Old Dore Mistakes

    myomancy
    3 Jan 2010 | 2:51 am
    Since Dore went into worldwide bankruptcy in 2008, a new Dore has risen from the ashes. It still offers the same range of treatments for about the same price. Unfortunately, it is still using the same unethical sales techniques. Last month, the Advertising Standards Authority (ASA) ordered Dynevor Ltd, the company behind Dore, to remove an advert from Google’s Ad Words programme. The advert read: The DORE Programme … Need help with Dyslexia, ADHD, Dyspraxia or Asperger’s? The ASA upheld a complaint that the advert breached several clauses of the ASA’s regulation…
  • Dungeons, Dragons & Dyslexia

    myomancy
    20 Sep 2009 | 4:12 am
    Growing up dyslexia leaves you ill-equipped for the world. Your education success is generally low, your poor short-term memory puts in you at a disadvantage in most situation and often poor social skills limit your ability to make friends. Add all the normal teenage problems of hormones, acne and trying to work out who you are, and the transition from child to adult can be very difficult. Fortunately I found an unlikely support group that gave me a chance to develop friendships, social skills and the concept of who I was. This group involved assassins, fighters, thieves and hoard of…
  • If Calvin Took Ritalin

    myomancy
    24 Aug 2009 | 2:38 am
    This great parody of the classic Calvin & Hobbes cartoons highlights the problems and ethical considerations of using medication to treat ADHD. Many thanks to The Ephemerist for finding this. The post If Calvin Took Ritalin appeared first on Myomancy.
  • Beautiful Autism Poster

    myomancy
    16 Aug 2009 | 3:08 am
    This simple but clever image is part of a campaign about autism, however I can find very little about it. Source: Design You Can Trust The post Beautiful Autism Poster appeared first on Myomancy.
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    Susan's Blog

  • Shared Living and AFC: 2 similar residential options

    Susan Senator
    15 Jul 2015 | 5:05 am
    I am posting this golden summary of how to create a shared-living-style home for an autistic loved one, with permission from Cathy Boyle, President of Autism Housing Pathways. This is a crystalline explanation of how you, yes you, can make this happen in Massachusetts. Every state is different, but it’s likely that you can assemble something similar in your own state; just be sure to check with your state agencies about what is possible there.  I have edited here and there. Do not glaze over. Read what you can. Come back to it. Process, breathe, take your time to understand this. You…
  • About Difference: If I had a Hammer

    Susan Senator
    25 Jun 2015 | 7:58 am
    Today I got an email from someone in Nat’s life, suggesting other possibilities for his silent times. This guy, whom I think is very caring and wise, had downloaded info on autism and catatonia right after I told him about our neurologist’s suspicions. He felt in his gut that this was not quite it. Instead, he felt that what he’d been observing was not a “freezing-up” on Nat’s part at all, but rather, a withdrawal that suggested depression. I spoke to Ned about this and he said, “It’s a whole Rorschach test.” Exactly. Everyone looks at Nat…
  • Finding Peace

    Susan Senator
    24 Jun 2015 | 9:05 am
    I escaped to Cape Cod for an overnight with my parents, to get a little peace and some distance from what’s been happening with Nat. My car tires crackled into the old familiar pebble driveway and I felt a huge weight drop inside. I remember thinking, “Thank God it’s all the same as ever. They’re all the same as ever.” Like Scarlett saying, “It’s there. Tara’s still there,” after the burning of Atlanta. I took my bike off the back, and jerked up the handle on my suitcase and walked into their little cape house. It was quiet, the air was warm and huglike and…
  • Tough Love

    Susan Senator
    21 Jun 2015 | 12:38 pm
    I hope this wasn’t the worst father’s day ever for Ned. We just took Nat to his favorite place, JP Licks and he had promised he would not laugh loudly and spit. But he did. Ned stood up, took Nat’s ice cream and threw it away and made him leave. We stood outside on the street while people stared at poor Nat, so upset, so incredulous that he really was not going back to JP Licks. But Ned was right. “He has to learn how to contain this,” Ned said. Yep, the world is not going to change *that* much. Meanwhile Nat kept saying, “No laughing, go to JP…
  • A Good Father

    Susan Senator
    21 Jun 2015 | 7:14 am
    I’ve been so down about Nat, but late last night Ned and I realized that no matter where this strange new behavior is coming from — I mean the spitty laughing — we should be helping him learn to regulate himself, not just feel helpless and sad. Ned said, “Nat, remember, you like to get ice cream and you can only do that when you’re feeling calm,” and Nat stops and says, “Get ice cream.” And he’s lucid again. So we are going to try using our leverage to show him that he *can* control himself.  That is what it’s like living with my…
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    Autism's Edges

  • To the Woman Who Rolled Her Eyes When My Daughter Asked a Tour Guide If She Would Speak More Slowly

    18 Jul 2015 | 8:21 am
    To the Woman Who Rolled Her Eyes When My Daughter Asked a Tour Guide If She Would Speak More Slowly: You know who you are. You're the one on the college tour with your handsome son and tall husband. You're the one with the perfect salon-blonde hair, the Louis Vuitton shoulder tote, and the 1.5 carat heart-shaped diamond earrings. I saw you. I took you in. I thought about you for so much longer
  • The Unfriendly Skies, Or Post-Traumatic Airlines Syndrome

    15 May 2015 | 8:35 pm
    Reading the comments on the New York Times online in response to the distressing story of United Airlines re-routing a plane to remove a family traveling with an autistic teen from a domestic flight has left me with post-traumatic airlines syndrome. We've had our share of airline and airport meltdowns, and the comments on this Times article have left me with flashbacks of the judgmental
  • Hello Kitty Magic

    5 Jan 2015 | 5:59 pm
    We were looking for something special to do in LA that would give our girl a break from the challenges of Dementiaville (aka helping take care of grandma). Of course our girl Sweet M would always go for Disneyland. But the Magic Kingdom with holiday crowds and a new and not-so-great disability access program didn't sound too magical to me. Where would we find our magic? Turns out it was
  • Our Year of Barely Blogging

    4 Jan 2015 | 1:14 pm
    Actually it's more than a year that we've been barely blogging. When last I posted, dear readers -- if any of you are still out there reading — I promised so very much more than I could deliver. I promised I'd write about how our girl's dad helped her increase her Regents* exam score by 22 points. I promised I'd write about her fledging friendship and her trip with her class to the Grand
  • Our Home at Autism's Edges

    21 Apr 2014 | 1:03 pm
    There's no doubt that we've been mighty silent over here at Autism's Edges. We've reported nothing, and missed most of our friends in the autism world. Some noticed and checked in, and we let them know privately what was going on. Then last month MamaGenius reached out on Twitter and asked where we'd gone: We've been fighting a massive luxury condo development in our formerly quiet
 
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    MOM - Not Otherwise Specified

  • Face the Face(book)

    MOM-NOS
    27 Jul 2015 | 4:02 pm
    When I started blogging, I was part of a little group of like-minded bloggers who made the rounds of each others'  blogs every couple of days to catch up and have conversation. Once our corner of the blogosphere exploded, many of us started to rely on RSS feeds to tell us when our favorite bloggers had new posts. It seems that things have changed since then, and to a great degree, Facebook has
  • Like the ceiling can't hold us

    MOM-NOS
    24 Jul 2015 | 6:36 pm
    Me again. How about that? In two days, I've matched my output for all of 2014. Not a bad re-start, eh? First, thank you so much for the warm welcome back. It's been staggering, actually. I didn't expect to be met with where-the-hell-have-you-been hostility or anything, but - well, I'm not really sure what I expected. Crickets, I guess. But your messages and your "likes" and your kindness have
  • You own everything that happened to you

    MOM-NOS
    22 Jul 2015 | 7:30 pm
    Back in April, two days shy of her 61st birthday, Anne Lamott wrote a kickass Facebook post that patched together her accumulated wisdom from the past six decades. The whole piece is fantastic, but one paragraph climbed inside my brain and has been roosting there for the past three months. She wrote, Writing: shitty first drafts. Butt in chair. Just do it. You own everything that happened to you
  • I see the picture you're not posting

    MOM-NOS
    26 Aug 2014 | 2:08 pm
    Hey, you guys? I just want you to know, I get it. I get how hard it is at this time of year when your Facebook feed is full of the shining, happy faces of your friends' kids on the first day of school. I know how much it stings.  I know the pain, and then the guilt you feel that someone else's joy should cause you pain, and then the loneliness you feel because, it seems, nobody else really seems
  • 1 in 68

    MOM-NOS
    2 Apr 2014 | 10:26 am
    Depending on whom you ask, today is World Autism Awareness Day, World Autism Acceptance Day,  or Everyone Matters Day.  From my perspective, awareness, acceptance, and mattering are all vitally important, so I say bring 'em on. Last week, in the lead-up to these events and to the month of April, which is Autism Awareness Month, the CDC released the latest autism prevalence rates - now 1 in 68
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    Life With Joey

  • Summer

    Joeymom
    24 Jul 2015 | 9:10 pm
    Here we are, knee-deep into it, and where have the posts been? It is getting harder to decide what to post. This has been a bit of a crazy summer, and jam-packed with boy adventures.Off on summer adventures!Summer is always an odd time for us. Joey's schedule is different. While having a schedule at all is always good, the ups and downs of things being different remains. We have a new teacher this summer, and we originally were told he would definitely be Joey's teacher in the fall; now he has been offered a contract with the regular school system, so we don't know- we have to wait and see…
  • Year One, Done.

    Joeymom
    20 Jun 2015 | 6:51 pm
    Our first year at our new school is complete. Joey finished seventh grade. It was an emotional ceremony, as the students thanked their teachers, therapists, and principals for... well, for us, for saving our child. He was drowning. Now he is moving forward and learning again.Our Assistant Teacher became emotional, and understandably so- how can you not, when you know a good thing is happening, and you are part of it? And Joey turned to her, and signed "safe" (they use hands, palms toward signer, fingers interlaced and thumbs up, so that it make a "safe wall"), and assured her, "You don't need…
  • 18 Years

    Joeymom
    24 May 2015 | 5:42 am
    Still going strong.
  • Luminaria

    Joeymom
    23 May 2015 | 7:55 pm
    Joey has a lot of difficulty processing the whole idea of death. Already a tough subject for young people, this can be extremely daunting for Joey in understanding that life ends, and there is a permanence in death that he just cannot wrap his brain around. It becomes a huge anxiety trigger.Happy Memorial Day.This is the 20th year of the Luminaria at Marye's Heights. I feel it is important for my boys to understand that freedom is not free. People die for their country, their families, their ideas. History isn't all cool houses, quaint costumes... and weaponry is not just cool toys.Wars are…
  • Climbing the Ivy

    Joeymom
    16 May 2015 | 9:50 pm
    Today is Ivy Day at Smith College, my alma mater. Yep, that one on the right? That's me... 22 years ago. Want to hear something else funny? That dress was a size 18. I had difficulty finding it, because walking into a store and finding clothes in a size 18 was almost unheard-of 22 years ago. I loved LL Bean clothes, because they came up to a 20. Yes, my friends, when people fuss about people being 280 pounds, that is what 280 pounds looks like. That is what we consider "fat" in this country.I dream of being a size 20 now. An 18 seems out of the question. I should note some…
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    Look Me In The Eye

  • A chance to work in our automotive program

    1 Jul 2015 | 7:41 am
    You’ve read about the high school program we have in the Robison Service car complex in Springfield.  Our unique school has been profiled in news stories and on New England Public Radio. If you are a certified Massachusetts vocational teacher, this is your chance to come work here!Northeast Center for Youth and Families – the nonprofit who runs the school – is looking for an automotive teacher to teach, supervise, and instruct students in accordance with their individual education plans.  The automotive teacher will be directly responsible for assigned students and will assist…
  • Protecting Your Home From Fire

    4 May 2015 | 5:32 pm
    While a fireplace or woodstove can be peaceful, an out of control fire in the home is one of the most frightening things anyone can imagine.  I had a candle set the wall screen on fire in my bedroom 35 years ago, and almost got burnt up. That left me with a lifelong concern and vigilance about the risk of fire.  With the arrival of spring, I thought I’d you some constructive advice on how to protect yourself and your home from fire.You do not want this to be youMost articles about fire protection focus on keeping hazards out of the home – don’t smoke in bed, don’t smoke when…
  • Should Autism be Celebrated?

    4 Apr 2015 | 1:03 pm
    The James River shoreline, near Williamsburg, VA (c) John Elder RobisonAutism is a neurological difference that’s associated with some gifts and a great many disabilities.  For a person to be diagnosed on the autism spectrum, they must have significant impairments as a result of autism.  We may have gifts too, but disability remains the basis for diagnosis.  Some autistic people are rendered non-speaking by their condition, and I can’t imagine who would celebrate that.  Others live with significant medical compilations like epilepsy.  I’ve yet to meet anyone who…
  • Dangers of Genetic Engineering in the Forest

    9 Mar 2015 | 8:32 am
    NEW JERSEY MAN KILLED IN QUEBEC MAPLE SUGAR EXPLOSION – that is a headline you will never see, but tragedies like that happen every year. Yet the news is suppressed because no one wants to kill the cash cow.  The result: one unsuspecting innocent after another gives their life for tourism, as dollars make a one-way trip across the US-Canada border.   Quebec officials boast that they are the #1 producer of maple sugar and syrup.  “Vermont is a distant #2,” they say derisively.  Meanwhile rumors swirl.  Are they injecting maple growth hormone into their…
  • Autism in India and America

    22 Feb 2015 | 7:36 pm
    What’s the most interesting difference between Indian autism and American autism?  I think it’s the way parents and others perceive it.Indian and American scientists both lament the low level of scientific understanding in their respective countries.  What’s interesting is how that affects people’s interpretation of autism.In American we have a secular culture of blame.  “Someone did me wrong” is an all-pervasive theme in our culture.  We interpret everything from the behavior of other countries to the conduct of ex-spouses through that lens.When it comes to…
 
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    How Life Changes

  • Sightings

    V.
    26 Jul 2015 | 11:30 am
    A friend told me this morning that she saw my car on Friday outside of Ontario, driving east.  That I was in the driver’s seat, blonde ponytail and all, and that in the backseat sat a three year old boy in glasses — Evan — she was sure.  When she pulled aside the car, she saw it was not me after all.  Nor could it be, as I was at work fifty miles away in West Hollywood, far off from the 10 Freeway in Ontario.  Back at home, this same friend saw that her neighbor had returned my book to her, a book borrowed a least five years earlier. “You realize that Friday was…
  • Inside the Body

    V.
    12 Jul 2015 | 12:32 pm
    At night, after a day in the OR, I come home to watch craniotomies, laminectomies and hip replacements on YouTube, listening to surgeons narrate the steps in the procedure with cold, analytic grace, unraveling the mysteries of their work in the same way a bone is revealed after dissecting through skin, fascia and muscle.  On Friday, I observed the purposeful dislocation of a shoulder under anesthesia (in preparation for a total shoulder replacement), and thought, “Wow, that guy is sound asleep on the table and we just made his shoulder useless to him.  Thank goodness he won’t…
  • Tying Knots

    V.
    9 May 2015 | 11:42 am
    At the end of April I left my job in cardiac step down to enter an operating room nurse training program at a large teaching hospital.  It was a unique opportunity to learn the OR, and to find out if I am suited for that world.  Many people commented on how much I will miss the more direct patient care of step down or ICU, and what a shame it will be for my patients and their families not to have my teaching and advocacy at the bedside.  One fellow nurse said, “But you’re such a people person, will you like OR?” In a way I am a people person, but I’m also a…
  • Going Private

    V.
    9 May 2015 | 10:56 am
    Some new adventures have led me to enabling privacy settings on the blog.  Please do feel free to register to visit, and apologies for the inconvenience.
  • Shock to the heart

    V.
    18 Feb 2015 | 10:56 am
    On Saturday, I floated from my regular post-op cardiac surgery unit to labor and delivery, where a 28 week pregnant woman had come in for an irregular heart rhythm. The patient had her own L&D nurse, as well as myself. The purpose of my assignment was to monitor and document her rhythm, and take vital signs every fifteen minutes.  As I got report from the previous nurse, I quickly realized that this patient’s irregular rhythm was not something that would resolve easily.  Her heart rate ran between 150 and 180 beats per minute and the typical medications used to slow the…
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    Squidalicious

  • Let's Get Away From It All: Local Beach Version

    Shannon Des Roches Rosa
    20 Jul 2015 | 12:02 am
    Things have been a bit stress bombish than usual over here lately. Shocker, for a house with two teens and one tween, I know. So I was even more grateful than grateful when Leo and I found ourselves by ourselves a few days ago, with a free afternoon to boot.We bolted for the Coast, as we do every chance we get. And we went to our favorite beach. And we lolled in the sun-warmed pebbles at our favorite beach. (By "we" I do not mean only Leo. I mean I took the photo below as I was also lolling, alongside Leo.)[image: white teen boy with curly brown hair lying onhis side on a pebbled beach, seen…
  • Today: The 70th anniversary of the signing of the United Nations Charter

    Shannon Des Roches Rosa
    26 Jun 2015 | 9:06 am
    [Image: Dark blue square with an image of the UN headquartersin the background, white text superimposed, reading: "United Nations: 70 Years Promoting Peace and Progress #UN70" followed by the United Nations Foundation logo]I am thrilled, delighted, and honored to be on my way to City Hall in San Francisco right now, to celebrate the 70th anniversary of the signing of the United Nations Charter, along with UN Secretary General Ban-Ki Moon, House Minority Leader Nancy Pelosi, and SF's own Mayor Ed Lee. And I am more than a little bit bowled over to be one of 70 invited Bay Area Digital…
  • Haircuts Both Miraculous and Useful

    Shannon Des Roches Rosa
    25 Jun 2015 | 10:39 pm
    This is for posterity. Two haircut milestones.First: Witness what Leo's level of comfort and familiarity with our local hair salon and local stylists means: He, his sister Mali, and I all got our hair cut together. At the same time. When Leo was done his stylist handed him his iPad, and suggested he go sit in a chair and wait for me. Which ... Leo did. Patiently. Like the mature teen dude he is.[image: hair salon panorama: white tween girl with brown hair getting her hair cut by an Asian woman with long wavy dark brown hair; Asian woman with shoulder-length black hair cutting the hair of a…
  • Parents New to Autism: Don't Fall for Pseudoscience like DAN! or MAPS.

    Shannon Des Roches Rosa
    30 May 2015 | 7:51 am
    This is an edited-for-privacy version of an article I posted on an autism parenting board this morning, in response to a parent asking for advice about DAN! doctors.---- One of the loveliest features of this group is the opportunity for parents who are new to the world of disability and autism is to hear from parents with many years of experience -- so those new parents can avoid some of the mistakes we veterans unwittingly made.DAN! (or MAPS, or "biomedical" approaches to autism, doesn't really matter) is pseudoscience. That means it is poppycock but sounds "sciencey," so that parents who…
  • How Can Tech Benefit Autistic People? My Comments at IMFAR 2015's ASDtech panel

    Shannon Des Roches Rosa
    22 May 2015 | 5:02 pm
    One of the highlights of the 2015 International Meeting for Autism Research (IMFAR), for me, was being invited to speak on the panel for the ASDtech SIG (Special Interest Group). I've created a Storify compilation of the panel's highlights, but was also given the chance to opine on how tech can best benefit autistic people like (and unlike) my son. So I did, as you might imagine.Sue Fletcher-Watson of Edinburgh University organized the panel and moderated the discussion. My co-panelists were Ofer Golan of Bar-Ilan University and The Transporters; Dan Smith, President of Autism Speaks's…
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    Karianna

  • Ha, ha, surgery is so "last week"

    20 Jul 2015 | 2:51 pm
    Last Tuesday I had a minor laparoscopic procedure. I'm sure y'all remember my whole spinal surgery situation. That began with a left-side abdominal pain that eventually the doctors figured was "referred pain" from my back, hence the spinal fusion. Shortly after back surgery, when I remarked the original pain was still there, they told me, "You've got to wait at least two years for your spine to fully fuse again." Well, I waited two years (that milestone was last summer) and then jumped into... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • Boxes: Free Advice to Moving Companies

    8 Jul 2015 | 1:42 pm
    I'm really sensitive about keeping things around that might be reused. As a result, I have a lot of things in storage. And, my home is much more cluttered than I'd like. I don't want to be wasteful. Each of my moves from home to college to first job to grad school I kept the boxes, knowing I'd need them for the next move. When I moved from graduate school across the country with my husband and brand-new son, the moving company required specific-sized boxes. They allowed us to "borrow" some... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • The Season of Many Endings

    3 Jun 2015 | 10:34 am
    Last night I watched my older son perform in his final middle-school orchestra concert. I was able to maintain a calm face when the Music Director prompted the 8th graders to take their final bow, but as the parents and students started putting the music stands away, my eyes quickly became wet. Away from the crowd, my husband asked if someone had died. Nope, I'm just freakishly emotional. Today I watched my final "Spirit Wednesday" presentation at the elementary school. To rub in the... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • Beyond Josh Duggar

    26 May 2015 | 11:07 am
    A friend wondered why many are so obsessed with the whole Josh Duggar situation. I replied that it is deeply personal for so many people, but for varied reasons. This includes, but is not limited to: people who have been affected by religion, for the positive or for the negative; people who have been abused, whether sexually, emotionally, or other; and people who have been restricted in some way, whether by a narrow-minded religion, helicopter parents, or controlling spouse (or other!) A... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • May those butterflies follow us forever

    18 May 2015 | 2:36 pm
    Eight years ago, we bought a house. Since it was towards the end of the school year, I saw students in session when I visited the local elementary school to get the paperwork to enroll my oldest son for first grade to start that autumn. I got happy little butterflies in my stomach when I parked in the school's lot and walked toward the office. I saw gleeful kids playing on the gorgeous playground. What a campus! A few short months later, I got my son's first-grade teacher assignment, and the... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
 
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    Stimeyland

  • Disaster Struck! Running Edition

    Stimey
    12 Jul 2015 | 7:15 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Disaster Strikes! Rain/Snake Edition

    Stimey
    28 Jun 2015 | 5:58 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Disaster Strikes! Gerbil Edition

    Stimey
    26 Jun 2015 | 6:31 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • And the Happy Dance Was Danced All Around

    Stimey
    15 Jun 2015 | 7:12 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Spike, We Will Miss You

    Stimey
    9 Jun 2015 | 9:31 am
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
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    Disability Scoop

  • Special Olympics Underway In Los Angeles

    Martha Groves, Los Angeles Times/TNS
    27 Jul 2015 | 7:32 am
    For the first time in six years, the Special Olympics World Games are underway in the United States, bringing together thousands of athletes with disabilities for a week of competition.
  • Poll Finds Public Perception Varies On Intellectual Disabilities

    Michelle Diament
    24 Jul 2015 | 11:20 am
    Attitudes about people with intellectual disabilities are evolving, a new poll suggests, but opinions remain tied to the level of personal connection individuals have with this population.
  • Cruise Line Agrees To ADA Accommodations

    Hugo Martin, Los Angeles Times/TNS
    24 Jul 2015 | 11:06 am
    The world's largest cruise company has reached a settlement with the U.S. Justice Department over complaints that many of its ships do not offer access to passengers with disabilities.
  • Tech Giants Team Up To Boost Accessibility

    Michelle Diament
    23 Jul 2015 | 11:58 am
    Some of the biggest names in technology are banding together with a new commitment designed to make their products more accessible for people with disabilities.
  • Spending On Community Living Hits Record

    Shaun Heasley
    22 Jul 2015 | 8:20 am
    For the first time ever, Medicaid is spending more on community-based services than on institutional care.
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    Facing Autism in New Brunswick

  • 6 Years Later New Brunswick STILL Hasn't Addressed Adult Autism Care

    H L Doherty
    12 Jul 2015 | 8:11 am
    Years have passed, governments have come and gone, but still the elected  members of the New Brunswick legislative assembly, despite international recognition for its parent advocacy driven early intervention and school autism services, have not seen fit to provide a systemic adult care autism system in New Brunswick.The following blog commentary is a re-post, word for word, of a commentary I posted on May 5, 2009: Autistic Adult Care Improvements Long Overdue in New Brunswick  Since then one group home has received some training for staff from UNB via the…
  • Dr. Glen Davies at Medicare for Autism Now! Rally June 27 2015

    H L Doherty
    30 Jun 2015 | 10:39 pm
     Dr. Glenn Davies at the Medicare for Autism Now! rally June 27 2015 discusses evidence in support of behavioural intervention in treating autism, the lack of autism coverage under Canadian Medicare compared to the US Medicaid state to state mandate and the example of Wisconsin which is far ahead of all Canadian jurisdictions in providing treatment for autism.
  • Conor After Another Seizure

    H L Doherty
    29 Jun 2015 | 4:04 pm
    . Conor has been on  a good run for the previous 7-10 days and today was pretty much the same until 6:15 this evening when we heard a loud thump uupstairs.  His mom ran upstairs and screamed for help when she saw him convulsing on the floor with thick fluids oozing out of his mouth.  We had to keep him on his side with his head away from any corners or hard objects.   This was Conor's 4th grand mal seizure since Christmas. Conor's convulsions did not appear to last too long compared to some previous seizures ..  approximately 2 minutes.  Stilll 2 minutes of…
  • Medicare for Autism NOW! Campaign Kick Off Today!

    H L Doherty
    27 Jun 2015 | 5:54 am
    Vancouver, BC – Today, the Medicare for autism Now! Society (“MFAN”), a non-partisan, not-for-profit, all volunteer organization, announced the launch of its nation-wide One in 68 campaign. “We will be holding a Campaign Kick-off this Saturday, June 27th, at Douglas College, New Westminster, between 10:00 am and 2:00 pm,” said MFAN director and campaign manager, Dr. Sherri Brown, “It will outline the rationale for our initiative and lay-out our action and advocacy agenda leading to the federal election on October 19th, less than four months away.”The…
  • Canada Needs A REAL National Autism Strategy: Medicare for Autism NOW!

    H L Doherty
    13 Jun 2015 | 12:51 pm
    A Medicare for Autism Now! Rally was organized by FEAT-BC and held in Halifax, Nova Scotia on May 26, 2007.Shawn Murphy,  Jim Munson,  Andy ScottFormer PEI MP Shawn Murhpy, New Brunswick Senator Jim Munson and the late Andy Scott a former Fredericton NB MP all advocated actively for a REAL National Autism Strategy with Shawn Murphy presenting an unsuccessful provvate member's Bill C-304,  to include autism treatment in medicare coverage and then Fredericton MP Andy Scott working with Nova Scotia MP Peter Stoffer to intoduce a National Autism Strategy bill which was passed…
 
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    ASF Blog

  • Brain activity in autism – is this the common language of translational research?

    autismsciencefoundation
    16 Jul 2015 | 12:35 pm
    By Russell Port While the symptoms of ASD are well known, the changes in the brain that cause these disorders still remain a mystery for scientists. In an attempt to understand the neurological differences of someone on the autism spectrum, scientists have looked at brains from multiple angles, from within single cells to how large parts of the brain communicate with each other. The brain can be considered a series of circuits that connect different sub-types of cells; when properly aligned, these circuits allow for healthy neural activity (Figure 1). Due to the complexity of neural…
  • The ASF undergraduate research fellowships help build autism researchers

    autismsciencefoundation
    30 Jun 2015 | 8:31 am
    Veronica Kang and her mentor Sara Jane Webb at IMFAR in May, 2015 In the summer 2014, I was fortunate to receive the Autism Science Foundation Undergraduate Summer Research Fellowship to work with Dr. Sara Jane Webb at the University of Washington. During my summer research, I was able to complete my honors thesis: A Study of Twins of Individuals with Autism: Heritability of Pragmatic Language Ability in Autism Spectrum Disorder. I was also involved in two other projects in the lab: one focusing on brain activity and genetics in girls with autism, and the other to identify a potential…
  • Asperger’s vs ASD – When it comes to stigma, what’s in a name?

    autismsciencefoundation
    15 Jun 2015 | 12:47 pm
    By Esther Jou One of the more radical changes to the autism classification within the DSM-5 was the elimination of the category “Asperger’s Disorder” and inclusion of those who would have met that criteria under the name “autism spectrum disorder”.  Some families of individuals with Asperger’s and those diagnosed with Asperger’s opposed this change for fear that being a member of the ‘autism’ group would force them to live with a more stigmatized label and subjugate them to further social and academic pressures.  In order to address whether this was the case, researchers…
  • MDMA is not a viable option for people with autism

    autismsciencefoundation
    2 Jun 2015 | 10:23 am
    Toxicity and regrowth of serotonergic neurons after a single dose of MDMA in monkeys The autism community is constantly bombarded with potential treatments, cures, and other claims for products that have no scientific evidence. Even worse, some of these products are known to be harmful and there have been reports of deaths after such treatments, like chelation. Unfortunately, another one of these non-evidence-based, potentially-harmful compounds, has made its way into the mainstream media, potentially confusing families and individuals with autism about the promise or potential of such…
  • Scientists See Clues in Brains of Babies with Autism Before They are Diagnosed

    autismsciencefoundation
    11 May 2015 | 1:27 pm
    By Jason Wolff, PhD The corpus callosum is by far the largest white matter connection in the brain. We now have a great deal of evidence suggesting that connectivity is disrupted in autism. So when we think about connectivity across brain regions, the corpus callosum is an obvious target. There is a steady trend in the literature — dating back nearly two decades — suggesting that autism is associated with a smaller corpus callosum. It’s an important and fairly consistent finding. If over a dozen studies have found a smaller corpus callosum in adults and older children with…
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    Different Roads to Learning Blog

  • “Touch Red” – A Poem by Georgie Herz, ABA Teacher

    Different Roads to Learning
    24 Jul 2015 | 7:32 am
    Here’s a touching – pun intended! – poem given to us by Georgie Herz, an ABA teacher from Special School District in St. Louis, MO, that we thought we’d share with all of you so you can start off your weekend with a smile. Touch Red Georgie Herz Touch red One card, one choice Touch red This is touching red A prize, cheerios, candy, a car This is touching red I’ll guide your hand it’s not far Touch red Three times, I’m keeping score Now with two Touch red, I pray not blue This is touching red Add yellow, three cards, three times Touch red you score Pick a…
  • Tip of the Week: Use a Time-Out Ribbon

    Different Roads to Learning
    23 Jul 2015 | 4:00 am
    Time-out can be an effective procedure for addressing behaviors that do not function for escape. However, often it can be difficult to implement, and in some schools is not even allowed. There are valid concerns related to time-out. For example, you may not have the opportunity to supervise a child in a separate location for time-out, or you might want to keep them in the same place so they don’t miss a lesson during class. The time-out ribbon may be an excellent solution for just those types of instances. When Foxx and Shapiro (1978) first wrote about the time-out ribbon, they referred to…
  • Pick of the Week: NEW! Function Wheels – A Behavioral Identification and Intervention System

    Different Roads to Learning
    21 Jul 2015 | 4:15 am
    We’re absolutely thrilled to introduce Function Wheels, an easy-to-use system that enables users to identify the function of behavior and immediately intervene. Created and piloted by Keith Amerson, MSEd, Different Roads to Learning is a proud partner in bringing you the first all-inclusive, systematic approach for identifying the functions of problem behaviors and implementing research-based interventions to manage them. Get your kit today at the introductory price of $149.95 through July 31st! No promo code necessary. Click to enlarge. Be sure to check out this nifty video below for a…
  • Pick of the Week: Sequencing Verb Tenses Card Deck

    Different Roads to Learning
    14 Jul 2015 | 8:20 am
    Help students identify and use the past, present, and future tenses of 48 action verbs with the Sequencing Verb Tenses card deck. And this week only, you can save 15%* on this set by using promo code SEQVERB at check-out! This set contains 24 regular and 24 irregular three-step, illustrated sequences. Choose an action verb to teach, and then have students put the cards in order while filling in the blanks with the correct verb tenses. For example: She will paint the fence. She paints the fence. She painted the fence. Each of the 144 cards measures 3¼” x 4¼” and comes with game…
  • Autism Parenting Magazine – News, resources, and expert advice for autism parents

    Different Roads to Learning
    10 Jul 2015 | 5:00 am
    Check out the newest issue of Autism Parenting Magazine! With up-to-date news and professional resources for parents of children with autism, this magazine offers expert advice from medical professionals and therapists among others, autism treatment centers and therapies, news and research in the field, and even real life stories from parents and families that inspire and provide support.   For more information about the Autism Parenting Magazine, visit their website here.
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    Thrive With Aspergers

  • Here’s How To Appreciate Your Aspergers Relationship Now

    Stephen Borgman
    27 Jul 2015 | 5:00 am
    Aspergers Relationship Advice For NTs From Novel Gardener Young Love: It’s so beautiful, so wonderful, it takes your breath away.  Like any other romantic couple, two adults who are in love in an Asperger’s relationship are on cloud nine when they first meet.  Reality sinks in once the emotional high wears off, and if there are not some tools for navigating the journey, Aspie-NT couples may find themselves at-risk. There are many successful Aspie-Aspie marriages and Aspie-NT marriages. What Everybody Ought To Know About Aspergers and Marriage Today’s article is written…
  • What Everyone Ought To Know About Autism and Noise Sensitivity

    Stephen Borgman
    20 Jul 2015 | 5:00 am
    “Sudden loud noises hurt my ears – like a dentist’s drill hitting a nerve…High-pitched continuous noise, such as bathroom vent fans or hair dryers,are annoying.I have two choices: 1) turn my ears on and get deluged with sound or 2)shut my ears off.”  Temple Grandin, article, An Inside View of Autism. This thread on Wrong Planet is over four pages long.  It all started when someone asked, “Is sensitivity to noise a part of Aspergers Syndrome or could it be something else?” I have odd sensitivity to noise…. On the TV spoken word needs to be at a higher volume….
  • 6 Questions To Help You See Visual Processing Disorder Clearly

    Stephen Borgman
    13 Jul 2015 | 6:09 am
    Answers, Resources, and More A child with visual perception problems may learn best through the auditory channel. Children who look out the corner of their eye while reading often have visual processing problems. Suspect a visual processing problem in children who finger-flick in front of their eyes, or hate either fluorescent lights or escalators. To some of these individuals the world looks like it is viewed through a kaleidoscope: flat, without depth perception, and broken into pieces. For others, it is like looking through a small tube, seeing only the small circle of vision directly in…
  • TWAP012: Here Are 3 Valuable Sensory Processing Tips You Need To Know

    Stephen Borgman
    7 Jul 2015 | 5:00 am
    ToolKits, Diets, Activities, and More Sensory Processing Disorder Metaphors Imagine driving a car that isn’t working well. When you step on the gas the car sometimes lurches forward and sometimes doesn’t respond. When you blow the horn it sounds blaring. The brakes sometimes slow the car, but not always. The blinkers work occasionally, the steering is erratic, and the speedometer is inaccurate. You are engaged in a constant struggle to keep the car on the road, and it is difficult to concentrate on anything else.  Stanley Greenspan. Mr. Greenspan well describes what…
  • 4 Reasons You Need To Understand Sensory Processing Disorder

    Stephen Borgman
    29 Jun 2015 | 5:00 am
    Plus Sensory Tips to Make Your Life Easier Whitney Cummings, the writer and producer for the show, Two Broke Girls, realized she was in trouble when she came down with a rare sickness. At the time, she was writing and producing her own NBC sitcom, working on the Two Broke Girls, and hosting her own talk show! She was also in charge of managing almost 600 employees. But she struggled with delegating and supervising others, hated to fire people, and had a hard time giving direct feedback. When her doctor told her she was killing herself with overwork, people pleasing, and exhaustion, she went…
 
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    From Inside the Puzzle: Raising a Child with Autism Blog

  • A Visitation from California

    Devon Alley
    20 Jul 2015 | 12:03 pm
    (This is part 1 of a 2 part series.) These past few blog entries have focused on A.'s online relationship with a boy in California who is also on the spectrum. This past week, M. and his mother flew all the way to Tennessee to visit us. It was the first...(read more)
  • An Online Romance, Part Three

    Devon Alley
    13 Jul 2015 | 1:37 pm
    One of the biggest pieces of news that has occurred in our household in the last year has been A.'s budding long-distance relationship with M., a friend she met on the Internet who lives in California. She has yet to meet this young man, but we are looking...(read more)
  • An Online Romance, Part Two

    Devon Alley
    7 Jul 2015 | 11:42 am
    One of the biggest pieces of news that has occurred in our household in the last year has been A.'s budding long-distance relationship with M., a friend she met on the Internet who lives in California. She has yet to meet this young man, but we are looking...(read more)
  • An Online Romance

    Devon Alley
    30 Jun 2015 | 7:12 am
    One of the biggest pieces of news that has occurred in our household in the last year has been A.'s budding long-distance relationship with M., a friend she met on the Internet who lives in California. She has yet to meet this young man, but we are looking...(read more)
  • Maturity and Optimism

    Devon Alley
    11 May 2015 | 7:07 am
    This past week was a rough one. I was working long hours each day, and A. was having a crisis at her school. One of her good friends, E., stopped having anything to do with her. I'm still not sure what happened. As much as I can gather, other students...(read more)
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    Autism from a Father's Point of View

  • This is why I see children with autism very differently than everyone else

    Stuart Duncan
    26 Jul 2015 | 10:45 pm
    When I started Autcraft, I did so to help out the parents on social media that cried out for someplace that their autistic children could play together without the fear of bullying or torment. On June 23rd, I told a small number of those parent and within two days, I received over 750 emails. That was when I realized just how big this bullying problem really is. Since then, Autcraft has kept thousands of children safe from bullies. But that’s not all. That’s just the start. Children came to the server shy, scared and unsure of what to expect. Many didn’t speak in public chat for quite…
  • Connecting with a child that has autism – which is real? Face to face or virtual?

    Stuart Duncan
    22 Jul 2015 | 1:05 pm
    Talking with some of the parents that help to run Autcraft, we had an interesting discussion about how some professionals or “experts” still don’t see any value in video games because, from their perspective, they are not “real.” But what is real? Is it a face to face conversation? How about a conversation via the phone? Or a video call? How about two avatars that represent ourselves that are face to face, talking? When an expert talks about what is real, they come from the traditional, textbook approach to therapy in which the only way to truly understand and…
  • Helping you understand Sensory Processing Disorder (SPD)

    Stuart Duncan
    25 Jun 2015 | 1:25 pm
    I’ve had a lot of people ask me about Sensory Processing Disorder lately and that’s largely because most people, the average person, can’t really imagine what that’s like. A lot of it makes no sense to them. And I’ll get back to that point shortly but first, I thought I’d try to give you a few examples to maybe give you a better idea of what it’s like. When you live in the city all year long and decide to go camping, like, real camping, in the woods with a tent, at some point in the night you’ll look up at the stars and realize that it’s…
  • How I went from a very shy and private autistic to a very outspoken and public autistic

    Stuart Duncan
    3 Jun 2015 | 11:13 am
    Something truly bizarre happened last night. While on the phone with my mother, I found myself saying the following: “So today I was in a news article on the largest news site in Australia, my book publisher emailed me to say ‘You must be busier than ever! Take all the time you need.’, a television show producer asked me to be on her show and an expo convention asked me to exhibit at their convention this fall.” How did this happen? What’s happened to me? I am a guy with Aspergers, I have two sons, one with autism and one without. I work from home, I like to go…
  • The one thing I wish I could tell every depressed autistic child

    Stuart Duncan
    27 May 2015 | 1:01 pm
    Since starting Autcraft, I’ve talked to a lot of depressed autistics, mostly children. Many of them were suicidal. This is not something I recommend for most people to ever try. It is a very heavy burden that can weigh heavy on your heart after a while. I find that this happens a lot for me because I am the ideal candidate for this to happen to. I’m an autistic adult who’s still a kid at heart and once was a depressed autistic kid just like them. To say that I can relate is a massive understatement. For those of you that watch The Flash, the new television series about the…
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    Living With Autism: A Parent's Perspective

  • Ryan’s Legend by L. F. Young Is Great Young Adult Fantasy

    Carl Bainbridge
    6 Jul 2015 | 1:56 pm
    Ryan’s Legend by L.F. Young Many many years ago… when his kids were small,  a plumber by the name of L.F. Young wanted something unique to read to his kids at bedtime.  So using his imagination and a little bit of ingenuity he created a story that he personalized just for his kids.   With a little prodding […] The post Ryan’s Legend by L. F. Young Is Great Young Adult Fantasy appeared first on Living With Autism: A Parent's Perspective.
  • My Little Pony Friendship Is Magic: Cutie Mark Quests

    Carl Bainbridge
    30 Jun 2015 | 5:25 pm
    Join The Quest That Everypony Must Take: To Find Their Own Cutie Mark! Come and Join Twilight Sparkle and her best friends as they use their special talents and the magic of friendship to keep Ponyland safe and fun. The DVD includes five heartwarming episodes from the shows latest season that we know your little princess (or prince) […] The post My Little Pony Friendship Is Magic: Cutie Mark Quests appeared first on Living With Autism: A Parent's Perspective.
  • Kinder And National Trail Day

    Carl Bainbridge
    29 Jun 2015 | 5:28 am
    National Trail Day was on June 5th this year and interestingly enough it was also the day my youngest had off school because all Kindergarteners in her school had the day off to allow next years kindergarteners to come in to meet the teachers etc. Now my wife and I have been daily (weather permitting) […] The post Kinder And National Trail Day appeared first on Living With Autism: A Parent's Perspective.
  • Sailun Car Clinic Was An Educational And Fun Experience

    Carl Bainbridge
    19 Jun 2015 | 6:35 am
      Sailun Tires has actually gone a step beyond what most tire companies have done in the past.  They developed a car care clinic that was designed to teach women who do not often do much of their own work on vehicles, and it is even open to men too.  The purpose behind the clinics is to […] The post Sailun Car Clinic Was An Educational And Fun Experience appeared first on Living With Autism: A Parent's Perspective.
  • Bachman Academy Improves On Learning Differences

    Carl Bainbridge
    17 Jun 2015 | 7:53 pm
    One of the biggest challenges that I face as a parent of a non verbal, classically autistic son is making sure that he gets the proper education that will give him the best shot at having the ability to function semi autonomously as he reaches adulthood.  So it is always good to see a school […] The post Bachman Academy Improves On Learning Differences appeared first on Living With Autism: A Parent's Perspective.
 
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    Speaking In Grace...

  • Anxiety is a part of my personality.

    Sarah Davis
    21 Jul 2015 | 5:16 am
    Share I just got home from vacation 6 and a half hours ago. We took a vacation without Shelby. This is something that has filled me with some anxiety. Anxiety beforehand about her care while we were to be gone. Anxiety while we were gone because how can I enjoy myself while not caring for her. Anxiety now, well  still trying to figure that one out. A large part of my personality is ruled by a people pleasing nature, how much I care about what someone thinks of me, my kids….. So on a vacation where I did have a really nice, fun, relaxing time, I spent it worrying what others are…
  • Chinese Food, Autism and Garbage

    Speaking in Grace
    14 Jul 2015 | 4:04 am
    Share There is a winning combination for you, or in my case, a losing one. Because that last one…you know the “Garbage” one, That is exactly where my dinner ended up. You may have figured it out already, but in case you haven’t I will spell it out for you… My dinner, which was to have consisted of a large amount of very tasty leftover Hunan Beef…was found in the garbage. I will not lie, I found it there not once, but twice. You can also just go ahead and accept the fact that I fished that white container right on out of there and carefully placed it back…
  • The Practical Special Needs Mom Survival Guide

    Speaking in Grace
    7 Jul 2015 | 1:19 am
    ShareI am just going to cut to the chase and jump right in here with my guide. Because, we both know that your time is limited and your attention span is fleeting at best…or maybe that’s just me?   As special needs moms, as parents…we frequently find ourselves frazzled, scattered and well quite honestly…tired. Often when we are in this scattered, frazzled and tired state we don’t necessarily make our best decisions. So pour yourself a cup of coffee,  and glance over this Lilliputianesque list  (that may or may not keep a few of you busy).  My hope…
  • The Things We Have Fought, and Will Fight

    Speaking in Grace
    2 Jul 2015 | 1:48 am
    Share* A version of this post appeared on this site in October 2014. Sometimes you just have to fight. Remembering Why We Fight, ultimately leads to reflection on what we have fought. The truth is, I have never thought of Autism as something we have to fight, or needed to fight. I also don’t think of it as something Cooper is fighting. I know that some look at it that way…and that is valid, not that anyone needs me to validate their feelings or give my approval. This is simply,  just how I look at it. As parents, we are as unique as our children. Our thoughts, feelings,…
  • To Speak…or Not to Speak?

    Speaking in Grace
    25 Jun 2015 | 1:50 pm
    ShareTo speak…or…not to speak? I am beginning to  believe that may truly be the question. The posts, the articles and lists are endless. Four, Five, Seven, Nine, Ten…even Fifteen…”Things You Should Not Say to Special Needs Parents”. Google it, they are not hard to find, they are trendy and plentiful. Granted many of the lists overlap, but still they are there. Enumerated verbal offenses, typed up neat and tidy ready for consumption, ready to be taken to heart. They are well written, the pain of the words and offenses experienced is real and tangible. As a…
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    Autism Daily Newscast

  • Fragile X: a closer-look at the autism-like syndrome – w/video

    Althea Estrella Violeta
    27 Jul 2015 | 6:10 pm
    DENVER — Fragile X syndrome is a learning disability not widely known by many, but it is estimated that about one in 4,000 women and one in 8,000 men are currently affected by this condition. Patients affected by Fragile X syndrome display behavioral manifestations very similar to that of those affected by autism spectrum disorder […] The post Fragile X: a closer-look at the autism-like syndrome – w/video appeared first on Autism Daily Newscast.
  • Doctor invents new rapid screening test to detect autism in young children – w/video

    ADN
    27 Jul 2015 | 5:05 pm
    Amherst, Mass. — A doctor from the University of Massachusetts Medical School has come up with an invention that comes in really handy at a time when resources for the early diagnosis of autism in children are scarce. Associate Professor of Pediatrics and Chief of the Division of Developmental and Behavioral Pediatrics Dr. Roula N. […] The post Doctor invents new rapid screening test to detect autism in young children – w/video appeared first on Autism Daily Newscast.
  • Press Release – Tablet technology to help children with autism

    Press Release
    27 Jul 2015 | 3:13 pm
    Monash University researchers have developed the world’s first tablet technology designed to assist children with developmental disabilities such as autism and Down Syndrome. The technology aims to help children stay focused, in a bid to facilitate learning and inclusion within the school environment. The gaming technology – developed with DreamWorks contractor Torus Games and Australian […] The post Press Release – Tablet technology to help children with autism appeared first on Autism Daily Newscast.
  • Bombay high court orders state government to set up centers for children with learning disabilities

    ADN
    27 Jul 2015 | 2:57 pm
    Mumbai, India — The Bombay high court in India ordered Wednesday that the state government should set up centers for children with learning disabilities in each of its districts. Learning disability is among 12 of those added to the list of disabilities by the Union Ministry of Social Justice through a bill in the Rajya […] The post Bombay high court orders state government to set up centers for children with learning disabilities appeared first on Autism Daily Newscast.
  • Animals and autism – Ethics and Safety Part 7

    Susan Dunne
    27 Jul 2015 | 2:00 pm
    In this final post of the series I’ll be looking at some of the ethical issues that arise when using animals in therapy and in particular the use of exotic animals. Whilst for the majority of people Animal Assisted Interventions will involve the use of smaller domestic animals, when it comes to animals assisting with […] The post Animals and autism – Ethics and Safety Part 7 appeared first on Autism Daily Newscast.
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    Autism Parenting Magazine

  • Help: I’m a Mom with an Autistic Child and am Afraid to Go Out

    Autism Parenting Magazine
    26 Jul 2015 | 3:00 am
    Question: I have two boys with autism and I find myself struggling with anxiety when it comes time to leave the house with them. I feel scared and short of breath. Plus, when I leave the house by myself,  I feel anxious that I’m going to get a call from the kids’ school, my husband, the therapists, etc. I never struggled like this before. What can I do? – Ann You are SO not alone! I have worked with many families who avoid outings entirely because it’s so stressful leaving the house with their special needs child. What you are experiencing is very common, because the truth…
  • Asperger’s Syndrome and the Power of a Good Diet

    Autism Parenting Magazine
    20 Jul 2015 | 3:00 am
    I find the suggestion that there needs to be a cure for autism an absolutely ridiculous notion. Coming as I do from a family where many of our men-folk exhibit spectrum behavior, spending much of their time in the garden shed whittling or inventing, my child fits right in with our collective history of quiet, deep thinkers with quirky habits. To me that’s all down to genetics and hard wiring, not so much a disease in need of a cure. Granted, our experience of Asperger’s has been what Uta Frith delicately defined as having ‘a dash of autism.’ Parents and carers of highly autistic…
  • Quotes About Autism

    Autism Parenting Magazine
    16 Jul 2015 | 6:41 am
    “Autism is not contagious, but my smile is.” “Autism doesn’t have to define a person. Artists with autism are like anyone else: They define themselves through hard work and individuality.” -Adrienne Bailon, Artist “Autistic today. Genius tomorrow.” “Don’t think that there’s a different, better child ‘hiding’ behind the autism. This is your child. Love the child in front of you. Encourage his strengths, celebrate his quirks, and improve his weaknesses, the way you would with any child.” “I am different, not less” -Dr. Temple…
  • Music May Hold the Key to Enhancing Language for Autistic Children – 7 Tips for Integration

    Autism Parenting Magazine
    14 Jul 2015 | 3:00 am
    Through my experience working with children with autism, on numerous occasions, I witnessed how music could enhance their speech, language and communication skills. Several times I noted that children with very little speech who had been described to me as almost non-verbal, could easily recall words from songs. I carried out research for a PhD at the University of Roehampton on the impact of music on speech and language for children with Autism Spectrum Condition (ASC). The research consisted of three separate phases: Semi-structured interviews (N=12) Questionnaire (N=320) Practical…
  • Interacting With Autism at the University of Southern California

    Autism Parenting Magazine
    11 Jul 2015 | 3:00 am
    Academy award-winning documentary filmmaker Mark Jonathan Harris began researching autism in 2009 when his two-year-old grandson was diagnosed.  Thus began a journey that is all too familiar to families with children on the spectrum — wading through the glut of information and misinformation available through the Internet.  As a documentarian and Distinguished Professor in the School of Cinematic Arts at USC, Harris had the benefit of experience with in-depth research, but witnessing firsthand the lack of vetted information made clear the need for a website that would provide a…
 
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