Autism

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  • Children with autism benefit from 'integrated play groups'

    Autism News From Medical News Today
    30 Oct 2014 | 12:00 am
    It's an often agonizing challenge facing any parent of a child with autism: How can I help my son or daughter socialize with his or her typically developing peers?
  • The Bus and the Waiting Room

    Reports from a Resident Alien
    Lisa D.
    29 Oct 2014 | 6:22 am
    I'm in the process of trying to get a case manager, possibly an aide of some kind. I've applied at the department of developmental disabilities; their waiting list is months long, and I'd need to make an appeal because I had an unusually late diagnosis, since as a child I was denied an evaluation for autism by a mother in deep denial and probably mildly autistic herself. I've tried to get an appointment with my primary care doctor; I made an appointment in August and still haven't seen them. My last resort was TCN community mental health services, which has in the past…
  • New Jersey Dad: "Reality Of Autism Is Often Very Grim"

    Facing Autism in New Brunswick
    H L Doherty
    27 Oct 2014 | 4:47 am
    I chose the name of my email account "AutismRealityNB@gmail.com" because, from my perspective, the harsh realities of autism disorders are usually ignored or worse,  intentionally misrepresented, by the mainstream media, autism awareness organizations, some high functioning autism "self"advocates and even some parents and autism professionals.  An online friend of mine who shares similar perspectives, Roger Kulp, shared an article on my Facebook timeline yesterday which surprised me because it was a commentary published in the New Jersey Courier-Post which presented a realistic view…
  • More Than 100 Genes Tied To Autism

    Disability Scoop
    Shaun Heasley
    29 Oct 2014 | 9:01 pm
    Scientists say they've identified scores of genes linked to autism, offering a greater understanding of the roots of the developmental disorder that could lead to better treatments.
  • When Medical Research Ethics Fall Short

    Look Me In The Eye
    18 Sep 2014 | 8:02 am
    A short while ago I was asked my opinion about a promising new treatment for depression being evaluated at a prominent research hospital.  I looked at the description on the hospital’s website, and it did indeed look interesting. I called the study coordinator for more details.He told me the therapy involved adding energy to parts of the brain that might be involved in depression, and evaluating the results over a period of several months.  After my experience with TMS (which adds magnetic energy to the brain) I felt the idea sounded promising enough to be worth…
 
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    AGE OF AUTISM

  • Dachel Media Update: Wow! Autism Has More Genes Than Levi Strauss!

    Age of Autism
    30 Oct 2014 | 3:00 pm
    By Anne Dachel Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand. Below is a sampling of the BIG STORY on autism. Check out...
  • IACC Call for Nominations: Another Charlie Brown Committee?

    Age of Autism
    30 Oct 2014 | 2:45 am
    We invite you to set forth your proposal for the man or woman you would like to see take a seat on IACC. We've had too many years of rocks in our sack instead of candy - not even Smartees!...
  • Dachel Media Update: MSNBC Salking over "Anti-Vaxxers"

    Age of Autism
    29 Oct 2014 | 3:00 pm
    By Anne Dachel Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand. Oct 28, 2014, MSNBC: On Jonas Salk's birthday, some perspective on health...
  • Sharyl Attkisson - Stonewalled

    Age of Autism
    29 Oct 2014 | 2:45 am
    By Anne Dachel Sharyl's book is being advertised in a number of places on the Internet and hopefully she'll get lots of interviews about it. (Despite the fact that she's criticizing the very people she'll be talking to.) For me,...
  • Dachel Media Update: Teacher Shortages, Post High School

    Age of Autism
    28 Oct 2014 | 3:00 pm
    By Anne Dachel Read Anne's commentary and view the links after the jump. The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand. Oct 28, 2014, Health Impact News: Flu Vaccine is the most Dangerous...
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    Autism News -- ScienceDaily

  • Dozens of genes associated with autism in new research

    29 Oct 2014 | 11:12 am
    Two major genetic studies of autism, involving more than 50 laboratories worldwide, have newly implicated dozens of genes in the disorder. The research shows that rare mutations in these genes affect communication networks in the brain and compromise fundamental biological mechanisms that govern whether, when, and how genes are activated overall.
  • 'Integrated Play Groups' help children with autism

    27 Oct 2014 | 3:29 pm
    'Integrated Play Groups,' which focus on collaborative rather than adult-directed play, are successful in teaching children with autism the skills needed to engage in symbolic play and to interact with their typically developing peers, according to new research. The new study offers hope to parents and providers of children with autism who are helping those children learn how to socialize.
  • Autism after high school: Making the transition

    27 Oct 2014 | 3:19 pm
    The National Institute of Mental Health has awarded a grant to find ways to help reduce or eliminate the disconnect from needed services that often occurs when students with autism complete school.
  • Group classes teach parents effective autism therapy, study finds

    27 Oct 2014 | 9:04 am
    Parents can learn to use a scientifically validated autism therapy with their own children by taking a short series of group classes, a new study has found. The study is the first randomized, controlled trial to test whether group classes are a good way to train parents on using an autism therapy.
  • Association between air toxics, childhood autism

    22 Oct 2014 | 7:35 am
    Children with autism spectrum disorder were more likely to have been exposed to higher levels of certain air toxics during their mothers' pregnancies and the first two years of life compared to children without the condition, according to the preliminary findings of an investigation of American children.
 
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    Ballastexistenz

  • Autistic catatonia + adrenal insufficiency and/or myasthenia gravis.

    Mel Baggs
    12 Oct 2014 | 4:06 am
    So as far as I know I’ve been/had: Autistic since birth, probably since before birth, knowing the current science and the repetitive movements my mom felt inside her. But definitely atypical stuff from day one, which are all small things high when added up in retrospect amount to autism. Diagnosed age 14, again ages 18-19. Autistic catatonia starting around age 12, diagnosed when the first major paper on it came out while I was 19. (Diagnosed by the same shrink who’d known me since I was 14.) Neuromuscular junction disorder, probably myasthenia gravis or hereditary myasthenia,…
  • Deliberately stressing me out is, at this point, assault.

    Mel Baggs
    12 Sep 2014 | 11:08 am
    That’s how I see it anyway.  I don’t mean disagreeing with me.  Anyone who wants to disagree with me can disagree with me as much as they want to.  I’m talking about personal attacks, and you people know who you are by now. I have severe adrenal insufficiency.  For those who don’t know what that means, it means that my body is not making cortisol.  I have to replace all of my cortisol with a steroid called dexamethasone, and I will be on dexamethasone for the rest of my life. Cortisol is one of the hormones that is called a stress hormone, meaning it gets used…
  • Lock and Key

    Mel Baggs
    12 Sep 2014 | 10:42 am
    If I could hand you just one thing It would be a Mason jar Filled with mud Collected at twilight On a rainy day From the ground Underneath a nurse log In a redwood forest In San Mateo County If I possessed this Mason jar It would be my most prized possession I would sleep curled around it Every night, all night long I would keep it always Closed up tight as it could close And I would hand it to you So that you could see all my secrets Because only a trustworthy person Would be able to find my deepest And most beautiful secrets In an old Mason jar full of mud Anyone not fit to find them Would…
  • Almost Alike: A Medical Cautionary Tale

    Mel Baggs
    26 Aug 2014 | 1:24 pm
    Medical bracelet that says “Adrenal Insufficiency”. I’ve been thinking about medical stuff a lot lately, so apologies if my posts tend towards the medical for a little while.It’s what happens when you suddenly realize how lucky you are to be alive, and how close you came to death.My father’s cancer has me thinking about life and death and medical care a lot, too. In my dealings with doctors, I have found that they like the solutions to their problems to be neat and tidy.In particular, they want there to be one diagnosis that explains all the symptoms they’re observing.They…
  • Unfolding

    Mel Baggs
    23 Aug 2014 | 6:42 pm
    Me with Fey sitting on my shoulder. Sometimes I want to unfold The beauty of the world As if it was the most intricate Origami flower That had ever seen the light of day Then I want to wait And wait Until the flower blooms for real Until its velvet black blossoms Tinged with purple edges Grow fuzz that you can run your hand over And I want to hand it to you And watch you rub the fuzz Against your cheek Against your lips Against your nose — The yellow-black stamens tickle And then fold the flower Back into paper And put it in my pocket For safekeeping I would make more of them And write…
 
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    Reports from a Resident Alien

  • The Bus and the Waiting Room

    Lisa D.
    29 Oct 2014 | 6:22 am
    I'm in the process of trying to get a case manager, possibly an aide of some kind. I've applied at the department of developmental disabilities; their waiting list is months long, and I'd need to make an appeal because I had an unusually late diagnosis, since as a child I was denied an evaluation for autism by a mother in deep denial and probably mildly autistic herself. I've tried to get an appointment with my primary care doctor; I made an appointment in August and still haven't seen them. My last resort was TCN community mental health services, which has in the past…
  • This Cool Thing My Cat Did

    Lisa D.
    19 Oct 2014 | 1:44 pm
    So today I'm walking down a hallway, shoes on and intent to getting to the door because, darn it, if I don't go shopping today I'll have to go a sixth day without a shower curtain. And Tiny, all twelve pounds of inquisitive nannyish boy-cat, comes down the hallway the other way. It's a narrow hallway because the apartment's small and there's a vacuum cleaner on one side of it, so we can't pass by each other comfortably.Tiny looks at me, looks at my big clunky shoes (which he hates me wearing, since they make me clumsy and noisy), and stops right where he is.
  • So she sent the cops after me...

    Lisa D.
    9 Oct 2014 | 1:21 pm
    Today at around two in the afternoon I was sleeping peacefully in bed, as my wonky circadian rhythm demanded. My alarm radio was going off and had been for about a half hour. I heard a knock at the door. It was the police, doing a welfare check. Apparently, my mother had called them and demanded that they check on me and get me to call her.The officer himself was decent about it, and I was well-rested and my communication was pretty good--no nightmarish police encounter here, thank God. I was asked what my diagnosis was (autism and depression), whether I had enough food (yes) and how I would…
  • Adult regression

    Lisa D.
    1 Oct 2014 | 2:31 pm
    I'm not coping nearly as well as I used to in the past.I recently dropped my classes, so I'm not in school anymore, but that's just the tip of the iceberg. I haven't been able to get anywhere or do much of anything useful.I used to be able to go shopping when I needed to, and it was difficult but I managed it. Now, I'm putting it off and putting it off until there's nothing in the house to eat. I used to be able to clean the house... now it's getting steadily dirtier and dirtier. I thought I'd mastered keeping myself clean--ditto; I'm lucky if I take a…
  • Love

    Lisa D.
    26 Sep 2014 | 11:29 pm
    Someone at Wrong Planet recently posed the question, "What is love?" Here's my answer.Love is having among your top priorities the well-being and happiness of another living creature. It means that their happiness brings you satisfaction and that you act in ways that benefit them, and that even when you don't feel emotionally connected, you still persist in making decisions with their interests in mind.I've thought about it some, and I think that by this definition it is actually possible to love people who never do anything but annoy you--or people you have never even…
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    drive mom crazy

  • Know your Voice, Know your Identities, Know your supports, and Live a Self-Determined Life

    theamazinj
    19 Oct 2014 | 5:08 am
    An Open Letter to the many primary and secondary educators as well as the many professionals who try to create tokens to Autistic and other Disabled people who they don’t give proper education to own their identities and opinions, It’s important to create a better way for the Autistic/Disabled children and adolescents of the future adults of the Disability community and the broader community in the world. It’s important as well to create a system where the adults in the Disability community today finally know their voice and their identities count too. People need to develop…
  • The Importance of Being A Role Model for Others

    theamazinj
    30 Aug 2014 | 1:36 pm
    Many people need role models to be able help facilitate and empower their life. A role model we seek out, helps us build who we are by giving us the opportunity to reach for our proudest moments. There are many things we look for in a role model. A role model needs to be a responsible person who knows who they are, how they want to be represented, knows how to take care of their own needs, and knows how to get what they want. It’s important for a role model to be able to set and enforce their boundaries for themselves whether it is a verbal, non-verbal, or a physical boundary we set for…
  • Always Remember It’s Okay to Feel what we Feel as Individuality

    theamazinj
    22 Aug 2014 | 5:23 pm
    Being who I am, I am easily swayed to think one way or the other. Organizations like Autism Speaks and the media know how to easily manipulate people to think their opinion is the right opinion. No opinion is wrong, but we need to be more intuitive as a World Wide theme. Are psychiatrists seeking a cure for autism? Many just say they are seeking to help the individuals live their life better. Helping is good, but no person or group of people can overtly talk against a certain culture to eradicate them. Society needs to give everyone their choice of living their life without suggesting or…
  • A Poem and a Challenge for you from Drive Mom Crazy Blog

    theamazinj
    12 Aug 2014 | 4:22 pm
    Life bleeds, life burns, life scars, life rejoices, life reoccurs, life sulks, life smiles, life rises, life declines, but most importantly, life emerges from the distance as either a rising up to the sky or a rebirth and rejuvenation to live it all over again. Life cries with weeping tears, life misses other people, but life also brings the spirit to all of us to live our life. I know the passing of great people in our lives is saddest when we can’t seem to fathom why? Why them and not US? Why them and not I? Our mission is one and our mission is whole, our mission is guided, and our…
  • 5th Annual Autistic Artistic Carnival is UP!!!!

    theamazinj
    17 Jun 2014 | 9:24 pm
    As you watch and look at all the creative Autistic artists who submitted their talented works in the 5th Annual Autistic Artistic Carnival, I would like to thank all those people and groups that promoted the Carnival for me this year. Thank you to Landon Bryce at ThAutcast at his Facebook page, Thank you Thinking Person’s Guide to Autism and their Facebook page, Thank you to the Artists and Autism Facebook page, and Thank you to the many other individual people who promoted the Carnival for me including Renee Salas. If I missed anyone specifically please let me know and I will add you…
 
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    Left Brain Right Brain

  • Emily Willingham: winner of the 2014 John Maddox Prize for Standing up for Science

    Sullivan (Matt Carey)
    28 Oct 2014 | 11:24 am
    Emily Willingham is one of the best writers on the science and social aspects of autism. She also writes on other topics and is an accomplished researcher. Her journalism can be found at her site, EmilyWillinghamPhD.com, The Thinking Person’s Guide to Autism (the Site and the Book), DoubleXScience, Forbes, and elsewhere. With all that in mind, it’s great to see that she’s been recognized for her work. SenseAboutScience.org has announced that she will share the 2014 John Maddox Prize for Standing up for Science: Dr Emily Willingham and Dr David Robert Grimes are the two…
  • Nick Walker on Neurodiversity: Some Basic Terms & Definitions

    Sullivan (Matt Carey)
    24 Oct 2014 | 5:46 pm
    Nick Walker starts his introduction with “I’m an Autistic educator, author, speaker, transdisciplinary scholar, activist, parent, and martial arts master.” His writing is excellent and I’d highly recommend adding Neurocosmopolatinism to your list of blogs to track, if it isn’t there already. A recent article by Mr. Walker covers the topic of neurodiversity clearly and accurately. It’s a great resource: Neurodiversity: Some Basic Terms & Definitions. It is one of those articles I’d like to copy in it’s entirety. But instead I’ll send you…
  • Andrew Wakefield and Brian Hooker complain. Not honestly, but they complain

    Sullivan (Matt Carey)
    23 Oct 2014 | 1:35 pm
    Andrew Wakefield and Brian Hooker have lately been trying to manage a “cdc whistleblower” story. The idea has been covered a lot recently, here and elsewhere. So, rather than go into more introduction, let’s take a look at the complaint they recently filed with the CDC office of research integrity. It’s long, so I’ll bring up a few glaring problems with the complaint letter. These problems have for the most part already been discussed here at Left Brain/Right Brain. The basis of their arguments has been that allegedly the CDC found a statistically significant…
  • Globanews.ca reports:Health Canada seizes dangerous health product

    Sullivan (Matt Carey)
    20 Oct 2014 | 11:53 am
    The article is very short but the news is good–Health Canada has gone beyond issuing warnings about MMS (also known as CD protocol, CDS, Chlorine Dioxide Solution, Magic Mineral Solution). They have seized the product from one supplier: According to Health Canada, MMS contains sodium chlorite, which is used as a textile bleaching agent and disinfectant. An alternate form of MMS, which is called CDS, is also being sold on the same web site. It would have the same risks associated with it as MMS. Health Canada has now seized the product since sodium chlorite is not approved for human…
  • A new Autism Media Channel video. A chance to watch some sleight of hand

    Sullivan (Matt Carey)
    17 Oct 2014 | 10:18 am
    Andrew Wakefield has a new video with stunning new revelations of malfeasance by the CDC. Well, that’s what he wants you to think. Let’s take a look and see how well his story stands up to scrutiny, shall we? To do this I’ll highlight two of the problems with the video.  The first I’ve already discussed some: Mr. Wakefield claims the CDC hid a result but the CDC actually published it. For the second problem, let’s follow Mr. Wakefield as he creates a timeline showing us how the CDC’s research plan was supposedly revised in response to some analysis…
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    Susan's Blog

  • The Circle of Friends

    Susan Senator
    12 Oct 2014 | 6:04 am
    I was in the lobby when those first notes from “Circle of Life” broke through at the autism-friendly Autism Speaks-supported Lion King at the Boston Opera House. I was standing just outside the doors, as Main Floor Navigator, in the lobby with the actors about to walk through the doors onstage. They were the animals coming to see the new baby Lion. I stepped backwards to give them more room. I felt like a child allowed to be at the adult party. All around me the actors had their costumes half-on, with the masks on the floor, at their feet. Huge hairy water buffalo heads rose from…
  • My Facebook Troubles

    Susan Senator
    10 Oct 2014 | 6:25 pm
    Okay, and here is my latest Washington Post Oped, about my troubles with Facebook. It’s all true, bro. Yeah, it’s already up on FB, too.
  • The Untapped Potential: Autistic Adults

    Susan Senator
    10 Oct 2014 | 4:36 am
    Here is where you can find my latest piece for WBUR-FM’s “Cognoscenti” column, a propos to President Obama’s recent authorization of $450,000,000 in grant money to community colleges that partner with employers.
  • Can you feel the love on October 11?

    Susan Senator
    30 Sep 2014 | 7:34 am
    Family-friendly Broadway is nothing new, and its success is no surprise. But autism-friendly Broadway is a stroke of marketing genius. Billed as “judgment-free, ” these shows generally offer a stimuli-sensitive environment: low light and sound, quiet space, autism specialists available for extra support. There have been pockets of such performances offered around the country in the last six years but Theater Development Fund’s (TDF) Autism Theatre Initiative has taken the concept to a new level. TDF has been funding overwhelmingly popular performances – most recently the Lion…
  • Great News About the ABLE Act!

    Susan Senator
    19 Sep 2014 | 1:43 pm
    This article is from the Disability Scoop, by Michelle Diament. If you are a person with a disability and you have Medicaid benefits, the bipartisan ABLE Act would allow you to save up to $14,000 a year, and up to $100,000 total, rather than the current $2000 total  — and you would not lose your Medicaid benefit. You could save for a home, education, transportation…
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    Life With Joey

  • Attitude

    Joeymom
    21 Oct 2014 | 8:34 pm
    Well, here it is, October. The seasons change, the light slants through the sky at different angle, the air chills, the leaves fall, and Joey goes bazonkers. I am pretty sure the season change is part of the problem for him, because we have the same thing happen in the spring. When Joey gets off-kilter with the change of season, he can't help it. He feels it, and his frustration goes up, he goes into severe silly moods, the swings of mood can be dramatic. He doesn't like it any more than anybody else, but he also has no where to go with it.Add onto that puberty. Then, a new school, and…
  • Our Latest Adventure

    Joeymom
    18 Oct 2014 | 12:57 pm
    As if I have lots of extra time for writing blog posts- evidenced by the lack thereof here- I have started a new blog for Andy's homeschooling and our experience with it. The Learning Squirrel will be chronicling our Adventures in Educating. Here's hoping it will be awesome.
  • The Elephant in Room

    Joeymom
    15 Sep 2014 | 5:43 am
    I did a little experiment this week. I commented on a story about Kelli Stapleton. For those who don't follow news, Kelli Stapleton attempted a murder-suicide of herself and her 14-year-old autistic daughter, Issy. She was well-known in the parenting circles, and a friend to many people I know. Like many such stories, this one has gathered a very specific rhetoric, the "for Kelli" crowd and the "anti Kelli" crowd. That rhetoric has become so strong and loud, it has drowned out any other ideas or voices, and everyone is expected to pick a side and then be torn to shreds by the other.It isn't a…
  • Empathy

    Joeymom
    12 Sep 2014 | 8:28 pm
    We have two new fur babies. Joey has been so excited about getting his very own cat, especially in the throes of still missing Luna. We finally brought them home.This is Joey's kitty, Lily. She looks suspiciously like Luna.This is Andy's kitty, Marshmallow. She is totally not shy. At. All. And she approves of the changes in her fortunes. At long last, we found our kitties, and Joey was looking forward to seeing her home safe when he came home from school. Andy and I picked them up from the shelter, and took them directly to our vet (do not pass Go, do not collect $200), and had our vet…
  • Week One of the Big Changes: Success!

    Joeymom
    6 Sep 2014 | 7:49 pm
    I have to say, one week in... well, half a week, since Joey started school on Wednesday, so that's also when Andy and I started official lessons... and so far, so awesome.The first week of school for Joey the last few years has always been... well, a disaster, really. This year? His teachers allow hugs. They help him, they guide him, they make it clear what their expectations are and provide him tools to meet them. They are busy teaching him those tools right now. He gets the attention he craves, and his fellow student thinks he's the bee's knees, and doesn't tease or otherwise make fun of…
 
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    Look Me In The Eye

  • Is Autism a Failure of Prediction?

    6 Oct 2014 | 2:00 pm
    This afternoon a group of MIT and Mass General researchers released a study called “Autism as a disorder of prediction.” In this paper, they argue that autistic people “experience things they don’t understand,” because our predictive ability is impaired.Read the paper hereInteresting as this sounds, a close reading reveals the premise as totally at odds with my lived experience.  I think of myself as a friend to those engaged in autism research, and I hate to come out in criticism of a newly released piece of work, but in this case I feel their conclusion are just wrong.Anyone…
  • When Medical Research Ethics Fall Short

    18 Sep 2014 | 8:02 am
    A short while ago I was asked my opinion about a promising new treatment for depression being evaluated at a prominent research hospital.  I looked at the description on the hospital’s website, and it did indeed look interesting. I called the study coordinator for more details.He told me the therapy involved adding energy to parts of the brain that might be involved in depression, and evaluating the results over a period of several months.  After my experience with TMS (which adds magnetic energy to the brain) I felt the idea sounded promising enough to be worth…
  • Fall is the season for Fairs

    14 Sep 2014 | 10:03 am
    One of the things I love about fall is the fairs and carnivals.  The biggest of them all – where I live at least – is the Big E in West Springfield, Massachusetts.  It’s two weeks and three weekends of action, and I take thousands of photos there every year.One of my favorite places is the circus tent, where I see things like this:Professional cat catchers stand ready to rescue a leaping felinePlaying with fire under the circus tentMotorcycles and acrobatics, fifty feet off the floor. With no safety net.They've always got a full house, so get there earlyYou will never guess…
  • A Briefcase Full of Dreams

    29 Aug 2014 | 7:43 pm
    Where were you in ’78? I was 21 years old, trying to make a place for myself in a world of adults.  My clients were musicians, but the people who paid me were businessmen, and I had to make a good impression.That meant button up shirts, a nice pen in my pocket, and the ultimate professional accessory . . .  a real leather briefcase.  Fifty dollars was a lot of money for me then, but I must have chosen well ‘cause it’s still in good shape today . . .Outside – quiet and conservative.Inside – rock and roll passes and sound engineer business cards told the rest of the…
  • Robin Williams, and thoughts on suicide

    12 Aug 2014 | 1:12 pm
    Midnight, in the graveyard at Bruton Parish Church in VirginiaThis morning I awoke to the news that comedian Robin Williams had killed himself, at 63.  He’s the latest of a long line of creative people to take his own life.   Every time a performer or artist kills himself I ask if this is an unavoidable hazard of the arts, or if something might be done about it.News sources say Williams was “wrestling with depression” when he did himself in.  I myself have wrestled with depression, as have many people around me.  The question of why some of us choose suicide,…
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    Adventures in Autism

  • Please Stop Redefining Autism to Suit Your Own Agenda

    Ginger Taylor
    24 Oct 2014 | 1:51 pm
    So over at TMR, The Eagle wrote a piece on the heat that she has been subject to because she used the word “recovery” in relation to her son's autism. “I always grew up believing the F-word was something we didn’t say. But it turns out that in the autism world, the R word is definitely the bad word.Recovery.It’s all raising its ugly head as I am releasing my book, which has a tag line of “A son’s recovery.” Whoa!“How dare you insinuate your son doesn’t have autism anymore? Just because he’s functioning, doesn’t mean the autism isn’t there.”“You can’t ever…
  • One of Our Moms Needs Help

    Ginger Taylor
    30 Sep 2014 | 2:03 pm
    Some of you may know autism mom, Melanie Baldwin, a founder of The Thinking Moms' Revolution and subject of Jessica's Lioness Arising blog post.Melanie is a mom who is battling cancer for the third time.  She also has a son with profound autism.  The cost of caring for a child with autism is astronomical, but coupled with the cost of battling cancer, it's insurmountable unless they have help.If you'd like to help, Melanie's Give Forward page can be found here.  Thanks for reading, and please share!
  • My Op Ed in the Portland Press Herald on the Real Reasons for the Growing Vaccine Refusal

    Ginger Taylor
    2 Sep 2014 | 10:29 am
    So in July, I was interviewd for an hour for an article on vaccine refusal in the Portland Press Herald.  I long story short, they did a hatchet job on me.  So I wrote an op ed response, and they actually printed it. Please visit and comment. "Maine Voices: Breakdown in accountability at heart of decline in vaccinationsOpposition to the current U.S. vaccination program is based on its failures, denial and bad law and policy.BY GINGER TAYLORBRUNSWICK — I was interviewed for an Aug. 9 front-page article by Joe Lawlor, titled “More Maine families are skipping or delaying childhood…
  • Invisible Threat: Ugh.

    Ginger Taylor
    24 Jul 2014 | 12:24 am
    I've been gone for a long time doing Health Choice and media work... please forgive... blah blah blah...So tonight I was down in Portland for some business meetings, and after the first Scott and I walked two blocks to Starbucks for a coffee.  I was at the table when he brought my drink and dropped a piece of paper in front of me.  "Look what I found on their bulletin board."It was a flier for the new "hit" vaccine propaganda piece, "Invisible Threat."  (Since when to people who are in a film, review the film? Oh wait... HHS owns patents on the vaccines it licenses and…
  • I Refuse To Be Enlisted Into The "Mommy Wars"

    Ginger Taylor
    17 Apr 2014 | 10:34 am
    So the attack on vaccine resistant parents in the media this "autism awareness month" has been nothing like any of us has ever seen before.  Even Paul Offit has taken a departure from his oh so laid back and wise doctor act to get nasty on us.  Pharma needs not only for parents to be ok with the current recommended schedule, but to be open to the open ended vaccine schedule that will include the 200 or so vaccines they have in their development pipeline.  They do not want to come to terms with the fact that their market has reached it saturation point and it is all downhill…
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    Squidalicious

  • Milestone Land

    Shannon Des Roches Rosa
    27 Oct 2014 | 11:45 pm
    We never leave the land of milestones. That's probably a good thing.First kid to get their driver's permit, and take a driving lesson (Iz)First time one of our cats gets attacked by a bobcat (our TacoCat, she's going to be OK)First time we leave Iz and Mali home together (So I could go to the emergency vet, see above)First time Leelo has a full dental cleaning without anesthesia (thanks to years of hard work on his and his dentist's part) First time our dude learns to run the bleachers (video at bottom)First time Mali gets a yellow belt in KarateFirst time Leo and his stylist insist on me…
  • Follow Up: Radiolab's Underwhelming "Juicervose" Autism Coverage

    Shannon Des Roches Rosa
    28 Sep 2014 | 8:18 am
    Mali, shortly after getting into a verbalsparring match with Demetri MartinAt a 2011 Radiolab show in Berkeley.[Image description: girl with beige skin andbrown fuzzy hair pulled back, wearingwire-framed glasses, smiling, wearing a multicolored long sweater,in front of a blue screen with white words inside a black box reading: "IN THE DARKwith Thao Nguyenand Demetri MartinPILOBOLUSRADIOLAB"]One week later, I am still so sad that Radiolab bungled their Juicervose autism episode. I've been wanting and waiting for them to do a truly autism-focused episode for just about ever. I even wrote about…
  • Amplify This: "Don't Murder Your Autistic Kids"

    Shannon Des Roches Rosa
    13 Sep 2014 | 6:30 am
    When we hear that a mother has tried to murder her own child, most people howl in agreement that the mother deserves to be prosecuted to the fullest extent of the law. Most would be angry if that mother successfully plea bargained her attempted murder charge down to child abuse. Most people would not "understand" mothers abusing or murdering their kids.Autistic, Not Less Valuable[image description: Leo in foreground, Golden Gate Bridge & camera-wieldingtourists in background]Most people would feel that way, unless they learn that the child in question is autistic or otherwise disabled.
  • So What if God Is Change; Change Is Hard.

    Shannon Des Roches Rosa
    4 Sep 2014 | 12:20 pm
    Anything different is bad. That is Leo's mantra. It's also mine. And we have had a lot of change lately. None of it is truly awful, but some of it sucks, and some of it is just different, and all of it means adjusting. Those of us who are happiest wallowing in our ruts simply prefer not to emerge unless we have to, like contented little piggies in nice squishy mud. Lots of "have to" just now. Which means I've got a lot of "Oh, bother," after my role model Winnie the Pooh. Much of that "have to" is not really bloggable, but here's what is (what I can recall right now, anyhow).Mali has started…
  • Blogust: When Your Comments Save Lives

    Shannon Des Roches Rosa
    1 Aug 2014 | 10:08 am
    August = Blogust. And Blogust is the wonderful time of year when the UN Foundation's Shot@Life taps members of the social media milieu and Blogosphere, to use our synergistic connectivity to save lives: "Every time you comment on or share the Blogust posts, Walgreens will help provide a life-saving vaccine for children around the world who need them most."That means that every comment -- on this post, or on one of the Blogust14 posts that will be rolling out during this month of August -- is literally a chance to save a life, to get a vaccine to a child who otherwise would not get have that…
 
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    Karianna

  • How laziness got my son to work harder: Middle-School Logic

    22 Oct 2014 | 6:03 pm
    Last year, my son was Third Chair of Violins II. He lost a Chair Challenge, so ended up being Fourth Chair for a bit. But he worked hard to get back to Third Chair. Why don't you challenge for Second Chair? I wondered. He laughed at me. No way, because the even numbers turn the pages in the music. I'm too lazy. This year, he was assigned Second Chair. For the last couple weeks, he's been practicing his violin more than I've ever witnessed. I'm going to Challenge, he told me. And today,... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • What Other People Think

    20 Oct 2014 | 3:15 pm
    We aren't supposed to worry about what other people think of us, right? And yet, we are expected to dress fashionably. Or wear make-up. Instead of recovering after spinal surgery, I was supposed to make sure my house was presentable for the visitors that would come to wish me well. We're told "you never get a second chance to make a first impression" and of course there are entire industries dedicated to improving one's looks or one's social skills. The stats talk about how people need people... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • ViaCord: Future lifesaver for someone you love?

    14 Oct 2014 | 8:15 am
    Fourteen years ago, I was a graduate student in neuroscience living in New York, and I was pregnant with my first child. As part of my education, I attended classes and special talks about a variety of scientific topics. Stem cells were seen as a possible research tool and a promising future way to assist treatment of a variety of conditions. Meanwhile, filled with the typical jitters about becoming a mother and wanting to protect my child at all costs, I researched cord blood banking. I wanted... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • I will be voting NO on Prop 46.

    26 Sep 2014 | 1:08 pm
    People in my area know the Pack Family story (which is behind this Proposition.) It was indeed a tragic situation. BUT, the way Prop 46 is written, it will NOT prevent what happened to Troy and Alana Pack from happening again. It will be difficult for people to separate the personal connection to the Pack Family with how the Prop is actually written, and thus, what the actual impact would be. But, I urge people to really look at the consequences this proposition would have should it... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
  • tempus fugit

    11 Sep 2014 | 10:58 am
    We're wrapping up the third week of school, the first full week. Only three weeks, though it feels as though I've lived three months during that time. On the second day of school, my physical therapist found a "burn" on my leg. I didn't have time to get it checked out right then, though, because I received a call from the middle school that my son was vomiting and wanted to come home. One thing led to another, and he ended up in emergency surgery for testicular torsion. (Look that up if you... [[ This is a content summary only. Visit my website for full links, other content, and more! ]]
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    Stimeyland

  • Race Report: Bourbon Chasers*

    Stimey
    24 Oct 2014 | 8:37 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Bourbon Chase or Bust

    Stimey
    7 Oct 2014 | 6:31 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • Alex Is Furious With Each and Every One of You

    Stimey
    6 Oct 2014 | 5:38 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • To Bassoon or Not To Bassoon?

    Stimey
    5 Oct 2014 | 7:55 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
  • A Word About the Albatross

    Stimey
    3 Oct 2014 | 7:50 pm
    Stimeyland Has Moved! Update your Reader Now. This feed has moved to: http://feeds.feedblitz.com/Stimeyland (Click here to get to the subscription page.) Once you clicked the above and are on the new subscription page, just click how you want to subscribe at the top right. I know this is SO obnoxious. I'm sorry. Please subscribe!! I promise lots of funny new embarrassing stories and heart-string pulling posts if you do! Please? OR! Visit www.stimeyland.com and subscribe by email from the sidebar. http://feeds.feedblitz.com/stimeyland
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    Disability Scoop

  • More Than 100 Genes Tied To Autism

    Shaun Heasley
    29 Oct 2014 | 9:01 pm
    Scientists say they've identified scores of genes linked to autism, offering a greater understanding of the roots of the developmental disorder that could lead to better treatments.
  • For Many With Disabilities, Special Education Leads To Jail

    Jackie Mader and Sarah Butrymowicz, The Hechinger Report
    29 Oct 2014 | 8:16 am
    Far too often, students with disabilities end up on a path to prison when their behavioral and emotional issues are not well addressed at school, experts say.
  • Support Urged For Families Weighing Out-Of-Home Placements

    Shaun Heasley
    28 Oct 2014 | 12:36 pm
    While the vast majority of kids with developmental disabilities are cared for at home, pediatricians are being reminded that out-of-home placements remain an important option.
  • Course Focuses On Interior Design For Those On The Spectrum

    Lauren Roth, Orlando Sentinel/MCT
    28 Oct 2014 | 12:20 pm
    An interior design course at one college is teaching students to make homes functional, practical, safe and aesthetically pleasing for people with autism and their families.
  • Teen With Disability Found Locked In Cage

    Kate Hessling, The Huron Daily Tribune/MCT
    28 Oct 2014 | 12:05 pm
    Two adults were arrested after a 19-year-old man with a disability was found trapped in a cage that was chained shut.
 
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    Facing Autism in New Brunswick

  • New Jersey Dad: "Reality Of Autism Is Often Very Grim"

    H L Doherty
    27 Oct 2014 | 4:47 am
    I chose the name of my email account "AutismRealityNB@gmail.com" because, from my perspective, the harsh realities of autism disorders are usually ignored or worse,  intentionally misrepresented, by the mainstream media, autism awareness organizations, some high functioning autism "self"advocates and even some parents and autism professionals.  An online friend of mine who shares similar perspectives, Roger Kulp, shared an article on my Facebook timeline yesterday which surprised me because it was a commentary published in the New Jersey Courier-Post which presented a realistic view…
  • SUDEP Awareness Day and Autism Disorders

    H L Doherty
    23 Oct 2014 | 6:08 am
    A much higher percentage of people with autism spectrum disorders suffer from epileptic seizures than among persons in the general population.   At the severe end of the autism "spectrum" it has been estimated that as many as 39% also suffer from seizures.   My severely autistic, intellectually challenged son Conor suffers from seizures including tonic clonic known as Gran(d)  Mal seizures and almost lost his life last year to an adverse reaction to his seizure med at that time.  Among persons with epilepsy there are many risks surrounding loss of consciousness…
  • Canada's Autism Awareness Month? Not Much Awareness Going On ... Once Again

    H L Doherty
    17 Oct 2014 | 3:37 am
    October, for what its worth, is Autism Awareness Month in Canada.   You will probably see performances by persons with Asperger's or high functioning Autism.  There will be wonderful success stories and accomplishments shared to give parents hope, in many cases false hope, about their child's future. There will be little mention, if any, of the persons who suffer from severe, low functioning Autism Spectrum Disorder.  There will probably be little about such serious issues as sensory challenges, self injurious behaviors, meltdown, wandering resulting in injury and…
  • Canada's Autism Awareness Month Message: Autistic Children Become Autistic Adults

    H L Doherty
    4 Oct 2014 | 2:37 pm
    Autism Awareness Month: Autistic Children Become Autistic AdultsOctober is Autism Awareness Month in Canada.  As a father of an 18 year old son with severe autism disorder, profound developmental delays (like 50% of the autism spectrum according to the World Health Organization) and seizures which also affect many with autism I can tell you from personal experience that autistic children become autistic adults. Enjoy your child's early years and student years but do not forget that they will grow up and many will need enhanced adult autism residential care and treatment.With other…
  • Severe Autism Reality: Conor is Back from Dental Surgery AND Post Surgery Medications

    H L Doherty
    3 Oct 2014 | 3:32 am
    After last Friday's dental surgery, followed by nearly a week of 4x a day anti-biotics, and the occasional pain killer to deal with swelling and pain, (in addition to his regular seizure meds)  it was great to get out for a Superstore trail walk with Conor on an amazingly perfect fall day in Fredericton yesterday. Conor set the pace as always but had time to be nice to Mom.
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    Autism Jabberwocky

  • Neurodiversity : Biological Fact or Fiction?

    M.J.
    26 Oct 2014 | 12:13 pm
    I don't think it will come as a shock to anyone who has been reading this blog over the years that I don't care for the idea of neurodiversity.  The core idea of neurodiversity - that everyone is different and should be accepted for who they are - is a pretty simple and obvious idea and one that I completely agree with.  But the neurodiversity movement doesn't stop with just that simple idea and piles so much other crap on top of it that core principle is distorted beyond recognition.You start with the idea that a person should be accepted as a person even if they are different and…
  • Research Shenanigans At The CDC

    M.J.
    13 Sep 2014 | 7:10 am
    Unless you have been hiding under a rock for the past couple of weeks, you might have noticed a little story going around about a "CDC Whistle-blower" or whatever you want to call it.  Most of you probably know the story so I am not going to talk about the study, counter study, recording of secret informants, or whatever the current drama is surrounding the story.  Plenty of other people have done that, and badly I might add (no, it IS a doctored picture of cell phone text message screen and I should know because I am a doctor).Nor am I going to add yet another opinion to the ever…
  • Autism Rising : The Emperor's New Clothes

    M.J.
    30 Mar 2014 | 6:42 am
    It's that time of the year again - winter is finally starting to fade, spring is in the air, and Autism Awareness month is right around the corner.  Which means that it is time to play one of my favorite games - rationalize about the latest massive increase in the rate of autism.In case you haven't heard, the CDC just this week released the latest in its series of reports on autism prevalence.  This new report which looked at children who were eight in 2010 found that overall 1 in 68 children had a form of autism - 1 in 42 boys and 1 in 189 girls.   Since a picture is worth a…
  • ASAN on Non-Verbal Autism

    M.J.
    22 Dec 2013 | 8:17 am
    Just in time for the holidays, the Autistic Self Advocacy Network (ASAN) has put out a new video promoting its views of autism.  The video is pretty much in line with most of what they have said in the past but there is one very prominent theme that I wanted to talk about. So, first thing first, if you haven’t seen the video, go watch it here.  Did you notice how non-verbal autism was portrayed?  If you missed it, here are a few lines from the video about what it means to be non-verbal - People know what "nonverbal" means: I can't speak, so I use my computer to communicate.
  • A Tale of Two Communities

    M.J.
    19 Nov 2013 | 3:47 pm
    An inconsistency concerning Autism Speaks has been bothering me for a while now and, in light of the controversy surrounding the organization in the past week, I thought I might take this opportunity to write about it.There is this idea that I have seen repeated in numerous places online that the "autism community" isn't all that fond of Autism Speaks.  Whether it is the "pro-vaccine choice" community, the "anti-cure" "just a difference" groups, the "independents" in between, or whatever group you want to talk about, everyone seems to say that they either don't like or are ambivalent…
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    Countering...

  • The Cost of Admission

    K Wombles
    11 Oct 2014 | 10:15 pm
    Some days, nothing goes the way we plan. Some days, our plans are completely derailed and we want to throw our hands up in the air and give up. Sometimes those days stretch into weeks and months. We can't see any light, not even a glimmer. We waiver, we weaken, and we surrender. The way we surrender, though, determines our outcome. Do we surrender and give up completely or do we surrender our illusion of control and let go?It's not been an easy few months, and I would, if I believed in luck, say we've been short on it. But I don't believe in luck, and despite or because of the law of…
  • The Yogibo Max

    K Wombles
    26 Sep 2014 | 7:44 am
    10% off coupon code: CounteringLast week, I was contacted by Yogibo.com to see if I'd be willing to accept one of their bean bags to review, specifically in terms of how my children on the spectrum found it. When I looked at the site, I started drooling. We were very kindly sent the Yogibo max, which is six feet by two feet by two feet and priced at over $200.I am in love with this bag. My girls are in love with it. My husband slept on it, it's that big. The cats are impressed. And the dogs think it is theirs when no one else is on it. The girls have laid on it, reclined on it, laid…
  • A Sunday Epiphany: I was due one

    K Wombles
    21 Sep 2014 | 7:23 am
    You ever notice how epiphanies come  at the weirdest of times, you know, like at six in the morning when you are sitting on the toilet surrounded by six cats of various sizes all meowing and some of them climbing on you? And you're talking to them suggesting that if they weren't climbing their way up your body, you would totally be able to pee quicker and then they'd get fed quicker and it would be a win-win for everyone and then the dogs wander in and wonder where their cat food is?Yeah that. But still I had an epiphany, which the critters were not impressed with when I yelled loudly,…
  • Whatever. The other title was great before you ate it, Blogger.

    K Wombles
    20 Sep 2014 | 9:18 pm
    “I've crossed some kind of invisible line. I feel as if I've come to a place I never thought I'd have to come to. And I don't know how I got here. It's a strange place. It's a place where a little harmless dreaming and then some sleepy, early-morning talk has led me into considerations of death and annihilation.” ― Raymond Carver, Where I'm Calling From: New and Selected StoriesI was freaking insightful but blogger ate it, so you don't get to appreciate that incredible epiphany.Don't worry. There wasn't really an epiphany, I rambled about being lost, absent minded,…
  • Break, then--that's what crazy glue is for

    K Wombles
    6 Sep 2014 | 8:33 pm
    Several years ago, I was told by my therapist, who was trying to be helpful, that if I hadn't broken yet, I wouldn't in the future, in response to my concern that I would face the same mental health issues some family members had, that I would, in fact, at some point break.That's stuck with me, but not because it made me feel better about the several challenges I was facing, but because it made me feel pressured to continue to be the one that kept on going, didn't make major foul ups, to keep being the responsible one.That one sentence from my well-meaning therapist, meant to…
 
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    Different Roads to Learning Blog

  • Tip of the Week: Communicating with Paraprofessionals to Support Your Learner

    Different Roads to Learning
    30 Oct 2014 | 11:27 am
    Many students with autism and other developmental disabilities have an IEP that mandates a 1:1 paraprofessional (called an instructional assistant or teaching assistant in some states, but referred to as paraprofessional for the purposes of this article). Recently, I had the opportunity to provide a workshop to a large group of paraprofessionals in New York City. I was surprised to hear how some felt disconnected from the families of their students, especially considering how deep their relationships are with their students. My conversations during that workshop caused me to reflect upon my…
  • Pick of the Week: Social Skills Games to Teach What’s “Just Right”

    Different Roads to Learning
    28 Oct 2014 | 6:23 am
    People communicate using not only words, but also tone of voice and body language. Many children, however, fail to notice these relatively subtle social cues in self-expression and personal space. This week, we’re featuring two of our newest social skills games, Too Much, Too Little, Just Right and Too Close, Too Far, Just Right to help you teach your learners what is “just right” in social situations. Use our promo code JUSTRIGHT to save 15%* on your sets! Too Much, Too Little, Just Right teaches children to pay attention to tone of voice, observe body language, and note…
  • Just Added! Tiggly Counts – Learn math with fun, interactive apps

    Different Roads to Learning
    27 Oct 2014 | 6:23 am
    A playful world of math learning awaits in the all-new Tiggly Counts! From the award-winning makers of Tiggly Shapes, Tiggly Counts is a set of 5 counting toys that interact with 3 free iPad apps to connect children to a playful world of math learning. The apps and manipulatives work in tandem to develop a child’s number sense, counting skills, understanding of math operations, and more. The 3 free apps include Tiggly Chef, Tiggly Cardtoons, and Tiggly Addventure, and introduce children to a wonderful world of lovable characters that surprise and delight, as they learn essential early…
  • Tips for Costumes & Trick-or-Treating for Kids on the Spectrum: Getting Ready for Halloween

    Different Roads to Learning
    23 Oct 2014 | 4:40 am
    October means it’s time for trips to pumpkin patches, ghastly goblin decorations, and candy corns galore. So what better time than now to share this wonderful guest article about getting ready for Halloween by BCBA Claudia Mármol.  Claudia shares with us a few tips on how to make dressing up and trick-or-treating as seamless as possible for a child on the spectrum. _______________________________________________  Wouldn’t it be fun to have your child dress up in their favorite TV character or have them pick up their costume for this Halloween? Most parents would answer “Yes” to…
  • “When This Mom Couldn’t Find What She Needed To Help Her Autistic Daughter, She Created A Site That Could”

    Different Roads to Learning
    22 Oct 2014 | 11:15 am
    We’re incredibly THRILLED to share this inspiring feature on our President and Founder Julie Azuma just published today on Huffington Post. Julie was recently featured in Marlo Thomas’ new book It Ain’t Over… Till It’s Over, which reveals the stories of 60 different women who prove that it’s never too late to live out a dream. Brimming with anecdotes that will inspire smiles, tears, and—most of all—hope, Marlo Thomas’ book will speak to women of all ages. We’re so proud of Julie and appreciate the invaluable help she’s given to…
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    Asperger's Diary

  • Supporting Sensory Issues: a Q&A With Lindsey Biel

    Lynne Soraya
    12 Oct 2014 | 6:53 pm
    Occupational therapist and author Lindsey Biel gives us insights from her clinical experiences working with individuals with sensory issues. read more
  • Catastrophic Encounters and Autistic Identity

    Lynne Soraya
    30 Aug 2014 | 10:42 pm
    How do you react, as a parent, when you have a child who faces judgement and danger, because of his or her racial and neurological differences? Here is one mother's perspective from activist, advocate, writer, and researcher Kerima Çevik. read more
  • It’s Not Mayberry

    Lynne Soraya
    29 Aug 2014 | 6:06 pm
    Years ago, when I was just out on my own, I had an experience that has deeply shaped how I view events like those in Ferguson, Missouri these past weeks. One which taught me a lot about how biases can shape perception, and how those perceptions can have devastating consequences in law enforcement.read more
  • Disability and the Sharing Economy

    Lynne Soraya
    11 Aug 2014 | 6:59 pm
    I admit, I’ve developed a fascination with what some have called “collaborative consumption,” exemplified in sites like Airbnb, Uber, and Taskrabbit. I see real possibilities in these technologies to make my life easier — but there are aspects of it that trouble me. read more
  • Barriers to Effective Medical Care for Autistic Adults

    Lynne Soraya
    30 Jun 2014 | 7:33 pm
    A recent visit to the hospital underlined for me the challenges of getting medical care when you're on the autism spectrum. read more
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    Thrive With Aspergers

  • My Ultimate Top 10 Autism Dating Articles

    Stephen Borgman
    27 Oct 2014 | 6:00 am
    Here’s a list of the ultimate Top 10 Autism Dating Articles from this blog, Thrive with Aspergers. I went through the WordPress statistics for my site, searching for the 10 most popular/viewed articles on dating since I started the blog. Here’s what I found, listed from #10 to #1! #10 Who Else Wants Friendship and Dating Tips for Aspergers Young People? Dr. Byron, a clinical psychologist from England, offers these friendship and dating tips for Aspergers young people. Read on for dating help. #9 Take the Guesswork Out of Aspergers Dating Try playing chess without knowing the…
  • Defend Yourself Against Manipulative People

    Stephen Borgman
    20 Oct 2014 | 6:00 am
    Chinese water torture is a process in which water is slowly dripped onto a person’s forehead, allegedly driving the restrained victim insane. (from the Wikipedia definition). I’ve experienced emotional Chinese water torture in some relationships! Years ago, an acquantaince (I’ll call him George)  slowly drove me to the brink of emotional exhaustion. As I got to know George, he became upset if I spent time with other friends.  He would analyze my motives, question why I was doing what I was doing, and often express disappointment, no matter what I did or did not do!
  • Dating and Aspergers

    Stephen Borgman
    13 Oct 2014 | 6:30 am
    Dating and Aspergers: Can The Two Go Together? It’s hard enough to date, period. But dating and Aspergers can seem incompatible.   As one Aspie said, “How do you know when a person is interested, friendly, or annoyed?” That comes back to learning how to read body language and signals. Which, of course, is the crux of all social communication, but only at a new and different level. I am definitely not going to pretend to have the answers, because I don’t. What I do have is some starting points for conversation that I hope you, the reader, will add to.  Below are some…
  • Famous People With Aspergers: Tim Page

    Stephen Borgman
    5 Oct 2014 | 1:19 pm
    "The features of character are carved out of adversity." Paul Barnett.Click To Tweet - Powered By CoSchedule When I think of famous people with Aspergers, Tim Page is one person who comes to mind. Tim Page is an American writer, editor, Pulitzer Prize winning music critic, producer, and professor. We can learn much from famous Asperger adults of all walks of life.  Here his Tim’s background, career, and some life lessons he can teach us. Background and Career Tim grew up in Storrs, CT, where his father was a professor of education at the University of Connecticut.   While growing up,…
  • Is Understanding and Spotting Manipulative Behavior Essential?

    Stephen Borgman
    29 Sep 2014 | 5:09 am
    Yesterday, my wife and I went to our local car dealership to “purchase” our leased vehicle. We met Beth (not her real name), the sales representative, who escorted us to a comfortable desk and chairs. She told us that we could purchase our vehicle for the quoted amount on our lease — plus $2000 extra. Well, we do not have $2000 that we can easily spend above the expected purchase price. My wife, Vicki, asked her to explain why we would have to pay $2000 extra. She said something about the state of Illinois charging taxes for everything, and that the dealership isn’t…
 
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    From Inside the Puzzle: Raising a Child with Autism Blog

  • Celebrate the Awesome

    Devon Alley
    16 Oct 2014 | 7:10 am
    I've been really terrible about writing over the past couple of months. Mostly, it's because I haven't managed to sculpt out a new daily routine that allows for the time I need to devote to the art. Caring for an infant is time-consuming and often very...(read more)
  • It's Easy Being a Mom

    Devon Alley
    17 Sep 2014 | 5:28 am
    Now that I have a two month old at home, I've been thinking a lot about motherhood, lately. It's interesting, because I think when you are new to motherhood, you spend a lot of time thinking about what kind of mother you are going to be - what sort of...(read more)
  • High School is a Thing

    Devon Alley
    9 Sep 2014 | 6:05 am
    This year, A. turns fifteen, and she begins her first year of 9th grade. Just like that, High School is a Thing that we do. It's hard to believe that we're here already. It's hard to believe it's been ten years since we moved to this city, since A. started...(read more)
  • The Lego Movie

    Devon Alley
    26 Aug 2014 | 6:28 am
    It hasn't always been easy to get A. to watch new movies. Even now, she still doesn't like going to the theater, and whenever anyone makes a suggestion of a movie for her to watch, she'll still watch several scenes from the film on YouTube before she...(read more)
  • You'll Always Be My Little Girl

    Devon Alley
    20 Aug 2014 | 8:47 am
    I know it sounds crazy, but before K. was born, I was actually a little worried about the love I would have for both of my daughters. When A. was first born, I was absolutely overwhelmed by just how much I loved her I could have never imagined I would...(read more)
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    The Autism News

  • Hugo Horiot: le plaidoyer d’un ancien autiste

    The Autism News
    30 Oct 2014 | 12:55 pm
    By Canal + La Nouvelle Edition Hugo Horiot: le plaidoyer d’un ancien autiste Read the full articleRead the full article on a new tab Source: http://www.canalplus.fr/c-infos-documentaires/c-la-nouvelle-edition/pid6850-la-nouvelle-edition.html?vid=1022207
  • Un quadragénaire au tribunal pour avoir frappé son fils autiste

    The Autism News
    30 Oct 2014 | 12:53 pm
    By Belga | DH.be Noël D., 48 ans, a comparu lundi devant le tribunal correctionnel de Namur pour avoir porté plusieurs coups à son fils autiste de 20 ans en 2012 dans leur habitation à Sambreville. “Ce jour-là, il était fort nerveux. C’était au moment du souper, il mangeait comme un cochon. Puis, il a voulu s’en prendre à ma copine”, explique le prévenu. Noël D. a alors “perdu les pédales”, selon son avocat, qui souligne les relations “douloureuses et complexes” qu’il a pu vivre au quotidien avec son enfant autiste. Le substitut…
  • Aider les familles d’autistes à sortir de leur bulle, le projet de deux pères

    The Autism News
    30 Oct 2014 | 12:49 pm
    By Mathieu Thuillier | La Voix du Nord Pour mieux accompagner dans leurs démarches les familles d’un enfant autiste, Bruno Fastyn, Halluinois de 42 ans, et Cédric Lecerf, Valenciennois, ont fondé Réseau Bulle en septembre dernier. L’un est Halluinois, l’autre Valenciennois et rien ne les prédestinait à se rencontrer. Bruno Fastyn, 42 ans, et Cédric Lecerf, 31 ans, sont les papas des petits Loulian et Jarod, diagnostiqués TED, « trouble envahissant du développement. » C’est sur les réseaux sociaux qu’ils ont commencé à échanger et à confronter leurs expériences. Un…
  • Andrea, una historia de superación ante el autismo

    The Autism News
    30 Oct 2014 | 12:46 pm
    By Diario Panorama (YouTube) La canción Lo que sienten nuestras almas tiene un videoclip filmado en Caracas, donde nació la artista de 19 años que padece el Trastorno del Espectro Autista. Su segundo promocional, Sé que no es fácil, es sobre el autismo. Read the full articleRead the full article on a new tab Source: https://www.youtube.com/watch?v=DyxJsoh_g1Q
  • Descubren por qué el autismo es más frecuente en los niños

    The Autism News
    30 Oct 2014 | 12:44 pm
    By Pilar Quijada | ABC Blogs Esta es una de las principales conclusiones de dos estudios genéticos publicados en “Nature“, los más extensos llevados a cabo hasta la fecha sobre los Trastornos del Espectro Autista (TAE), en los que han participado más de 50 laboratorios repartidos por todo el mundo. Una de las conclusiones más importantes es que al menos el 30% de los TAE están causados por mutaciones espontáneas, o no heredadas. Estas alteraciones génicas surgen de forma espontánea en los espermatozoides o los óvulos justo antes de la concepción, sin que estén presentes en…
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    We Go With Him

  • Dives For the Short-End Money

    Kristina Chew
    29 Oct 2014 | 10:18 pm
    "... So I wouldn't have to take them dives for the short-end money": This great phrase comes from the movie Jim's written and lectured (and...
  • Why Comedy

    Kristina Chew
    18 Oct 2014 | 7:50 pm
    I went to hear a lecture about comedy and community (by the professor who was my advisor in my junior year of college) on Thursday...
  • Parents Night

    Kristina Chew
    9 Oct 2014 | 8:16 am
    It was Parents Night Wednesday at Charlie's school. Amid talking to other parents, Charlie's teacher, behaviorist and principal, I didn't give myself enough time to...
  • A New Chapter

    Kristina Chew
    3 Oct 2014 | 9:28 pm
    I may regret saying this as there's been many a false start, draft of a proposal, drafts and drafts and drafts, meditations on titles and...
  • A New Twist to the Established Way of Things

    Kristina Chew
    21 Sep 2014 | 6:27 pm
    When Jim taught 6-year-old Charlie to ride a bike, we never thought he and Charlie would do, as they have so far, 35,000 miles (plus)....
 
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    Living With Autism: A Parent's Perspective

  • Kaboom! Big Block Sing Song Review And Giveaway

    Carl Bainbridge
    28 Oct 2014 | 4:26 pm
    Kaboom Entertainment sent me a copy of the Big Block Song Book DVD for the purposes of a review,  All opinions are those of myself or my family. Big Block Sing Song – Fruit from Phase 4 Films on Vimeo.   Big Block Sing Song, the fun and engaging animated musical series, which currently airs across the globe on TV, was available on DVD for the first time ever in the U.S. and Canada on October 28th. This DVD is jam packed with […] The post Kaboom! Big Block Sing Song Review And Giveaway appeared first on Living With Autism: A Parent's Perspective.
  • Staples Makes Back To School Online A Great Option

    Carl Bainbridge
    12 Oct 2014 | 5:39 pm
    Staples Canada offered me a selection of products to usher in the back to school season. Included in the package were back packs and lunchbags for all of my children. My son chose a blue camo set from Lug. My oldest daughter chose a Foxy Jeans Backpack and a Lug lunchbox. My youngest daughter loves flowers and fairies and her choices demonstrated that. Staples Canada also sent along a number of must have items including, a pack of erasable blue pencils, a […] The post Staples Makes Back To School Online A Great Option appeared first on Living With Autism: A Parent's Perspective.
  • Resurgo MonctonStrong

    Carl Bainbridge
    9 Jun 2014 | 7:18 pm
    How do you explain what happened on the night of June 4th, 2014. A part of me changed that day. It was not because I had never had a police officer killed near me, that happened outside my apartment building 10 years ago. It is not even the fact that we lived within the lock down zone, though that definitely added a new level of stress to our lives. The difference this time was, I was not in Toronto anymore.  […] The post Resurgo MonctonStrong appeared first on Living With Autism: A Parent's Perspective.
  • Must Have Marvin Review and Giveaway

    Carl Bainbridge
    23 Mar 2014 | 4:13 pm
    “Disclosure (in accordance with the FTC’s 16 CFR, Part 255: “Guides Concerning the Use of Endorsements and Testimonials in Advertising): Many thanks to Propeller Consulting, LLC for providing this prize for the giveaway. Choice of winners and opinions are 100% my own and not influenced by monetary compensation. I did receive a sample of the product in exchange for this review and post. About Must-Have Marvin! The second title in the Shine Bright Kids series, Must Have Marvin! teaches children that […] The post Must Have Marvin Review and Giveaway appeared first on Living With…
  • Eyes Of The Sage by Peter J Ochs II Book Review

    Carl Bainbridge
    16 Mar 2014 | 4:01 pm
    Disclosure: I got a copy of Eyes Of The Sage as part of an advertorial. I am largely a sci-fi/fantasy reader and tend to actually stick away from historical fiction. This particular book actually caught my attention simply because it was not your normal historical fiction book. Eyes of the Sage is a journey through the eyes of a group of scientists as they finish the work of one of their colleagues and work to find a vanished society.  The […] The post Eyes Of The Sage by Peter J Ochs II Book Review appeared first on Living With Autism: A Parent's Perspective.
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    Young Autistic Female

  • Life Update & A Small Rant About Things

    20 Oct 2014 | 12:06 am
    I am living in a beautiful condo with one of my best friends.  I had an incredibly full summer – I worked every day – but I thrive on being busy, and I really enjoyed myself.  Having so many commitments made me really thankful for quite time with my fiancé, and made me really focus on eating well and exercise.  I took up running in the summer, and I am still trying to practice, in order to run a half marathon in May.  I haven’t ran a lot recently, simply because I struggle to motivate myself past the anxiety of it all, but I have been going to the gym regularly, and…
  • Anxiety

    14 Jun 2014 | 7:25 pm
    Anxiety is a kind of vogue diagnosis.  A lot of people have anxiety, it seems.  There is a mental health movement right now, and anxiety has become quite vogue.A lot of people have anxiety. I like this graphic because it illustrates a lot of different people who suffer from anxiety, although, of course, even this is limited in its scope.  Everyone experiences periods of anxiety, regardless of their clinical or mental health history.  This does not mean that everyone has an anxiety disorder, of course, but stress is a normal part of life and anxiety is simply a heightened…
  • Circadian Rhythm

    13 Jun 2014 | 11:35 pm
    Today I am so thankful for the Circadian Rhythm. The Circadian Rhythm is a body response that regulates a series of basal actions, including the sleep cycle.  Despite my three years of a science degree, I don't remember a whole lot about the Circadian Rhythm, but I know that part of it is the body's "internal clock." And I am so thankful.I've been working a lot of evenings recently, and I had a night shift Wednesday that I haven't fully recovered from.  I've also been working every day, many hours a day.  Plus I'm entering the last weekend of a course that I'm taking,…
  • I Can't Keep Calm Because I Have Anxiety

    17 May 2014 | 1:43 pm
    This is one of my favorite things.  I have been increasingly anxious in the last few weeks and months.  I'm not really sure how to deal with it.  Sometimes, I just have to make fun of myself.  I can't keep calm because I have anxiety.
  • Frustrated by Ignorance (& Pre-Marital Counselling)

    29 Apr 2014 | 5:22 pm
    Why am I crying right now?My fiance just called me.  He'd been called to "pre-marital counselling detention" (as I called it), but more specifically, our pastor had asked to have a private meeting with him.  We've both been speculating for a few days over what would be discussed in this meeting.  We had a lot of ideas.  But we were totally wrong.He wanted to talk about my Asperger's. I wasn't even there (he specifically asked my fiance to meet him privately) to discuss my brain. I haven't gotten the whole story yet, but I'm upset about that.  I'm upset because,…
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    my Cartesian Theatre

  • Routine and How It’s Been and Now It’s Changed: Fail Better

    mud
    24 Oct 2014 | 4:51 pm
    Something that has always been core to my life. It’s more than just: Wake Up Go to Work Come Home From Work Drink (Use to be smoking weed until I had to quit for the new job) Watch a film/TV Show or play a game or read Sleep On the surface that’s pretty much what […] The post Routine and How It’s Been and Now It’s Changed: Fail Better appeared first on my Cartesian Theatre.
  • The 4 Year Hour Glass of Life

    mud
    14 Oct 2014 | 3:48 pm
    Moving home has been different. I haven’t spent so much time with my family since I moved home after my two year imposed independence that begun in 2008. I’m still dealing with a lot of the emotional baggage that it wrought. I still feel a deep shame for the way things unfolded and while I’ve […] The post The 4 Year Hour Glass of Life appeared first on my Cartesian Theatre.
  • Sunny Day

    mud
    1 Oct 2014 | 2:58 pm
    She peeked above the horizon Her beaming smile shone through Her warmth blew softly away, The lonely night time blues I’ve had sunny days, and rainy days And days of dark and snow, Night sometimes brings me comfort For it’s lonelier, you know? Being lonely has its ups, Reflecting on yesterdays, But sun light never […] The post Sunny Day appeared first on my Cartesian Theatre.
  • 5 Things That Really Irk Me – Aspergers Edition

    mud
    30 Sep 2014 | 7:30 am
    What Irks Me (In no particular order) People who send mixed signals about what they want When I get too close to a woman and get lost in the fantasy Wasting my time and my life on the wrong track Not having control over how my life has been The issues I have that I […] The post 5 Things That Really Irk Me – Aspergers Edition appeared first on my Cartesian Theatre.
  • Fuzzy People

    mud
    29 Aug 2014 | 4:38 am
    Dealing with difficult interpersonal situations are a blessing and a curse. I find them a blessing because they challenge me. I often need to learn as I go with people. At this point in my life I’ve accrued depth of information about how people work and act but every day they surprise me. Humans are […] The post Fuzzy People appeared first on my Cartesian Theatre.
 
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    Speaking In Grace

  • Parenting

    Beth Clay
    30 Oct 2014 | 1:45 am
    Parenting is hard…these people, big and small, that God has entrusted to us…to grow, care for, and guide. The people we love more than words can adequately express…our children. I sit here with a heart that hurts, it hurts for my children, for the things that I can not fix and the things that I should not fix. Fixing things is, as Moms and Dads, part of our job description. From broken toys and scraped knees, to hurt feeling and broken hearts…we are there to mend and soothe. I read a great post the other day about Why Parenting is the Hardest Job I’ve Ever HadBy…
  • “Be Cool?” And Hand Over The Timer

    Beth Clay
    28 Oct 2014 | 1:45 am
    As I stood at the bar in the kitchen looking at some papers, my phone innocently placed there beside me…Cooper quietly walks up and stealthily reaches for it. saying…in more of a question than a statement, “Be cool?”. What does my fifteen year old Autistic son want with my phone? I wondered, but I had a good idea what it was. You see Cooper loves to eat. He loves it so much, that I think…no I know, he would eat until he made himself sick. In part, I think it is due to his medication, in part it is due to him being a teenage boy, and in final part it’s…
  • Who Am I ? By Cooper Clay

    Beth Clay
    26 Oct 2014 | 1:45 am
    WHO AM  I  By Cooper Clay My name is?   cooper   Cooper’s favorite food is?  milk Cooper’s favorite thing to do at school is?  classroom Cooper’s favorite thing to do at home is?  kitchen What is Cooper’s favorite store?  grocery store How does Cooper go to school?  high school bus What are Cooper’s friends names?   mom dad mr jeff What does Cooper like to eat? chicken What does Cooper do on the computer?  mouse What are Cooper’s sister’s name?  myra ava welsey hannah Myra Ava Wesley Hannah Who is Cooper’s favorite Sister?  myra Cooper’s dog’s name is?
  • He Started Kindergarten, Then Stopped

    Beth Clay
    23 Oct 2014 | 1:45 am
    Cooper started kindergarten, then stopped kindergarten. I believe it lasted all of three weeks…maybe four. Either way it didn’t last long… See if I get to do any learnin’ I am, almost without fail, optimistic. I felt this way going into Cooper’s kindergarten school year, even though he had not been able to attend kindercamp with his typical peers like we had wanted. I was still hopeful for a positive and successful kindergarten experience. The people, the teachers, the aids at his new school, were all wonderful. They were nice and caring…they loved Cooper.
  • What We Fought

    Beth Clay
    21 Oct 2014 | 1:45 am
    The recent reminder of Why We Fight, ultimately led to reflection on what we fought. The truth is, I have never thought of Autism as something we have to fight, needed to fight, or as something Cooper is fighting. I know that some look at it that way…and that is valid, not that anyone needs me to validate their feelings or give my approval. This is simply,  just how I look at it. As parents, we are as unique as our children. Our thoughts, feelings, opinions…they are all valuable, important and deserve respect. So when I speak, I speak for me…and occasionally, the…
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